Roybal Translational Research Center to Promote Context-Specific Caregiving of Community-Dwelling Persons Living with Alzheimer's Disease or Related Disorders

皇家转化研究中心将促进对患有阿尔茨海默病或相关疾病的社区居民进行具体护理

• 批准号: 10250457
• 负责人: Drenna Waldrop
• 金额: $ 45.81万
• 依托单位: EMORY UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-09-15 至 2024-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10250457
• 关键词: Address; Alzheimer' s Disease; Caregivers; Center for Translational Science Activities; Collaborations; Communities; Consultations; Coordination and Collaboration; Creativeness; Critiques; Development; Development Plans; Disease; Ensure; Evidence based intervention; Family member; Feedback; Fostering; Friends; Funding; Goals; Human Resources; Individual; Interest Group; Intervention; Leadership; Lesbian Gay Bisexual; Letters; Mentors; Methods; Monitor; Nursing Research; Office Nursing; Outcome; Pathway interactions; Persons; Pilot Projects; Preparation; Primary Progressive Aphasia; Process; Progress Reports; Recommendation; Research; Research Personnel; Resources; Rest; Schedule; Science; Secure; Series; Source; Stigmatization; Structure; Study Section; Telephone; United States National Institutes of Health; Ursidae Family; Valverde; Work; base; caregiver interventions; caregiving; design; experience; informal caregiver; meetings; member; programs; response; success; therapy development

Abstract. The overall goal of the Pilot Core of the Center for Translational Research to Promote Context- Specific Caregiving Mastery for Informal Caregivers of Community-Dwelling Persons Living with Alzheimer's Disease or Related Disorders is to move intervention ideas aligned with the Center's consumer-based and context-specific guiding principles successfully through development stages I-III toward real world imple- mentation. Anchored in creative energy of the Center's Design Studio, the Pilot Core will manage an annual pipeline of four processes designed to promote the “success” of pilot interventions: the filtering, selection, support, and advancement of compelling ideas. These processes are meant to support the attainment of the Core's three aims: Aim 1. Evaluate pilot intervention applications and select those with the greatest promise of enhancing context-specific caregiving mastery through early stage interventions that are deemed to be of high impact and significance. Aim 2. Provide oversight, mentoring, and consultation to ensure the successful outcome and dissemination of Center-supported pilot intervention projects. Aim 3. Advance successfully completed pilot projects to secure support for further stages of intervention development either through the Center or through other sources (e.g., NIH research mechanisms). The filtering process is meant to encourage the floating of pilot ideas from researchers drawn from the Center's networks and to guide the most promising through the Center's Design Studio for the sharpening of ideas and the development of pilot proposals. The selection process will involve Center Advisors (Expert, Local, and Consumer) in an NIH-type review of submitted proposals, identifying the 2-4 pilots (principally, but not exclusively single-year Stage I projects) that can be advanced for support, pending NIA review and approval. The support of pilot activities will involve individual mentoring teams of Center leaders and Advisors meeting regularly (by phone or videoconference) with each pilot investigator and quarterly meetings between the investigator and the Center leadership team to monitor progress and provide guidance in addressing challenges that might occur in the course of pilot implementation. The fourth process, pilot advancement, speaks to the key goal of the Center: ensuring that the pilots, the kernels of ideas that are supported by the Center, move through stages of development and become evidence-based interventions that can be widely disseminated. The advancement process begins at the point of pilot implementation with the development of an individualized plan for moving forward to the next stage of development. Within this plan, each investigator and her/his mentoring team periodically engage with the Design Studio to conceptualize and re-conceptualize the strategy for a next-stage proposal. In its first year, the Pilot Core will support the activities of two Stage I pilots, one involving a distance-provided intervention for caregivers of persons living with Primary Progressive Aphasia, the other a group-based program for isolated and stigmatized lesbian/gay/bisexual caregivers of partners, family members, and friends.

抽象的。翻译研究中心试点核心的总体目标是促进语境-- 社区阿尔茨海默病患者非正式照顾者的具体护理掌握 疾病或相关障碍是推动干预理念与该中心以消费者为基础和 针对具体情况的指导原则成功地通过发展阶段I-III走向现实世界的实施-- 精神错乱。基于中心设计工作室的创意能量，Pilot Core将管理每年一次的 为促进试点干预措施的“成功”而设计的四个程序：筛选、选择、 支持和推动令人信服的想法。这些进程旨在支持实现 CORE的三个目标：目标1.评估试点干预申请，并选择最有希望的 通过被认为是高水平的早期干预，加强对特定背景的护理的掌握 影响和意义。目标2.提供监督、指导和咨询，以确保成功 中心支持的试点干预项目的结果和传播。目标3.成功晋升 已完成的试验项目，以确保对干预发展的进一步阶段的支持，通过 或通过其他来源(例如，美国国立卫生研究院的研究机制)。过滤过程的目的是鼓励 来自中心网络的研究人员的试点想法的漂浮，并指导最有希望的 通过该中心的设计工作室进行思想的磨砺和试点提案的制定。这个 遴选过程将让中心顾问(专家、当地和消费者)参与NIH类型的审查 提交建议书，确定2-4个试点项目(主要但不完全是一年期第一阶段项目)， 可以提前获得支持，等待NIA审查和批准。对试点活动的支持将包括 由中心领导和顾问组成的个别指导团队定期开会(通过电话或视频会议) 与每个试点调查员以及调查员和中心领导团队之间的季度会议 监测进展情况并提供指导，以应对试点过程中可能出现的挑战 实施。第四个进程，试点进程，符合该中心的主要目标：确保 飞行员，中心支持的想法的核心，经历了发展阶段，并成为 可广泛传播的循证干预措施。晋级过程从以下点开始 试点实施情况，并制定向下一阶段迈进的个性化计划 发展。在该计划中，每个调查员和她/他的指导团队定期与 设计工作室对下一阶段提案的战略进行概念化和重新概念化。在它的第一年， 飞行员核心将支持两名第一阶段飞行员的活动，其中一名涉及为 原发进行性失语症患者的照顾者，另一个是基于群体的孤立失语计划 以及对伴侣、家人和朋友的女同性恋者/男同性恋者/双性恋者照顾者的污名。