Core E: Outreach, Recruitment, and Engagement Core

核心 E：外展、招聘和参与核心

• 批准号: 10261113
• 负责人: Scott ROBERTS
• 金额: $ 44.3万
• 依托单位: UNIVERSITY OF MICHIGAN AT ANN ARBOR
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-09-01 至 2026-06-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10261113
• 关键词: Achievement; Address; Affect; African American; Aging; Alzheimer' s Disease; Alzheimer' s disease related dementia; Area; Awareness; Biological Markers; COVID-19 pandemic; Caregivers; Clinical; Clinical Data; Collaborations; Communication; Communities; Community Outreach; Community Physician; Consensus; Dementia; Development; Diagnosis; Disclosure; Education; Education and Outreach; Elderly; Evaluation; Event; Faculty; Family; Family Research; Family member; Funding; Genetic Markers; Gerontology; Goals; Health Personnel; Health Professional; Health education; Individual; Institutes; Knowledge; Lead; Lewy Body Dementia; Longitudinal cohort; Longitudinal cohort study; Memory; Memory Loss; Mentors; Methods; Michigan; Mission; Neuropsychological Tests; Newsletter; Ohio; Online Systems; Participant; Patients; Personal Satisfaction; Persons; Population Heterogeneity; Population Research; Postdoctoral Fellow; Process; Program Evaluation; Protocols documentation; Provider; Research; Research Personnel; Research Training; Resources; Risk; Schools; Test Result; Training Activity; Training and Education; United States National Institutes of Health; Universities; advanced dementia; amyloid imaging; clinically significant; community based participatory research; community engagement; community partnership; contextual factors; data management; dementia care; education research; experience; graduate student; health communication; innovation; interest; lectures; multidisciplinary; neuroimaging; neuropathology; outreach; programs; recruit; research study; skill acquisition; skills; virtual; volunteer; web site

ABSTRACT – CORE E: OUTREACH, RECRUITMENT, AND ENGAGEMENT CORE The Outreach, Recruitment, and Engagement Core (OREC) will serve as a liaison between the Michigan Alzheimer’s Disease Research Center and key stakeholders including patients, families, research participants, and a variety of professional and lay community groups. To support ADRC goals of advancing research and practice in Alzheimer’s disease and related dementias, the OREC leads the development, implementation and evaluation of innovative means of health education and community outreach activities, with an overarching goal of enhancing research study recruitment and retention. These efforts will be closely coordinated with the activities of the Administrative, Clinical, Data Management and Statistical, Neuropathology, Biomarker, and Neuroimaging Cores, and the Research Education Component; they will also involve key regional academic collaborators at the University of Michigan (U-M), Wayne State University (WSU), and Michigan State University (MSU), as well as ORE Cores within the national ADRC network. Community partnerships across the state of Michigan and Northern Ohio (e.g., with the Michigan chapter of the Alzheimer’s Association and the Michigan Dementia Coalition) will enhance the reach and depth of OREC programs. Core aims will address the following: 1) education of key stakeholder groups about Alzheimer’s disease and related dementias and available ADRC resources; 2) recruitment of a diverse population of research participants through strategic outreach and engagement efforts, with emphasis on continuing to engage the Black American community in southeastern Michigan, facilitated by a community-based participatory research (CBPR) approach developed with input from our Detroit Advisory Council; 3) enhancement of efforts to retain research participants in Center-sponsored studies, including its longitudinal cohort (LC) study the University of Michigan – Memory and Aging Project; 4) development and evaluation of a protocol for disclosing individual research results with clinical significance to participants in the LC; and 5) Contribution to Center efforts in professional training and education, with a focus on dementia researchers and healthcare professionals. In carrying out its mission, the OREC will draw upon the skills and experience of an interdisciplinary team with considerable expertise in dementia care and support, health communication, caregiver and patient wellness, patient and provider education and training, program evaluation, and community engagement. These activities will not only address local and regional needs, but will also contribute to a national effort to promote Alzheimer’s disease research and education.

摘要-核心E：外展、接纳和参与核心 外展，招聘和参与核心（OREC）将作为密歇根州之间的联络， 阿尔茨海默病研究中心和主要利益相关者，包括患者，家属，研究参与者， 以及各种专业和非专业社区团体。为了支持ADRC推进研究的目标， 在阿尔茨海默病和相关痴呆症的实践中，OREC领导了开发，实施和 评价卫生教育和社区外展活动的创新手段， 加强研究招募和保留的目标。这些工作将与联合国系统各机构密切协调， 管理、临床、数据管理和统计、神经病理学、生物标志物和 神经成像核心和研究教育部分;他们还将涉及关键的区域学术 密歇根大学（U-M）、韦恩州立大学（WSU）和密歇根州立大学的合作者 大学（密歇根州立大学），以及国家ADRC网络内的ORE核心。社区伙伴关系 密歇根州和北方俄亥俄州（例如，与密歇根州老年痴呆症协会分会合作， 密歇根州痴呆症联盟）将加强OREC计划的范围和深度。核心目标将解决 以下内容：1）对主要利益相关群体进行关于阿尔茨海默病和相关痴呆症的教育， 可用的ADRC资源; 2）通过战略性的研究参与者招募多样化的人群 外展和参与工作，重点是继续让美国黑人社区参与 密歇根州东南部，由社区为基础的参与性研究（CBPR）的方法开发的促进 与我们的底特律咨询理事会的投入; 3）加强努力，以留住研究参与者， 中心申办的研究，包括密歇根大学的纵向队列（LC）研究-记忆和 老龄化项目; 4）制定和评估披露个人研究结果的协议， 对LC参与者的临床意义;以及5）对中心在专业培训和 教育，重点是痴呆症研究人员和医疗保健专业人员。在执行其使命时， OREC将利用一个具有相当专业知识的跨学科团队的技能和经验， 痴呆症护理和支持，健康沟通，护理人员和患者健康，患者和提供者 教育和培训、项目评估和社区参与。这些活动不仅涉及 地方和地区的需要，但也将有助于国家努力促进阿尔茨海默氏症的研究 和教育