Administrative Core

行政核心

• 批准号: 10239999
• 负责人: Michael Byrne Robinson
• 金额: $ 18.91万
• 依托单位: CHILDREN'S HOSP OF PHILADELPHIA
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-07-15 至 2026-05-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10239999
• 关键词: Adult; Advisory Committees; Advocacy; Advocate; Affective; Applied Research; Area; Award; Basic Science; Behavioral; Biometry; Budgets; Cardiology; Chalk; Child; Clinical; Cognitive; Collaborations; Communication; Communities; Computing Methodologies; Data; Data Science Core; Development; Disease; Education; Educational workshop; Electroencephalography; Electronic Health Record; Ensure; Environment; Etiology; Faculty; Family; Fostering; Functional disorder; Funding; Genetic; Genetic Risk; Genomics; Goals; Government; Grant; Growth; Human; Individual; Infant; Innovative Therapy; Intellectual and Developmental Disabilities Research Centers; Intellectual functioning disability; Interdisciplinary Study; Intervention; Journals; Language; Lead; Leadership; Magnetic Resonance Imaging; Magnetoencephalography; Measures; Mentors; Mission; Modernization; Monitor; Motor; National Institute of Child Health and Human Development; National Institute of Neurological Disorders and Stroke; Neurodevelopmental Disability; Neurosciences; Oncology; Parents; Pathogenesis; Patients; Pediatric Hospitals; Pennsylvania; Perinatology; Phenotype; Philadelphia; Physicians; Positioning Attribute; Pre-Clinical Model; Program Development; Publications; Reporter; Reproducibility of Results; Research; Research Institute; Research Project Grants; Research Support; Research Training; Resources; Risk; Scientist; Series; Surveys; System; Technology; Training; Training Activity; Training Programs; Translational Research; Universities; Utilization Review; Vision; Work; auditory processing; base; career development; cognitive ability; community organizations; cost effectiveness; data integration; educational atmosphere; gene therapy; genetic variant; genomic data; induced pluripotent stem cell; innovation; meetings; member; mouse model; multidisciplinary; neural circuit; neuroimaging; next generation; novel therapeutics; patient advocacy group; post-doctoral training; processing speed; professor; programs; recruit; satisfaction; skills; social; success; support network; systematic review; web site

(CORE A: ADMINISTRATIVE CORE) PROJECT SUMMARY This Administrative Core will provide oversight and management of the Intellectual and Developmental Disabilities Research Center at the Children’s Hospital of Philadelphia (CHOP) and the University of Pennsylvania (Penn). The center has three specific aims. First, we will lead an innovative, translational research agenda by supporting cores that continually evolve to provide cutting-edge technologies and meet the needs of center members. The center also supports a new research project that uses most of these cores to determine if magnetoencephalography (MEG) can be used to predict general cognitive ability and language-specific ability in children with a genetic risk for intellectual disability. Second, we will lead a career development initiative that supports multidisciplinary training. Third, we will promote interactions and collaboration, advocate for IDD research and its growth at CHOP/Penn and beyond, and we will ensure that advances in IDD research are rapidly disseminated to a wide variety of scientific and lay audiences with a focus on families of children with IDDs. The Administrative Core oversees management, strategy and vision for the IDDRC. It will: (1) Provide oversight of the cores including review and approval of new users, review of utilization, and survey user satisfaction; (2) Provide oversight of the research project, including regular progress meetings; (3) Provide oversight of core budget and monitoring their of cost-effectiveness; (4) Manage all training related activities, including organizing seminar series; (5) Maintain websites for the IDDRC and our training programs; (6) Coordinate meetings with internal, external, and patient advisory groups; (7) Manage all communication with NICHD; (8) Foster collaborations with other IDDRCs across the network; (9) Lead institutional, regional, and national advocacy; (10) Disseminate research findings to academic and community/family organizations and stakeholders; and (11) Organize activities that encourage networking and collaboration between cores, among center members, and with other centers and resources at CHOP/Penn. The center has three guiding principles. First, we seek to foster community, to encourage collaborative, inter- disciplinary research and to attract the next generation of scientists to the field. Second, solicit advice from our advisory committees to help the center continually evolve so that we meet the needs of our users and our community of constituents. Finally, we emphasize support of innovative, translational research that will define the etiology/pathophysiology of IDDs and lead to new interventions for children and adults with neurodevelopmental disabilities. Collectively, our activities are sharply focused on supporting research that has the potential to greatly impact the lives of those with an IDD.

(核心A：行政核心) 项目总结 这一行政核心将监督和管理智力和发育障碍者 费城儿童医院(CHOP)和宾夕法尼亚大学(宾夕法尼亚大学)研究中心。 该中心有三个具体目标。首先，我们将通过支持以下内容来引领创新的翻译研究议程 不断发展以提供尖端技术并满足中心成员需求的核心。这个 中心还支持一个新的研究项目，该项目使用这些核心中的大多数来确定 脑磁图(MEG)可用于预测儿童的一般认知能力和语言特异性能力 有智力残疾遗传风险的儿童。第二，我们将领导一项职业发展倡议， 支持多学科培训。第三，促进互动协作，倡导IDD 研究及其在CHOP/Penn和其他地方的增长，我们将确保IDD研究的进展迅速 向各种科学和非科学受众传播，重点是患有IDDS儿童的家庭。 行政核心负责监督国际发展研究中心的管理、战略和愿景。它将：(1)提供监督 核心内容包括审查和批准新用户、审查使用情况和调查用户满意度；(2) 监督研究项目，包括定期举行进度会议；(3)监督核心工作 预算和监控成本效益；(4)管理所有与培训有关的活动，包括组织 研讨会系列；(5)维护IDDRC和我们的培训计划的网站；(6)协调与 内部、外部和患者咨询小组；(7)管理与NICHD的所有沟通；(8)福斯特 (9)领导机构、区域和国家宣传；(10) 向学术、社区/家庭组织和利益相关者传播研究成果；以及(11) 组织活动，鼓励核心之间、中心成员之间以及 与宾夕法尼亚州立大学的其他中心和资源合作。 该中心有三项指导原则。首先，我们寻求促进社区，鼓励合作，相互 科学研究和吸引下一代科学家进入该领域。第二，征求我们的意见 咨询委员会，帮助中心不断发展，以满足我们用户和我们的 选民社区。最后，我们强调支持创新的、翻译的研究，这将定义 IDDS的病因学/病理生理学，并为儿童和成人提供新的干预措施 神经发育障碍。总体而言，我们的活动集中在支持以下研究 有可能极大地影响IDD患者的生活。