Core E: Outreach, Recruitment, and Engagement Core

摘要-核心E：外展、招聘和参与核心 外联、招聘和参与核心(OREC)将作为密歇根州 阿尔茨海默病研究中心和关键利益相关者，包括患者、家庭、研究参与者、 以及各种专业和非专业的社区团体。支持ADRC推进研究和发展的目标 在阿尔茨海默病和相关痴呆症的实践中，OREC领导着开发、实施和 评价健康教育和社区外展活动的创新手段，重点是 加强研究、学习、招聘和留用的目标。这些努力将与 行政、临床、数据管理和统计、神经病理学、生物标记物和 神经成像核心和研究教育部分；它们还将涉及关键的区域学术 密歇根大学(U-M)、韦恩州立大学(WSU)和密歇根州立大学的合作者 美国密歇根州立大学(密歇根州立大学)，以及全国ADRC网络内的ORE核心。社区合作伙伴关系 密歇根州和北俄亥俄州(例如，阿尔茨海默氏症协会密歇根州分会和 密歇根痴呆症联盟)将加强OREC项目的覆盖面和深度。核心目标将解决 1)对主要利益攸关群体进行有关阿尔茨海默病和相关痴呆的教育，并 可利用的红十字国际委员会资源；2)通过战略规划招募不同人群的研究参与者 外联和参与努力，重点是继续让美国黑人社区参与 密歇根东南部，由开发的基于社区的参与性研究(CBPR)方法促进 底特律咨询委员会的投入；3)加强努力，留住研究参与者 中心赞助的研究，包括密歇根大学的纵向队列(LC)研究-Memory和 老龄化项目；4)制定和评估披露个人研究结果的议定书 对LC参与者的临床意义；以及5)对中心在专业培训和 教育，重点是痴呆症研究人员和医疗保健专业人员。在执行其使命时， OREC将利用一个跨学科团队的技能和经验，该团队在以下方面具有相当的专业知识 痴呆症护理和支持、健康交流、照顾者和患者健康、患者和提供者 教育和培训、项目评估和社区参与。这些活动不仅将解决 地方和地区需求，但也将有助于促进阿尔茨海默病研究的国家努力 和教育。

ABSTRACT – CORE E: OUTREACH, RECRUITMENT, AND ENGAGEMENT CORE The Outreach, Recruitment, and Engagement Core (OREC) will serve as a liaison between the Michigan Alzheimer’s Disease Research Center and key stakeholders including patients, families, research participants, and a variety of professional and lay community groups. To support ADRC goals of advancing research and practice in Alzheimer’s disease and related dementias, the OREC leads the development, implementation and evaluation of innovative means of health education and community outreach activities, with an overarching goal of enhancing research study recruitment and retention. These efforts will be closely coordinated with the activities of the Administrative, Clinical, Data Management and Statistical, Neuropathology, Biomarker, and Neuroimaging Cores, and the Research Education Component; they will also involve key regional academic collaborators at the University of Michigan (U-M), Wayne State University (WSU), and Michigan State University (MSU), as well as ORE Cores within the national ADRC network. Community partnerships across the state of Michigan and Northern Ohio (e.g., with the Michigan chapter of the Alzheimer’s Association and the Michigan Dementia Coalition) will enhance the reach and depth of OREC programs. Core aims will address the following: 1) education of key stakeholder groups about Alzheimer’s disease and related dementias and available ADRC resources; 2) recruitment of a diverse population of research participants through strategic outreach and engagement efforts, with emphasis on continuing to engage the Black American community in southeastern Michigan, facilitated by a community-based participatory research (CBPR) approach developed with input from our Detroit Advisory Council; 3) enhancement of efforts to retain research participants in Center-sponsored studies, including its longitudinal cohort (LC) study the University of Michigan – Memory and Aging Project; 4) development and evaluation of a protocol for disclosing individual research results with clinical significance to participants in the LC; and 5) Contribution to Center efforts in professional training and education, with a focus on dementia researchers and healthcare professionals. In carrying out its mission, the OREC will draw upon the skills and experience of an interdisciplinary team with considerable expertise in dementia care and support, health communication, caregiver and patient wellness, patient and provider education and training, program evaluation, and community engagement. These activities will not only address local and regional needs, but will also contribute to a national effort to promote Alzheimer’s disease research and education.