Modernized Culturally Sensitive Family Medical History Tool

项目总结/摘要 拉什河研究公司建议开发一种文化定制的现代化家族病史工具， 减少非裔美国人的健康差距。非裔美国人的死亡率普遍较高， 心脏病、中风、癌症和糖尿病的发病率都比白人高，所有这些疾病都增加了家族史的风险。 在许多情况下，有一个一级亲属患有这些疾病之一，表明风险至少增加一倍 对个人来说。如果多个家庭成员患有这些疾病之一，风险通常会再次增加一倍 并且在某些情况下高达十到二十次。了解风险很重要，因为有许多风险缓解措施 可用于这些疾病的行动，包括生活方式的改变，筛查指南，遗传咨询， 遗传风险测试和其他筛查方法。家庭健康史是一个有效的重要标准， 但是，注意它没有得到充分利用。研究还表明，非洲裔美国人家庭对 由于家庭结构和沟通模式，他们的家庭健康史。拉什河研究公司 组建了一个由社区健康研究人员、医疗软件开发人员和 商业化合作伙伴，以实现该项目的目标。非裔美国人咨询委员会 医生和社区领袖也将聚集在一起，就设计决策提供建议。焦点小组将 用于确定可行性并推动未来设计。

Project Summary/Abstract Rush River Research Corp. proposes to develop a culturally tailored modernized family medical history tool to reduce health disparities among African Americans. The death rate for African Americans is generally higher than whites for heart diseases, stroke, cancer, and diabetes all of which have increased risk with family history. In many cases having a single first-degree relative with one of these diseases indicates at least double the risk to the individual. The risk typically doubles again with multiple family members having one of these diseases and in some cases up to ten to twenty times. Knowing the risk is important as there are many risk mitigation actions available for these diseases including lifestyle change, screening guidelines, genetic counseling, genetic risk testing, and other screening methods. Family health history is a validated important standard of care however it is underutilized. Research has also shown that African American families have less knowledge of their family health history due to family structure and communication patterns. Rush River Research has assembled a multi-disciplinary team of community health researchers, medical software developers, and a commercialization partner to achieve the goals of this project. An advisory committee of African American physicians and community leaders will also be assembled to advise on design decisions. A focus group will be utilized to determine feasibility and drive future design.