Core E: Outreach, Recruitment, and Engagement Core

核心 E：外展、招聘和参与核心

• 批准号: 10473826
• 负责人: Scott ROBERTS
• 金额: $ 43.21万
• 依托单位: UNIVERSITY OF MICHIGAN AT ANN ARBOR
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-09-01 至 2026-06-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10473826
• 关键词: Achievement; Address; Affect; African American; Aging; Alzheimer' s Disease; Alzheimer' s disease related dementia; Area; Awareness; Biological Markers; Black American; Black race; COVID-19 pandemic; Caregivers; Clinical; Clinical Data; Collaborations; Communication; Communities; Community Outreach; Community Physician; Consensus; Dementia; Development; Diagnosis; Disclosure; Education; Education and Outreach; Elderly; Evaluation; Event; Faculty; Family; Family Research; Family member; Funding; Genetic Markers; Gerontology; Goals; Health Personnel; Health Professional; Health education; Individual; Institutes; Knowledge; Lead; Lewy Body Dementia; Longitudinal cohort; Longitudinal cohort study; Memory; Memory Loss; Mentors; Methods; Michigan; Mission; Neuropsychological Tests; Newsletter; Ohio; Online Systems; Participant; Patients; Personal Satisfaction; Persons; Population Heterogeneity; Postdoctoral Fellow; Process; Program Evaluation; Protocols documentation; Provider; Research; Research Personnel; Research Training; Resources; Risk; Schools; Test Result; Training Activity; Training and Education; United States National Institutes of Health; Universities; advanced dementia; amyloid imaging; clinically significant; community based participatory research; community engagement; community partnership; contextual factors; data management; dementia care; education research; experience; graduate student; health communication; innovation; interest; lectures; multidisciplinary; neuroimaging; neuropathology; outreach; programs; recruit; research study; skill acquisition; skills; virtual; volunteer; web site

ABSTRACT – CORE E: OUTREACH, RECRUITMENT, AND ENGAGEMENT CORE The Outreach, Recruitment, and Engagement Core (OREC) will serve as a liaison between the Michigan Alzheimer’s Disease Research Center and key stakeholders including patients, families, research participants, and a variety of professional and lay community groups. To support ADRC goals of advancing research and practice in Alzheimer’s disease and related dementias, the OREC leads the development, implementation and evaluation of innovative means of health education and community outreach activities, with an overarching goal of enhancing research study recruitment and retention. These efforts will be closely coordinated with the activities of the Administrative, Clinical, Data Management and Statistical, Neuropathology, Biomarker, and Neuroimaging Cores, and the Research Education Component; they will also involve key regional academic collaborators at the University of Michigan (U-M), Wayne State University (WSU), and Michigan State University (MSU), as well as ORE Cores within the national ADRC network. Community partnerships across the state of Michigan and Northern Ohio (e.g., with the Michigan chapter of the Alzheimer’s Association and the Michigan Dementia Coalition) will enhance the reach and depth of OREC programs. Core aims will address the following: 1) education of key stakeholder groups about Alzheimer’s disease and related dementias and available ADRC resources; 2) recruitment of a diverse population of research participants through strategic outreach and engagement efforts, with emphasis on continuing to engage the Black American community in southeastern Michigan, facilitated by a community-based participatory research (CBPR) approach developed with input from our Detroit Advisory Council; 3) enhancement of efforts to retain research participants in Center-sponsored studies, including its longitudinal cohort (LC) study the University of Michigan – Memory and Aging Project; 4) development and evaluation of a protocol for disclosing individual research results with clinical significance to participants in the LC; and 5) Contribution to Center efforts in professional training and education, with a focus on dementia researchers and healthcare professionals. In carrying out its mission, the OREC will draw upon the skills and experience of an interdisciplinary team with considerable expertise in dementia care and support, health communication, caregiver and patient wellness, patient and provider education and training, program evaluation, and community engagement. These activities will not only address local and regional needs, but will also contribute to a national effort to promote Alzheimer’s disease research and education.

摘要 – 核心 E：外展、招聘和参与核心 外展、招聘和参与核心 (OREC) 将充当密歇根州与 阿尔茨海默病研究中心和主要利益相关者，包括患者、家庭、研究参与者， 以及各种专业和非专业社区团体。支持 ADRC 推进研究和发展的目标 OREC 在阿尔茨海默病和相关痴呆症领域的实践中，领导着开发、实施和 评估健康教育和社区外展活动的创新手段，并全面考虑 加强研究招募和保留的目标。这些努力将与 行政、临床、数据管理和统计、神经病理学、生物标志物和 神经影像核心和研究教育部分；他们还将涉及关键的区域学术 密歇根大学 (U-M)、韦恩州立大学 (WSU) 和密歇根州立大学的合作者 大学 (MSU) 以及国家 ADRC 网络内的 ORE 核心。社区合作伙伴关系 密歇根州和俄亥俄州北部（例如，阿尔茨海默病协会密歇根分会和 密歇根痴呆症联盟）将扩大 OREC 计划的范围和深度。核心目标将解决 以下内容： 1) 对主要利益相关者群体进行有关阿尔茨海默病和相关痴呆症的教育 可用的 ADRC 资源； 2）通过战略性的方式招募不同群体的研究参与者 外展和参与工作，重点是继续让美国黑人社区参与 密歇根州东南部，由开发的基于社区的参与性研究（CBPR）方法推动 听取底特律咨询委员会的意见； 3）加强留住研究参与者的努力 中心资助的研究，包括密歇根大学的纵向队列 (LC) 研究 – 记忆和 老龄化项目； 4) 制定和评估披露个人研究结果的协议 对 LC 参与者的临床意义； 5) 对中心在专业培训和 教育，重点关注痴呆症研究人员和医疗保健专业人员。在履行其使命时， OREC 将利用跨学科团队的技能和经验，该团队在以下领域拥有丰富的专业知识： 痴呆症护理和支持、健康沟通、护理人员和患者健康、患者和提供者 教育和培训、项目评估和社区参与。这些活动不仅将解决 当地和区域的需求，但也将有助于国家努力促进阿尔茨海默病研究 和教育。