Brain Attack Surveillance in Corpus Christi (BASIC) Project

科珀斯克里斯蒂脑部攻击监测 (BASIC) 项目

• 批准号: 10574488
• 负责人: LYNDA D LISABETH
• 金额: $ 151.13万
• 依托单位: UNIVERSITY OF MICHIGAN AT ANN ARBOR
• 依托单位国家: 美国
• 财政年份: 1999
• 资助国家: 美国
• 起止时间: 1999-09-01 至 2024-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10574488
• 关键词: Accident and Emergency department; Age; Aging; Area; Atrial Fibrillation; Big Data; Caregivers; Caring; Clinical Data; Cognitive; Communities; Country; Data; Data Collection; Data Files; Data Set; Data Sources; Disparity; Economics; Effectiveness of Interventions; Emergency department visit; Ethnic Origin; Ethnic Population; Family; Health; Health Planning; Healthcare; Healthcare Systems; Hispanic Americans; Incidence; Information Systems; Inpatients; Intervention; Link; Longitudinal trends; Measurement; Medicare; Mental Health Services; Mexican Americans; Minority Groups; Monitor; Mortality Decline; Neurologic; Not Hispanic or Latino; Outcome; Patient Outcomes Assessments; Patients; Pattern; Patterns of Care; Personal Satisfaction; Politics; Population; Primary Prevention; Public Health; Publications; Quality of life; Recommendation; Recovery; Recurrence; Rehabilitation therapy; Reporting; Research; Resources; Secondary Prevention; Stroke; Stroke prevention; Subgroup; Texas; Time; United States; United States National Institutes of Health; Work; cohort; data resource; design; ethnic difference; ethnic disparity; experience; health care service utilization; human old age (65+); improved; improved outcome; innovation; insight; long-term sequelae; middle age; mortality; older patient; population based; post stroke; readmission rates; stroke event; stroke incidence; stroke outcome; stroke patient; therapy design; tool; trend

Abstract While stroke incidence and mortality are declining in the United States (US), Mexican Americans still have a much higher stroke burden with higher incidence and recurrence, worse neurologic, functional and cognitive outcome, and newly projected higher mortality following stroke. Mexican Americans are the most numerous sub-group of Hispanic Americans, the largest minority population in the US. This important group is aging, growing rapidly, and spreading throughout the country. This renewal application of the Brain Attack Surveillance in Corpus Christi (BASIC) project will facilitate a quarter century population-based examination of stroke trends in Mexican Americans and non-Hispanic whites, including, for the first time, consideration of trends in neurologic, functional, cognitive and quality of life outcomes. This data is crucial for public health planning and monitoring the effectiveness of interventions. The overwhelming majority of stroke patients have long-term sequelae from their stroke that impact their well-being. For the first time, BASIC will investigate outcomes that are important to patients and their caregivers using the Patient-Reported Outcomes Measurement Information System (PROMIS), a well validated tool developed under the auspices of the National Institutes of Health and recommended by a stroke expert panel. This new data collection will yield critical data as the first step in developing interventions to improve stroke outcome and reduce stroke’s impact in Mexican Americans and non-Hispanic whites. Additionally, we will link more than a decade’s worth of data from BASIC with multiple large administrative datasets, including the Texas State Inpatient Research Data File and Emergency Department Dataset and Medicare data, to study ethnic-specific missed opportunities for primary and secondary prevention, such as emergency department visits where atrial fibrillation is noted but not acted upon prior to stroke. We will also examine post-stroke resource utilization to identify areas to improve stroke outcomes and reduce ethnic disparities. In sum, BASIC will continue to provide the only ongoing, uninterrupted stroke surveillance in Mexican Americans; we will focus on ethnic differences and similarities in patient reported outcomes aimed towards designing interventions to improve outcomes; and we will create a stroke “big data” resource combining the strengths of BASIC’s validated stroke events with detailed clinical data and healthcare utilization information from administrative data to prevent stroke and improve outcome. BASIC has amassed a cohort of over 11,000 stroke patients since January 1, 2000, and we add an additional 450 each year. In addition to the rich publication record and numerous spin-off projects, BASIC has just begun to fully take advantage of this precious stroke patient resource.

摘要

项目成果

Neurological, functional, and cognitive stroke outcomes in Mexican Americans.

• DOI: 10.1161/strokeaha.113.003912
• 发表时间: 2014-04
• 期刊: Stroke
• 影响因子: 8.3
• 作者: Lisabeth LD;Sánchez BN;Baek J;Skolarus LE;Smith MA;Garcia N;Brown DL;Morgenstern LB
• 通讯作者: Morgenstern LB

Surrogate Decision-Making After Stroke in a Community Setting: The OASIS Project.

社区环境中中风后的替代决策：OASIS 项目。

• DOI: 10.1161/strokeaha.123.043947
• 发表时间: 2024
• 期刊: Stroke
• 影响因子: 8.3
• 作者: Zahuranec,DarinB;Ortiz,Carmen;Lank,RebeccaJ;Zhang,Guanghao;Shi,Xu;Case,Erin;Morgenstern,LewisB
• 通讯作者: Morgenstern,LewisB

Stroke Disparities: Large Global Problem That Must Be Addressed.

• DOI: 10.1161/strokeaha.115.009533
• 发表时间: 2015-12
• 期刊: Stroke
• 影响因子: 8.3
• 作者: Morgenstern LB;Kissela BM
• 通讯作者: Kissela BM

Fatalism, optimism, spirituality, depressive symptoms, and stroke outcome: a population-based analysis.

宿命论、乐观主义、灵性、抑郁症状和中风结果：基于人群的分析。

• DOI: 10.1161/strokeaha.111.625491
• 发表时间: 2011
• 期刊: Stroke
• 影响因子: 8.3
• 作者: Morgenstern,LewisB;Sánchez,BrisaN;Skolarus,LesliE;Garcia,Nelda;Risser,JanMH;Wing,JeffreyJ;Smith,MelindaA;Zahuranec,DarinB;Lisabeth,LyndaD
• 通讯作者: Lisabeth,LyndaD

Capturing cases of distal symmetric polyneuropathy in a community.

捕获社区中远端对称性多发性神经病的病例。

• DOI: 10.1002/mus.23449
• 发表时间: 2012
• 期刊: Muscle & nerve
• 影响因子: 3.4
• 作者: Callaghan,Brian;Kerber,Kevin;Longoria,Ruth;Feldman,Eva;Lisabeth,Lynda
• 通讯作者: Lisabeth,Lynda