SIBTime: Media-enhanced Technology for Promoting the Behavioral Health and Family Relationships of Typically Developing Young Siblings

SIBTime：媒体增强技术促进典型发育中的年轻兄弟姐妹的行为健康和家庭关系

• 批准号: 10699837
• 负责人: CAROL W METZLER
• 金额: $ 102.97万
• 依托单位: OREGON RES BEHAVIORAL INTERVENTION STRAT
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-09-16 至 2025-01-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10699837
• 关键词: Address; Age; Animals; Area; Attention; Behavioral; Brothers; Caregivers; Child; Child Rearing; Childhood; Communication; Control Groups; Data; Development; Disabled Persons; Early Intervention; Educational workshop; Emotional; Emotions; Enhancement Technology; Evaluation; Exercise; Face; Family; Family Relationship; Feedback; Feeling; Focus Groups; Frequencies; Friends; Future; Geography; Government; Guilt; Health; Impaired health; Incidence; Individual; Internet; Intervention; Knowledge; Language; Learning; Longevity; Measures; Mental Health; Minority; Multimedia; Narration; Nursery Schools; Outcome Assessment; Parent-Child Relations; Parents; Participant; Personal Satisfaction; Persons; Phase; Pilot Projects; Play; Questionnaires; Randomized; Randomized, Controlled Trials; Recommendation; Reporting; Research; Research Personnel; Risk; Role; Rural; Sample Size; School-Age Population; Self Efficacy; Siblings; Sister; System; Technology; Testing; Thinking; Time; Training; United States; Visual; Waiting Lists; affection; animation; behavioral health; bilingualism; caregiving; design; disability; efficacy testing; ethnic diversity; ethnic minority; experience; family support; hands-on learning; human old age (65+); improved; interactive tool; mobile application; next generation; peer; pilot test; post intervention; pressure; programs; prototype; recruit; response; rural families; satisfaction; scaffold; service providers; skills; social; socioeconomics; stressor; support tools; tool; usability; web app

Project Summary/Abstract Individuals who have disabilities and health impairments frequently have typically developing (TD) siblings who share high levels of involvement throughout their lifespan. Increasingly, siblings are being recognized by parents, government, and disability service providers as the next generation of caregivers for people with disabilities, yet the risks and stressors they experience and their needs for attentive parenting and support are frequently overlooked. While a small number of effective programs and an emerging body of research informs best practices to address the behavioral health needs of siblings across the lifespan, minority and rural siblings face significant barriers to accessing these programs. Our team of researchers, developers, and Sibling Support Project consultants propose to build and evaluate a bilingual assistive mobile app technology for families with sibling children (ages 3-6) that delivers engaging and interactive support for TD siblings’ social-emotional health and well-being. Age- and culturally inclusive multimedia content and interactive behavioral skill-building features will allow families to easily access and engage in the program at the time and place that best meets their needs. In Phase I, we developed and pilot tested an English/Spanish- language prototype of the SIBTime mobile app/web program, with six modules on establishing parent/child connection routines. Each 10-minute learning experience included animated stories; narrated reflection questions; brief guided audio exercise for parents/caregivers; and graphic charts to prompt and reinforce connection routines. Phase I pilot study results showed the modest 5-week intervention was associated with statistically significant medium-large effects on parenting nurturance and parental adjustment with regard to their TD child. Results also showed medium-large increases from pretest to posttest in the frequency of parents’ engagement in and self-efficacy for targeted parenting practices with the TD child. This included increased frequency of one-to-one involvement and of listening, talking, and helping their TD child learn about the disability, and increased self-efficacy for these practices as well as for thinking through considerations for parenting their TD child and providing the child positive attention and affection. Parents’ ratings of usability and satisfaction with SIBTime were also high. In Phase II, we aim to complete development and test the full- scale dual-language SIBTime program in an RCT evaluation with a sufficiently powered sample size (N = 160 families). The complete program will include 12 modules that address common concerns among young siblings (3-6 years), provide age-appropriate information on high-incidence disabilities, and provide parents with tools for healthy family functioning. In response to parent feedback, the tool’s interactivity will be further developed, with activities that help children learn and practice language for talking about disability and sibling concerns. We will test the efficacy of SIBtime in improving parent-child relationships, parent and child adjustment, and parents’ engagement in and self-efficacy for the targeted parenting practices.

项目概要/摘要 患有残疾和健康障碍的人经常患有典型发育障碍 (TD) 一生中高度参与的兄弟姐妹。越来越多的兄弟姐妹 被家长、政府和残疾服务提供者认可为下一代护理人员 残疾人士，但他们所经历的风险和压力以及他们对细心养育和照顾的需求 支持经常被忽视。虽然少数有效的计划和新兴机构 研究为解决兄弟姐妹整个生命周期的行为健康需求、少数群体的行为健康需求提供了最佳实践 农村兄弟姐妹在获得这些计划方面面临重大障碍。我们的研究人员、开发人员团队， 和兄弟姐妹支持项目顾问建议构建和评估双语辅助移动应用程序 为有兄弟姐妹（3-6 岁）的家庭提供技术，为 TD 提供引人入胜的互动支持 兄弟姐妹的社会情感健康和福祉。具有年龄和文化包容性的多媒体内容和 互动行为技能培养功能将使家庭能够轻松访问并参与该计划 最能满足他们需求的时间和地点。在第一阶段，我们开发并试点测试了英语/西班牙语- SIBTime 移动应用/网络程序的语言原型，包含建立父/子的六个模块 连接例程。每 10 分钟的学习体验包括动画故事；叙述性反思 问题;为父母/看护者提供简短的指导性音频练习；和图形图表来提示和强化 连接例程。 I 期试点研究结果表明，适度的 5 周干预与 对养育养育和父母调整的统计显着的中大影响 他们的TD孩子。结果还显示，从前测到后测，以下行为的频率出现中等程度的增加： 父母对 TD 儿童有针对性的养育实践的参与度和自我效能感。这包括 增加一对一参与以及倾听、交谈和帮助 TD 孩子学习的频率 残疾，并提高这些做法的自我效能以及通过考虑因素进行思考 养育 TD 孩子并为孩子提供积极的关注和关爱。家长对可用性的评分 对 SIBTime 的满意度也很高。在第二阶段，我们的目标是完成开发并测试全面的 在 RCT 评估中使用足够有力的样本量（N = 160 家庭）。完整的计划将包括 12 个模块，解决年轻人共同关心的问题 兄弟姐妹（3-6 岁），提供有关高发残疾的适龄信息，并为父母提供 拥有健康家庭运作的工具。为了响应家长的反馈，该工具的交互性将是 进一步开展活动，帮助儿童学习和练习谈论残疾的语言 以及兄弟姐妹的担忧。我们将测试SIBtime对于改善亲子关系、父母和孩子的功效 儿童的适应，以及父母对有针对性的养育实践的参与度和自我效能。