Community Liaison and Recruitment Core (CLRC)

社区联络和招聘核心 (CLRC)

• 批准号: 10729793
• 负责人: JIN HUI JOO
• 金额: $ 12.24万
• 依托单位: MASSACHUSETTS GENERAL HOSPITAL
• 依托单位国家: 美国
• 财政年份: 2023
• 资助国家: 美国
• 起止时间: 2023-09-01 至 2028-06-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10729793
• 关键词: Address; Adult; Aging; Alzheimer' s Disease; Alzheimer' s disease related dementia; Area; Behavior Therapy; Behavioral Research; Black Populations; Black race; Boston; Caregivers; Caring; Collaborations; Common Data Element; Communities; Consensus; Data; Data Element; Dementia; Development; Educational Curriculum; Enrollment; Evaluable Disease; Evaluation; Event; Federally Qualified Health Center; Fostering; Funding; Future; Health; Health Personnel; Hospitals; Individual; Intervention Studies; Latino; Latino Population; Learning; Massachusetts; Measures; Mentors; Methods; Minority; Minority Groups; Minority Health Research; Modeling; Neighborhoods; New England; Newsletter; Ontology; Participant; Patients; PhenX Toolkit; Pilot Projects; Population; Prevention; Procedures; Protocols documentation; Publishing; Randomized; Reporting; Research; Research Personnel; Resources; Risk; Science; Scientist; Sequential Multiple Assignment Randomized Trial; Series; Site; Statistical Methods; Telephone; Testing; Training; Translating; Trust; United States National Institutes of Health; Universities; Work; behavioral health; community engagement; comparative effectiveness; dementia risk; digital; education research; health disparity; health empowerment; high risk; implementation evaluation; literacy; member; participant enrollment; personalized approach; primary outcome; recruit; recruitment science; retention rate; screening; social health determinants; trial design

Although minority populations – particularly Black and Latino adults – have the highest rates and are at highest risk for Alzheimer’s disease and related dementias (ADRD), to date inclusion of these populations (patients, care partners and dyads) in ADRD research remains low and inconsistent. Testable, scalable methods are urgently needed, founded on a science of ADRD diversity to drive quantifiable, precision approaches in recruitment, engagement, and retention (RER). Community engagement and study enrollment barriers, already multi-factorial, are compounded for Black and Latino populations, limiting researchers’ ability to address health disparities in ADRD. Without critical developments in RER science, investigators risk exacerbating – or worse, misunderstanding – existing health disparities in ADRD and ADRD research by failing to include Black and Latino communities in cutting-edge ADRD behavioral health research. The Community Liaison & Recruitment Core (CLRC) activities are directly aligned with the Mass-ENVISION theme to provide resources, training, and sustained and tailored mentoring to UiM scientists in ADRD-related behavioral interventions following the NIH Stage Model, the NIA Health Disparities Framework, and the CDC and NAM prevention frameworks, in both community and hospital settings. The CLRC will advance the science of diversity in ADRD behavioral interventions research via 4 Specific Aims: 1) Operationalize a precision science of diverse recruitment, engagement, and retention into ADRD research; 2) Convene a stakeholder group of Black and Latino individuals to determine optimal recruitment and engagement strategies for these populations in ADRD behavioral interventions research; 3) Provide RCMAR Scientists with practical examples of RER strategies in a separately funded digitized trial to be launched at Whittier Street Health Center, a local Federally Qualified Health Center; 4) Train and provide sustained and tailored mentoring of RCMAR Scientists in a community-engaged science of recruitment, engagement, and retention. The CLRC is led by Dr. Jonathan Jackson, an expert in ADRD and methods for recruitment, engagement and retention of minority populations in research. The CLRC will foster crosspollination of resources with the Massachusetts Alzheimer’s Research Center (MADRC) and Boston University Alzheimer’s Research Center (BU-ADRC) and will establish and grow community collaborations across the Massachusetts and larger New England areas.

尽管少数族裔人群--特别是黑人和拉丁裔成年人--的发病率最高，罹患癌症的风险也最高 阿尔茨海默病和相关痴呆症(ADRD)，迄今纳入了这些人群(患者、护理伙伴和 在ADRD研究中)仍然很低且不一致。迫切需要可测试、可扩展的方法，其基础是 对ADRD多样性进行科学研究，以推动在招聘、参与和保留(RER)方面采取可量化、精确的方法。 社区参与和学习入学障碍已经是多因素的，对黑人和拉丁裔来说是复杂的 这限制了研究人员解决ADRD健康差距的能力。如果没有RER的关键发展 科学上，研究人员冒着加剧-或更糟糕的误解-ADRD和ADRD现有的健康差距的风险 研究未能将黑人和拉丁裔社区纳入尖端ADRD行为健康研究。这个 社区联络和招募核心(CLRC)活动直接与群众设想主题保持一致，以提供 在ADRD相关行为干预方面为UIM科学家提供资源、培训以及持续和量身定制的指导 在NIH阶段模式、NIA健康差距框架以及疾控中心和不结盟运动预防框架之后， 在社区和医院环境中都是如此。CLRC将推动ADRD行为干预的多样性科学 通过4个具体目标进行研究：1)将不同的招聘、参与和保留的精确科学付诸实施 ADRD研究；2)召集一个由黑人和拉丁裔个人组成的利益攸关方小组，以确定最佳招聘和 这些人群在ADRD行为干预研究中的参与策略；3)提供RCMAR科学家 将在惠蒂尔街健康中心启动的单独资助的数字化试验中的RER策略的实际例子 中心，当地联邦合格的健康中心；4)培训并提供RCMAR的持续和量身定制的指导 科学家在社区参与的招募、参与和保留科学中。CLRC由乔纳森博士领导 在研究中招募、参与和留住少数群体的方法方面的专家杰克逊说。 CLRC将促进与马萨诸塞州阿尔茨海默氏症研究中心(MADRC)和 波士顿大学阿尔茨海默氏症研究中心(BU-ADRC)，并将建立和发展社区合作 马萨诸塞州和更大的新英格兰地区。