SIBTime: Media-enhanced Technology for Promoting the Behavioral Health and Family Relationships of Typically Developing Young Siblings

SIBTime：媒体增强技术促进典型发育中的年轻兄弟姐妹的行为健康和家庭关系

• 批准号: 10699837
• 负责人: CAROL W METZLER
• 金额: $ 102.97万
• 依托单位: OREGON RES BEHAVIORAL INTERVENTION STRAT
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-09-16 至 2025-01-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10699837
• 关键词: Address; Age; Animals; Area; Attention; Behavioral; Brothers; Caregivers; Child; Child Rearing; Childhood; Communication; Control Groups; Data; Development; Disabled Persons; Early Intervention; Educational workshop; Emotional; Emotions; Enhancement Technology; Evaluation; Exercise; Face; Family; Family Relationship; Feedback; Feeling; Focus Groups; Frequencies; Friends; Future; Geography; Government; Guilt; Health; Impaired health; Incidence; Individual; Internet; Intervention; Knowledge; Language; Learning; Longevity; Measures; Mental Health; Minority; Multimedia; Narration; Nursery Schools; Outcome Assessment; Parent-Child Relations; Parents; Participant; Personal Satisfaction; Persons; Phase; Pilot Projects; Play; Questionnaires; Randomized; Randomized, Controlled Trials; Recommendation; Reporting; Research; Research Personnel; Risk; Role; Rural; Sample Size; School-Age Population; Self Efficacy; Siblings; Sister; System; Technology; Testing; Thinking; Time; Training; United States; Visual; Waiting Lists; affection; animation; behavioral health; bilingualism; caregiving; design; disability; efficacy testing; ethnic diversity; ethnic minority; experience; family support; hands-on learning; human old age (65+); improved; interactive tool; mobile application; next generation; peer; pilot test; post intervention; pressure; programs; prototype; recruit; response; rural families; satisfaction; scaffold; service providers; skills; social; socioeconomics; stressor; support tools; tool; usability; web app

Project Summary/Abstract Individuals who have disabilities and health impairments frequently have typically developing (TD) siblings who share high levels of involvement throughout their lifespan. Increasingly, siblings are being recognized by parents, government, and disability service providers as the next generation of caregivers for people with disabilities, yet the risks and stressors they experience and their needs for attentive parenting and support are frequently overlooked. While a small number of effective programs and an emerging body of research informs best practices to address the behavioral health needs of siblings across the lifespan, minority and rural siblings face significant barriers to accessing these programs. Our team of researchers, developers, and Sibling Support Project consultants propose to build and evaluate a bilingual assistive mobile app technology for families with sibling children (ages 3-6) that delivers engaging and interactive support for TD siblings’ social-emotional health and well-being. Age- and culturally inclusive multimedia content and interactive behavioral skill-building features will allow families to easily access and engage in the program at the time and place that best meets their needs. In Phase I, we developed and pilot tested an English/Spanish- language prototype of the SIBTime mobile app/web program, with six modules on establishing parent/child connection routines. Each 10-minute learning experience included animated stories; narrated reflection questions; brief guided audio exercise for parents/caregivers; and graphic charts to prompt and reinforce connection routines. Phase I pilot study results showed the modest 5-week intervention was associated with statistically significant medium-large effects on parenting nurturance and parental adjustment with regard to their TD child. Results also showed medium-large increases from pretest to posttest in the frequency of parents’ engagement in and self-efficacy for targeted parenting practices with the TD child. This included increased frequency of one-to-one involvement and of listening, talking, and helping their TD child learn about the disability, and increased self-efficacy for these practices as well as for thinking through considerations for parenting their TD child and providing the child positive attention and affection. Parents’ ratings of usability and satisfaction with SIBTime were also high. In Phase II, we aim to complete development and test the full- scale dual-language SIBTime program in an RCT evaluation with a sufficiently powered sample size (N = 160 families). The complete program will include 12 modules that address common concerns among young siblings (3-6 years), provide age-appropriate information on high-incidence disabilities, and provide parents with tools for healthy family functioning. In response to parent feedback, the tool’s interactivity will be further developed, with activities that help children learn and practice language for talking about disability and sibling concerns. We will test the efficacy of SIBtime in improving parent-child relationships, parent and child adjustment, and parents’ engagement in and self-efficacy for the targeted parenting practices.

项目摘要/摘要 有残疾和健康障碍的人通常有发育不良(TD) 在他们的一生中分享高水平参与度的兄弟姐妹。越来越多的兄弟姐妹被 被父母、政府和残疾服务提供者认可为下一代照顾者 残疾人，然而他们所经历的风险和压力源以及他们对细心的父母和 支持经常被忽视。虽然少数有效的计划和新兴的机构 研究提供最佳实践，以解决少数民族兄弟姐妹在整个生命周期内的行为健康需求 农村兄弟姐妹在获得这些项目方面面临着巨大的障碍。我们的研究团队，开发人员， 兄弟姐妹支持项目顾问建议构建和评估一个双语辅助移动应用程序 面向有兄弟姐妹子女(3-6岁)的家庭的技术，为TD提供引人入胜的互动支持 兄弟姐妹的社会情绪健康和幸福。具有年龄和文化包容性的多媒体内容和 交互式行为技能培养功能将使家庭能够轻松访问和参与该计划，网址为 最能满足他们需求的时间和地点。在第一阶段，我们开发并试行测试了英语/西班牙语- SIBTime移动应用程序/Web程序的语言原型，有六个关于建立父母/孩子的模块 连接例程。每个10分钟的学习体验包括动画故事；叙事式反思 问题；针对父母/照顾者的简短指导音频练习；以及用于提示和强化的图表 连接例程。第一阶段试点研究结果显示，适度的5周干预与 在以下方面，父母养育和父母适应的中-大效应在统计上显著 他们的TD孩子。结果还显示，从前测到后测， 父母对有针对性的育儿实践的参与度和自我效能感。这包括 增加一对一参与以及倾听、交谈和帮助他们的TD孩子了解 残疾，提高这些做法的自我效能感，以及通过考虑 养育他们的TD孩子，给孩子积极的关注和关爱。家长对易用性的评价 对SIBTime的满意度也很高。在第二阶段，我们的目标是完成开发和测试完全- 在RCT评估中使用足够强大的样本量(N=160)扩展双语SIBTime计划 家庭)。完整的计划将包括12个模块，解决年轻人共同关心的问题 兄弟姐妹(3-6岁)，提供关于高发残疾的年龄适龄信息，并向父母提供 拥有健康的家庭运作工具。作为对家长反馈的响应，该工具的互动性为 进一步开展活动，帮助儿童学习和练习谈论残疾的语言 还有兄弟姐妹的顾虑。我们将测试SIBtime在改善亲子关系、父母和 儿童适应、父母对目标育儿实践的参与度和自我效能感。