SIBTime: Media-enhanced Technology for Promoting the Behavioral Health and Family Relationships of Typically Developing Young Siblings

项目总结/摘要 患有残疾和健康障碍的人通常患有典型的发展（TD） 兄弟姐妹在他们的一生中分享高水平的参与。越来越多的兄弟姐妹 被父母、政府和残疾人服务提供者公认为下一代照顾者， 残疾人，但他们所经历的风险和压力以及他们对细心养育的需求， 支持往往被忽视。虽然少数有效的方案和一个新兴的机构， 研究提供了最佳实践，以解决兄弟姐妹在整个生命周期中的行为健康需求，少数民族 农村的兄弟姐妹在获得这些方案方面面临着重大障碍。我们的研究人员，开发人员， 和兄弟姐妹支持项目顾问建议建立和评估一个双语辅助移动的应用程序 为有兄弟姐妹子女（3-6岁）的家庭提供技术，为TD提供引人入胜的互动支持 兄弟姐妹的社会情感健康和幸福。具有年龄和文化包容性的多媒体内容， 互动的行为技能建设功能将使家庭能够轻松地访问和参与该计划， 时间和地点最能满足他们的需求。在第一阶段，我们开发并试点测试了英语/西班牙语- SIBTime移动的应用程序/Web程序的语言原型，具有建立父/子关系的六个模块 连接例程。每个10分钟的学习体验包括动画故事;叙述式反思 问题;父母/看护者的简短指导音频练习;以及提示和强化的图表 连接例程。I期初步研究结果显示，适度的5周干预与 统计学上显着的中-大的影响，养育和父母的调整， TD的孩子结果还显示，从前测到后测， 父母对TD儿童有针对性的育儿实践的参与度和自我效能。这包括 增加一对一参与的频率，以及倾听、交谈和帮助TD儿童了解 残疾，并提高这些做法的自我效能，以及通过考虑 养育他们的TD孩子，并为孩子提供积极的关注和关爱。父母对可用性的评价 对SIBTime的满意度也很高。在第二阶段，我们的目标是完成开发和测试完整的- 在具有充分把握度的样本量（N = 160）的RCT评价中，使用双语言SIBTime程序 家庭）。完整的计划将包括12个模块，解决年轻人共同关心的问题。 兄弟姐妹（3-6岁），提供关于高发残疾的适龄信息，并向父母提供 健康家庭功能的工具。为了响应家长的反馈，该工具的交互性将 通过帮助儿童学习和练习谈论残疾的语言的活动， 和兄弟姐妹的担忧我们将测试SIBtime在改善亲子关系、父母和 儿童适应，父母的参与和自我效能感的有针对性的父母的做法。

Project Summary/Abstract Individuals who have disabilities and health impairments frequently have typically developing (TD) siblings who share high levels of involvement throughout their lifespan. Increasingly, siblings are being recognized by parents, government, and disability service providers as the next generation of caregivers for people with disabilities, yet the risks and stressors they experience and their needs for attentive parenting and support are frequently overlooked. While a small number of effective programs and an emerging body of research informs best practices to address the behavioral health needs of siblings across the lifespan, minority and rural siblings face significant barriers to accessing these programs. Our team of researchers, developers, and Sibling Support Project consultants propose to build and evaluate a bilingual assistive mobile app technology for families with sibling children (ages 3-6) that delivers engaging and interactive support for TD siblings’ social-emotional health and well-being. Age- and culturally inclusive multimedia content and interactive behavioral skill-building features will allow families to easily access and engage in the program at the time and place that best meets their needs. In Phase I, we developed and pilot tested an English/Spanish- language prototype of the SIBTime mobile app/web program, with six modules on establishing parent/child connection routines. Each 10-minute learning experience included animated stories; narrated reflection questions; brief guided audio exercise for parents/caregivers; and graphic charts to prompt and reinforce connection routines. Phase I pilot study results showed the modest 5-week intervention was associated with statistically significant medium-large effects on parenting nurturance and parental adjustment with regard to their TD child. Results also showed medium-large increases from pretest to posttest in the frequency of parents’ engagement in and self-efficacy for targeted parenting practices with the TD child. This included increased frequency of one-to-one involvement and of listening, talking, and helping their TD child learn about the disability, and increased self-efficacy for these practices as well as for thinking through considerations for parenting their TD child and providing the child positive attention and affection. Parents’ ratings of usability and satisfaction with SIBTime were also high. In Phase II, we aim to complete development and test the full- scale dual-language SIBTime program in an RCT evaluation with a sufficiently powered sample size (N = 160 families). The complete program will include 12 modules that address common concerns among young siblings (3-6 years), provide age-appropriate information on high-incidence disabilities, and provide parents with tools for healthy family functioning. In response to parent feedback, the tool’s interactivity will be further developed, with activities that help children learn and practice language for talking about disability and sibling concerns. We will test the efficacy of SIBtime in improving parent-child relationships, parent and child adjustment, and parents’ engagement in and self-efficacy for the targeted parenting practices.