Roybal Translational Research Center to Promote Context-Specific Caregiving of Community-Dwelling Persons Living with Alzheimer's Disease or Related Disorders

皇家转化研究中心将促进对患有阿尔茨海默病或相关疾病的社区居民进行具体护理

• 批准号: 9810878
• 负责人: Drenna Waldrop
• 金额: $ 35.21万
• 依托单位: EMORY UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-09-15 至 2024-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9810878
• 关键词: Address; Alzheimer' s Disease; Caregivers; Center for Translational Science Activities; Collaborations; Communities; Consultations; Coordination and Collaboration; Creativeness; Critiques; Development; Development Plans; Disease; Ensure; Evidence based intervention; Family member; Feedback; Fostering; Friends; Funding; Goals; Human Resources; Individual; Interest Group; Intervention; Leadership; Lesbian Gay Bisexual; Letters; Mentors; Methods; Monitor; Nursing Research; Office Nursing; Outcome; Pathway interactions; Persons; Pilot Projects; Preparation; Primary Progressive Aphasia; Process; Progress Reports; Recommendation; Research; Research Personnel; Resources; Rest; Schedule; Science; Secure; Series; Source; Stigmatization; Structure; Study Section; Telephone; United States National Institutes of Health; Ursidae Family; Valverde; Videoconferences; Work; base; caregiver interventions; caregiving; design; experience; informal caregiver; meetings; member; programs; response; success; therapy development

Abstract. The overall goal of the Pilot Core of the Center for Translational Research to Promote Context- Specific Caregiving Mastery for Informal Caregivers of Community-Dwelling Persons Living with Alzheimer's Disease or Related Disorders is to move intervention ideas aligned with the Center's consumer-based and context-specific guiding principles successfully through development stages I-III toward real world imple- mentation. Anchored in creative energy of the Center's Design Studio, the Pilot Core will manage an annual pipeline of four processes designed to promote the “success” of pilot interventions: the filtering, selection, support, and advancement of compelling ideas. These processes are meant to support the attainment of the Core's three aims: Aim 1. Evaluate pilot intervention applications and select those with the greatest promise of enhancing context-specific caregiving mastery through early stage interventions that are deemed to be of high impact and significance. Aim 2. Provide oversight, mentoring, and consultation to ensure the successful outcome and dissemination of Center-supported pilot intervention projects. Aim 3. Advance successfully completed pilot projects to secure support for further stages of intervention development either through the Center or through other sources (e.g., NIH research mechanisms). The filtering process is meant to encourage the floating of pilot ideas from researchers drawn from the Center's networks and to guide the most promising through the Center's Design Studio for the sharpening of ideas and the development of pilot proposals. The selection process will involve Center Advisors (Expert, Local, and Consumer) in an NIH-type review of submitted proposals, identifying the 2-4 pilots (principally, but not exclusively single-year Stage I projects) that can be advanced for support, pending NIA review and approval. The support of pilot activities will involve individual mentoring teams of Center leaders and Advisors meeting regularly (by phone or videoconference) with each pilot investigator and quarterly meetings between the investigator and the Center leadership team to monitor progress and provide guidance in addressing challenges that might occur in the course of pilot implementation. The fourth process, pilot advancement, speaks to the key goal of the Center: ensuring that the pilots, the kernels of ideas that are supported by the Center, move through stages of development and become evidence-based interventions that can be widely disseminated. The advancement process begins at the point of pilot implementation with the development of an individualized plan for moving forward to the next stage of development. Within this plan, each investigator and her/his mentoring team periodically engage with the Design Studio to conceptualize and re-conceptualize the strategy for a next-stage proposal. In its first year, the Pilot Core will support the activities of two Stage I pilots, one involving a distance-provided intervention for caregivers of persons living with Primary Progressive Aphasia, the other a group-based program for isolated and stigmatized lesbian/gay/bisexual caregivers of partners, family members, and friends.

抽象。翻译研究促进语境中心试点核心的总体目标- 社区老年痴呆症患者非正式照顾者的特殊照顾掌握 疾病或相关疾病是移动干预的想法与中心的消费者为基础， 成功地通过发展阶段I-III，实现真实的世界， 心理状态依托于中心设计工作室的创造力，试点核心将管理一个年度 旨在促进试点干预措施“成功”的四个过程的管道：筛选，选择， 支持和推进令人信服的想法。这些进程旨在支持实现 核心的三个目标：目标1。评估试点干预应用程序，并选择最有希望的应用程序， 通过早期干预提高特定背景下的自主学习能力， 影响和意义。目标2.提供监督、指导和咨询，以确保成功 中心支助的试点干预项目的成果和传播。目标3.顺利进阶 已完成试点项目，以确保对干预发展的进一步阶段的支持， 中心或通过其他来源（例如，NIH研究机制）。过滤过程是为了鼓励 从该中心的网络中提取的研究人员的试点想法的浮动，并指导最有前途的 通过该中心的设计工作室，使想法更加尖锐，并提出试点建议。的 选择过程将涉及中心顾问（专家、当地和消费者）， 提交了建议，确定了2-4个试点项目（主要是，但不完全是一年期的第一阶段项目）， 在等待NIA审查和批准的情况下，可以提前获得支持。对试点活动的支持将涉及 中心领导人和顾问的个别指导小组定期开会（通过电话或视频会议） 与每个试点研究者和研究者与中心领导团队之间的季度会议， 监测进展情况并提供指导，以应对试点过程中可能出现的挑战 实施.第四个进程，即试点推进，说明了中心的关键目标：确保 试点，由中心支持的想法的核心，通过发展阶段，并成为 可以广泛传播的循证干预措施。提升过程始于 试点实施，并制定个性化计划，以便进入下一阶段， 发展在该计划中，每名调查员及其辅导团队定期与 设计工作室为下一阶段的提案概念化和重新概念化战略。在第一年， “试验核心”计划将支持两个第一阶段试验计划的活动，其中一个涉及远距离提供的干预， 一个是原发性进行性失语症患者的护理人员，另一个是基于小组的孤立性失语症患者的护理人员。 以及对伴侣、家庭成员和朋友的女同性恋/男同性恋/双性恋照顾者的污名化。