Modernized Culturally Sensitive Family Medical History Tool

现代化的文化敏感家族病史工具

基本信息

批准号：
10601751
负责人：
Julie Lundstrom
金额：
$ 29.96万
依托单位：
RUSH RIVER RESEARCH CORPORATION
依托单位国家：
美国
项目类别：
财政年份：
2022
资助国家：
美国
起止时间：
2022-09-25 至 2024-08-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/10601751
关键词：
Acute Disease Address Advisory Committees Affect African American African American population Awareness Behavioral Biological Caring Cellular Phone Chairperson Chronic Disease Communication Communities Community Health Computer software Confusion Custom Data Storage and Retrieval Death Rate Diabetes Mellitus Disease Doctor of Medicine Early Diagnosis Educational Materials Environment Exercise Family Family Practice Family health status Family history of Family member Feedback First Degree Relative Focus Groups Future Genetic Counseling Genetic Risk Goals Health Healthcare Healthcare Systems Heart Diseases Individual Internet Knowledge Libraries Life Style Linguistics Malignant Neoplasms Measures Medical Medical Device Medicine Methods Minnesota Modernization Monitor National Institute on Minority Health and Health Disparities Patients Pattern Physical activity Physicians Preventive Primary Health Care Process Provider Public Health Recording of previous events Reduce health disparities Research Research Personnel Risk Rivers Secure Services Software Tools Stroke Structure Testing Time Underserved Population United States National Institutes of Health Universities Visit base commercialization data exchange design experience family structure health assessment health disparity improved improved outcome information gathering member multidisciplinary multimodality prevent professor prototype recruit risk mitigation screening screening guidelines screening program social culture standard of care tool usability

项目摘要

Project Summary/Abstract Rush River Research Corp. proposes to develop a culturally tailored modernized family medical history tool to reduce health disparities among African Americans. The death rate for African Americans is generally higher than whites for heart diseases, stroke, cancer, and diabetes all of which have increased risk with family history. In many cases having a single first-degree relative with one of these diseases indicates at least double the risk to the individual. The risk typically doubles again with multiple family members having one of these diseases and in some cases up to ten to twenty times. Knowing the risk is important as there are many risk mitigation actions available for these diseases including lifestyle change, screening guidelines, genetic counseling, genetic risk testing, and other screening methods. Family health history is a validated important standard of care however it is underutilized. Research has also shown that African American families have less knowledge of their family health history due to family structure and communication patterns. Rush River Research has assembled a multi-disciplinary team of community health researchers, medical software developers, and a commercialization partner to achieve the goals of this project. An advisory committee of African American physicians and community leaders will also be assembled to advise on design decisions. A focus group will be utilized to determine feasibility and drive future design.

项目摘要/摘要拉什河研究公司（Rush River Research Corp. 减少非裔美国人的健康差异。非裔美国人的死亡率通常更高与心脏病，中风，癌症和糖尿病有关的白人都增加了家族病史的风险。在许多情况下，具有其中一种疾病的一种一级亲戚，至少表明风险两倍给个人。风险通常会再次加倍，多个家庭成员患有其中一种疾病在某些情况下，最多十到二十次。知道风险很重要，因为有许多降低风险可用于这些疾病的行动，包括改变生活方式，筛查指南，遗传咨询，遗传风险测试和其他筛查方法。家庭健康历史是经过验证的重要标准但是，它的精力不足。研究还表明，非洲裔美国家庭的知识较少由于家庭结构和沟通方式，他们的家庭健康历史。拉什河研究有组建了一个由社区健康研究人员，医疗软件开发人员和一个的多学科团队商业化合作伙伴以实现该项目的目标。非裔美国人咨询委员会医师和社区领导者也将集结以就设计决策提供建议。焦点小组将是用于确定可行性并推动未来的设计。