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Administrative Core

行政核心

基本信息

批准号：
10239999
负责人：
Michael Byrne Robinson
金额：
$ 18.91万
依托单位：
CHILDREN'S HOSP OF PHILADELPHIA
依托单位国家：
美国
项目类别：
财政年份：
2021
资助国家：
美国
起止时间：
2021-07-15 至 2026-05-31
项目状态：
未结题

来源：
https://reporter.nih.gov/project-details/10239999
关键词：
Adult Advisory Committees Advocacy Advocate Affective Applied Research Area Award Basic Science Behavioral Biometry Budgets Cardiology Chalk Child Clinical Cognitive Collaborations Communication Communities Computing Methodologies Data Data Science Core Development Disease Education Educational workshop Electroencephalography Electronic Health Record Ensure Environment Etiology Faculty Family Fostering Functional disorder Funding Genetic Genetic Risk Genomics Goals Government Grant Growth Human Individual Infant Innovative Therapy Intellectual and Developmental Disabilities Research Centers Intellectual functioning disability Interdisciplinary Study Intervention Journals Language Lead Leadership Magnetic Resonance Imaging Magnetoencephalography Measures Mentors Mission Modernization Monitor Motor National Institute of Child Health and Human Development National Institute of Neurological Disorders and Stroke Neurodevelopmental Disability Neurosciences Oncology Parents Pathogenesis Patients Pediatric Hospitals Pennsylvania Perinatology Phenotype Philadelphia Physicians Positioning Attribute Pre-Clinical Model Program Development Publications Reporter Reproducibility of Results Research Research Institute Research Project Grants Research Support Research Training Resources Risk Scientist Series Surveys System Technology Training Training Activity Training Programs Translational Research Universities Utilization Review Vision Work auditory processing base career development cognitive ability community organizations cost effectiveness data integration educational atmosphere gene therapy genetic variant genomic data induced pluripotent stem cell innovation meetings member mouse model multidisciplinary neural circuit neuroimaging next generation novel therapeutics patient advocacy group post-doctoral training processing speed professor programs recruit satisfaction skills social success support network systematic review web site

项目摘要

(CORE A: ADMINISTRATIVE CORE) PROJECT SUMMARY This Administrative Core will provide oversight and management of the Intellectual and Developmental Disabilities Research Center at the Children’s Hospital of Philadelphia (CHOP) and the University of Pennsylvania (Penn). The center has three specific aims. First, we will lead an innovative, translational research agenda by supporting cores that continually evolve to provide cutting-edge technologies and meet the needs of center members. The center also supports a new research project that uses most of these cores to determine if magnetoencephalography (MEG) can be used to predict general cognitive ability and language-specific ability in children with a genetic risk for intellectual disability. Second, we will lead a career development initiative that supports multidisciplinary training. Third, we will promote interactions and collaboration, advocate for IDD research and its growth at CHOP/Penn and beyond, and we will ensure that advances in IDD research are rapidly disseminated to a wide variety of scientific and lay audiences with a focus on families of children with IDDs. The Administrative Core oversees management, strategy and vision for the IDDRC. It will: (1) Provide oversight of the cores including review and approval of new users, review of utilization, and survey user satisfaction; (2) Provide oversight of the research project, including regular progress meetings; (3) Provide oversight of core budget and monitoring their of cost-effectiveness; (4) Manage all training related activities, including organizing seminar series; (5) Maintain websites for the IDDRC and our training programs; (6) Coordinate meetings with internal, external, and patient advisory groups; (7) Manage all communication with NICHD; (8) Foster collaborations with other IDDRCs across the network; (9) Lead institutional, regional, and national advocacy; (10) Disseminate research findings to academic and community/family organizations and stakeholders; and (11) Organize activities that encourage networking and collaboration between cores, among center members, and with other centers and resources at CHOP/Penn. The center has three guiding principles. First, we seek to foster community, to encourage collaborative, inter- disciplinary research and to attract the next generation of scientists to the field. Second, solicit advice from our advisory committees to help the center continually evolve so that we meet the needs of our users and our community of constituents. Finally, we emphasize support of innovative, translational research that will define the etiology/pathophysiology of IDDs and lead to new interventions for children and adults with neurodevelopmental disabilities. Collectively, our activities are sharply focused on supporting research that has the potential to greatly impact the lives of those with an IDD.

（核心a：行政核心）