Community Liaison and Recruitment Core (CLRC)

虽然少数民族人口-特别是黑人和拉丁美洲成年人-有最高的发病率和最高的风险， 阿尔茨海默病和相关痴呆（ADRD），迄今为止包括这些人群（患者、护理伙伴和 在ADRD研究中，二分体）仍然很低且不一致。可测试的、可伸缩的方法是迫切需要的， ADRD多样性科学，以推动招聘，参与和保留（RER）的可量化，精确方法。 社区参与和研究入学障碍，已经是多因素的，对黑人和拉丁美洲人来说是复杂的 这限制了研究人员解决ADRD中健康差异的能力。在RER没有重大发展的情况下 科学，研究人员的风险加剧-或更糟的是，误解-现有的ADRD和ADRD的健康差距 研究未能包括黑人和拉丁裔社区在尖端ADRD行为健康研究。的 社区联络和招聘核心（CLRC）活动直接与大规模扩展主题保持一致，以提供 资源，培训，以及持续和量身定制的指导UiM科学家在ADRD相关的行为干预 遵循NIH阶段模型、NIA健康差异框架以及CDC和NAM预防框架， 在社区和医院环境中。CLRC将推进ADRD行为干预的多样性科学 通过4个具体目标的研究：1）操作不同的招聘，参与和保留的精确科学， ADRD研究; 2）召集一个由黑人和拉丁美洲人组成的利益相关者小组，以确定最佳招聘， ADRD行为干预研究中这些人群的参与策略; 3）提供RCMAR科学家 在惠蒂尔街健康中心启动的一项单独资助的数字化试验中， 中心，一个当地的联邦合格的健康中心; 4）培训和提供RCMAR的持续和量身定制的指导 科学家在招募，参与和保留的社区参与科学。CLRC由乔纳森博士领导 杰克逊，在ADRD和方法的招聘，参与和保留少数民族人口的研究专家。 CLRC将促进与马萨诸塞州阿尔茨海默氏症研究中心（MADRC）的资源交叉共享， 波士顿大学阿尔茨海默氏症研究中心（BU-ADRC），并将建立和发展社区合作， 马萨诸塞州和更大的新英格兰地区。

Although minority populations – particularly Black and Latino adults – have the highest rates and are at highest risk for Alzheimer’s disease and related dementias (ADRD), to date inclusion of these populations (patients, care partners and dyads) in ADRD research remains low and inconsistent. Testable, scalable methods are urgently needed, founded on a science of ADRD diversity to drive quantifiable, precision approaches in recruitment, engagement, and retention (RER). Community engagement and study enrollment barriers, already multi-factorial, are compounded for Black and Latino populations, limiting researchers’ ability to address health disparities in ADRD. Without critical developments in RER science, investigators risk exacerbating – or worse, misunderstanding – existing health disparities in ADRD and ADRD research by failing to include Black and Latino communities in cutting-edge ADRD behavioral health research. The Community Liaison & Recruitment Core (CLRC) activities are directly aligned with the Mass-ENVISION theme to provide resources, training, and sustained and tailored mentoring to UiM scientists in ADRD-related behavioral interventions following the NIH Stage Model, the NIA Health Disparities Framework, and the CDC and NAM prevention frameworks, in both community and hospital settings. The CLRC will advance the science of diversity in ADRD behavioral interventions research via 4 Specific Aims: 1) Operationalize a precision science of diverse recruitment, engagement, and retention into ADRD research; 2) Convene a stakeholder group of Black and Latino individuals to determine optimal recruitment and engagement strategies for these populations in ADRD behavioral interventions research; 3) Provide RCMAR Scientists with practical examples of RER strategies in a separately funded digitized trial to be launched at Whittier Street Health Center, a local Federally Qualified Health Center; 4) Train and provide sustained and tailored mentoring of RCMAR Scientists in a community-engaged science of recruitment, engagement, and retention. The CLRC is led by Dr. Jonathan Jackson, an expert in ADRD and methods for recruitment, engagement and retention of minority populations in research. The CLRC will foster crosspollination of resources with the Massachusetts Alzheimer’s Research Center (MADRC) and Boston University Alzheimer’s Research Center (BU-ADRC) and will establish and grow community collaborations across the Massachusetts and larger New England areas.