Administrative Core

行政核心

• 批准号: 10239999
• 负责人: Michael Byrne Robinson
• 金额: $ 18.91万
• 依托单位: CHILDREN'S HOSP OF PHILADELPHIA
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-07-15 至 2026-05-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10239999
• 关键词: Adult; Advisory Committees; Advocacy; Advocate; Affective; Applied Research; Area; Award; Basic Science; Behavioral; Biometry; Budgets; Cardiology; Chalk; Child; Clinical; Cognitive; Collaborations; Communication; Communities; Computing Methodologies; Data; Data Science Core; Development; Disease; Education; Educational workshop; Electroencephalography; Electronic Health Record; Ensure; Environment; Etiology; Faculty; Family; Fostering; Functional disorder; Funding; Genetic; Genetic Risk; Genomics; Goals; Government; Grant; Growth; Human; Individual; Infant; Innovative Therapy; Intellectual and Developmental Disabilities Research Centers; Intellectual functioning disability; Interdisciplinary Study; Intervention; Journals; Language; Lead; Leadership; Magnetic Resonance Imaging; Magnetoencephalography; Measures; Mentors; Mission; Modernization; Monitor; Motor; National Institute of Child Health and Human Development; National Institute of Neurological Disorders and Stroke; Neurodevelopmental Disability; Neurosciences; Oncology; Parents; Pathogenesis; Patients; Pediatric Hospitals; Pennsylvania; Perinatology; Phenotype; Philadelphia; Physicians; Positioning Attribute; Pre-Clinical Model; Program Development; Publications; Reporter; Reproducibility of Results; Research; Research Institute; Research Project Grants; Research Support; Research Training; Resources; Risk; Scientist; Series; Surveys; System; Technology; Training; Training Activity; Training Programs; Translational Research; Universities; Utilization Review; Vision; Work; auditory processing; base; career development; cognitive ability; community organizations; cost effectiveness; data integration; educational atmosphere; gene therapy; genetic variant; genomic data; induced pluripotent stem cell; innovation; meetings; member; mouse model; multidisciplinary; neural circuit; neuroimaging; next generation; novel therapeutics; patient advocacy group; post-doctoral training; processing speed; professor; programs; recruit; satisfaction; skills; social; success; support network; systematic review; web site

(CORE A: ADMINISTRATIVE CORE) PROJECT SUMMARY This Administrative Core will provide oversight and management of the Intellectual and Developmental Disabilities Research Center at the Children’s Hospital of Philadelphia (CHOP) and the University of Pennsylvania (Penn). The center has three specific aims. First, we will lead an innovative, translational research agenda by supporting cores that continually evolve to provide cutting-edge technologies and meet the needs of center members. The center also supports a new research project that uses most of these cores to determine if magnetoencephalography (MEG) can be used to predict general cognitive ability and language-specific ability in children with a genetic risk for intellectual disability. Second, we will lead a career development initiative that supports multidisciplinary training. Third, we will promote interactions and collaboration, advocate for IDD research and its growth at CHOP/Penn and beyond, and we will ensure that advances in IDD research are rapidly disseminated to a wide variety of scientific and lay audiences with a focus on families of children with IDDs. The Administrative Core oversees management, strategy and vision for the IDDRC. It will: (1) Provide oversight of the cores including review and approval of new users, review of utilization, and survey user satisfaction; (2) Provide oversight of the research project, including regular progress meetings; (3) Provide oversight of core budget and monitoring their of cost-effectiveness; (4) Manage all training related activities, including organizing seminar series; (5) Maintain websites for the IDDRC and our training programs; (6) Coordinate meetings with internal, external, and patient advisory groups; (7) Manage all communication with NICHD; (8) Foster collaborations with other IDDRCs across the network; (9) Lead institutional, regional, and national advocacy; (10) Disseminate research findings to academic and community/family organizations and stakeholders; and (11) Organize activities that encourage networking and collaboration between cores, among center members, and with other centers and resources at CHOP/Penn. The center has three guiding principles. First, we seek to foster community, to encourage collaborative, inter- disciplinary research and to attract the next generation of scientists to the field. Second, solicit advice from our advisory committees to help the center continually evolve so that we meet the needs of our users and our community of constituents. Finally, we emphasize support of innovative, translational research that will define the etiology/pathophysiology of IDDs and lead to new interventions for children and adults with neurodevelopmental disabilities. Collectively, our activities are sharply focused on supporting research that has the potential to greatly impact the lives of those with an IDD.

(CORE A：行政核心） 项目摘要 该行政核心将对智力和发育障碍提供监督和管理 费城儿童医院（CHOP）和宾夕法尼亚大学（Penn）的研究中心。 该中心有三个具体目标。首先，我们将通过支持创新，转化研究议程， 核心不断发展，以提供尖端技术并满足中心成员的需求。的 该中心还支持一项新的研究项目，该项目使用大部分这些核心来确定， 脑磁图（MEG）可用于预测一般认知能力和语言特异性能力， 有智力残疾遗传风险的儿童。第二，我们将领导一项职业发展倡议， 支持多学科培训。第三，我们将促进互动和合作，倡导IDD 我们将确保在CHOP/Penn和其他地方的研究及其增长，我们将确保IDD研究的进展迅速 向科学界和普通大众广泛传播，重点是有缺碘症儿童的家庭。 行政核心监督IDDRC的管理、战略和愿景。它将：（1）提供监督 包括审查和批准新用户、审查利用率和调查用户满意度;（2） 对研究项目进行监督，包括定期的进度会议;（3）对核心项目进行监督。 预算和监控其成本效益;（4）管理所有培训相关活动，包括组织 研讨会系列;（5）维护IDDRC和我们的培训计划的网站;（6）协调与 内部、外部和患者咨询小组;（7）管理与NICHD的所有沟通;（8）促进 （10）在国家一级开展宣传活动;（11）在国家一级开展宣传活动;（12）在国家一级开展宣传活动;（13） 向学术界、社区/家庭组织和持份者传播研究结果;以及（11） 组织活动，鼓励核心之间、中心成员之间的联网和协作， 与CHOP/Penn的其他中心和资源合作。 该中心有三个指导原则。首先，我们寻求促进社区，鼓励合作，相互... 学科研究，并吸引下一代科学家到该领域。第二，向我们的 咨询委员会，以帮助该中心不断发展，使我们满足我们的用户和我们的 选民社区。最后，我们强调支持创新，转化研究，将定义 IDDs的病因学/病理生理学，并导致对患有IDDs的儿童和成人采取新的干预措施。 神经发育障碍总的来说，我们的活动集中在支持研究上， 对缺碘症患者的生活产生巨大影响的潜力。