Assessing Risk Communication Educational Practices in Genetic Counseling Programs

评估遗传咨询项目中的风险沟通教育实践

基本信息

批准号：
7666275
负责人：
ISAAC M LIPKUS
金额：
$ 45.44万
依托单位：
DUKE UNIVERSITY
依托单位国家：
美国
项目类别：
财政年份：
2008
资助国家：
美国
起止时间：
2008-08-01 至 2011-05-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/7666275
关键词：
Address Adopted Alleles Anxiety Area Behavior Behavioral Genetics Chronic Disease Communication Communication Tools Complex Consensus Counseling Data Decision Making Development Diabetes Mellitus Disease Education Educational Curriculum Educational Materials Educational process of instructing Elements Environmental Risk Factor Evaluation Evidence Based Medicine Future Genes Genetic Genetic Counseling Genetic Markers Genetic Polymorphism Genetic Predisposition to Disease Genetic Risk Genetic screening method Genome Genomics Goals Health Professional Heart Diseases Influentials Inheritance Patterns Interview Knowledge Lead Medical Medical Genetics Medicine Methods Modeling Nature Online Systems Patients Perception Pharmacogenetics Phase Prevention Preventive Process Professional counselor Protocols documentation Psyche structure Public Health Publishing Research Risk Risk Assessment Role Screening procedure Standardization Students Surveys Telephone Telephone Interviews Testing Training United States depression disorder risk gene function genetic profiling graduate student health care delivery improved insight programs psychological distress public health relevance skill acquisition skills tool

项目摘要

DESCRIPTION (provided by applicant): Genetic susceptibility testing for common diseases will become widespread soon and form an integral component of evidence-based medicine and health care delivery. With advances in personalized risk assessments come the added challenges of effectively interpreting and communicating the risk implications of test findings to the public and health care professionals. Genetic counselors are at the forefront of addressing these and forthcoming risk communication challenges. Due to their role as educators to the public and increasingly to medical professionals, it is now imperative that genetic counselors be able to address the emerging risk communication challenges in the new genomics era. Initial acquisition of risk communication skills is obtained in the growing number of genetic counseling programs. Unfortunately, there are no published findings exploring how risk communication is envisioned, taught (e.g., best practices) and evaluated among students in accredited genetic counseling programs. Due to the lack of these data, this study aims to: 1) identify through telephone surveys how directors of 26 accredited genetic counseling programs in the United States envision, teach and assess risk communication, 2) assess through telephone surveys how graduating genetic counseling students understand processes of risk communication and identify knowledge gaps, and 3) create a web-based risk communication curriculum that can be integrated into genetic counseling programs. These aims will be accomplished with the aid of a panel consisting of experts in risk communication, genetic counselors and directors of genetic counseling programs; the panel will identify critical themes that should be taught in risk genetic counseling programs and how to teach them as well as help create the protocol/questions for the telephone surveys with genetic counseling directors and students. Findings and the creation of a risk communication curriculum will provide important advances to better train genetic counselors for the risk communication challenges in the new genomics era. PUBLIC HEALTH RELEVANCE: The main goal of this study is to create a risk communication education curriculum that can be used across genetic counseling programs. The curriculum will be developed through extensive discussions with experts in risk communication and interviews with directors of genetic counseling programs and their students.

描述（由申请人提供）：常见疾病的遗传敏感性测试将很快变得广泛，并成为循证医学和医疗保健提供的组成部分。随着个性化风险评估的进展，有效地解释和传达测试结果的风险影响的额外挑战。遗传咨询师处于解决这些和即将到来的风险交流挑战的最前沿。由于他们是公众的教育者的作用以及越来越多的医学专业人员，因此遗传顾问必须能够应对新基因组时代的新兴风险交流挑战。在越来越多的遗传咨询计划中获得了风险交流技能的初步获得。不幸的是，没有发表的发现探讨如何在认可的遗传咨询计划中对学生进行设想，教授（例如最佳实践）和评估的风险交流。由于缺乏这些数据，本研究的目的是：1）通过电话调查确定26名认可的遗传咨询计划的导演如何设想，教导和评估风险沟通，2）通过电话调查评估毕业的遗传咨询学生如何了解风险沟通的流程如何理解风险沟通的过程并确定知识的知识差距，以及3）基于网络的风险交流，创建一个基于遗传学的咨询计划，以将遗传咨询整合到遗传学咨询中。这些目标将借助由由风险交流，遗传顾问和遗传咨询计划的董事组成的专家组成的小组来实现。小组将确定应在风险遗传咨询计划以及如何教授它们中教授的关键主题，并帮助与遗传咨询主管和学生为电话调查创建协议/问题。调查结果和风险交流课程的创建将为更好的培训遗传顾问提供重要的进步，以应对新基因组时代的风险交流挑战。公共卫生相关性：这项研究的主要目标是创建可以在遗传咨询计划中使用的风险交流教育课程。该课程将通过与风险沟通专家的广泛讨论以及与遗传咨询计划及其学生的董事进行的访谈进行广泛讨论。