Community Outreach and Engagement

社区外展和参与

• 批准号: 10627510
• 负责人: THERESA W GILLESPIE
• 金额: $ 29.64万
• 依托单位: EMORY UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2009
• 资助国家: 美国
• 起止时间: 2009-04-07 至 2028-03-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10627510
• 关键词: Address; Adoption; Advocate; African American; Age; Appointment; Black American; Black Populations; Black race; Bladder Lymphoma; Breast; Budgets; Cancer Burden; Cancer Center; Cancer Center Support Grant; Catchment Area; Clinical Trials; Clinical Trials Design; Collaborations; Colorectal; Communication; Communities; Community Outreach; County; Data Collection; Development; Disparity; Doctor of Philosophy; Education; Ensure; Equity; Evidence based intervention; Excess Mortality; Feedback; Fostering; Foundations; Funding; Goals; HIV; Health; Human Resources; Incidence; Income; Infrastructure; Institution; Insurance; Intervention; Lung; Malignant Neoplasms; Malignant neoplasm of pancreas; Medicaid; Modeling; Monitor; Multiple Myeloma; Non-Hodgkin' s Lymphoma; Obesity; Outcome; Outcome Measure; Patients; Persons; Phase; Policies; Population; Population Study; Positioning Attribute; Poverty; Prevalence; Prevention Research; Process; Prostate; Recording of previous events; Regional Cancer; Registries; Research; Research Personnel; Research Priority; Research Proposals; Resources; Rest; Risk; Scientist; Series; Smoking; Special Population; Strategic Planning; System; Translational Research; Translations; Universities; Uterus; Vulnerable Populations; Work; anticancer research; cancer care; cancer health disparity; cancer prevention; cancer risk; community based participatory research; community engaged research; community engagement; community partnership; cost; design; disparity reduction; experience; innovation; interest; mortality; novel; novel strategies; outreach; programs; public policy on tobacco; rural dwellers; screening; social health determinants; symposium; tool; trial planning

PROJECT SUMMARY/ABSTRACT COMMUNITY OUTREACH AND ENGAGEMENT Community Outreach and Engagement (COE) for Winship Cancer Institute of Emory University (Winship) has been built on a strong foundation of catchment area assessment, community-engaged research, and dissemination of evidence-based interventions. In its efforts to reduce cancer disparities in Winship's catchment area, the state of Georgia, COE has assessed the cancer burden and priorities; identified special populations of interest and significant disparities; collaborated with community partners on strategic planning; established measurable outcomes; and thoughtfully allocated its budget in support of infrastructure and activities to advance COE goals. The availability of unique resources to support population-based studies, e.g., the Georgia SEER state-wide registry and regional cancer coalitions, has been highlighted and strengthened. With the appointment of a new cancer center Executive Director, Suresh Ramalingam, MD (DDT), and a new associate director for COE, Theresa Gillespie, PhD, MA, RN, FAAN (CPC), and in collaboration with Winship's Community Advisory Board and statewide partners, Winship COE has launched a novel series of innovative and wide-ranging endeavors. New approaches have been established to ensure bi-directional communication with community and patient stakeholders, across the entire cancer research continuum. Community partnerships inform and guide Winship research program portfolios, clinical trials, dissemination and outreach, and translation to policy. The overall goal of COE is to facilitate catchment area-relevant research, including community-engaged research, and disseminate evidence-based interventions, to reduce disparities and the cancer burden across Georgia. This goal will be accomplished through three specific aims: (1) assess, prioritize, monitor, and communicate catchment area needs and priorities; (2) facilitate and inform Winship programmatic research portfolios, clinical trials, and strategic planning responsive to catchment area priorities through bi-directional exchanges with community stakeholders; and (3) disseminate evidence-based interventions and promote policy impact and translation to the catchment area, nationally and globally. COE initiated a comprehensive approach to catchment area assessment, priority-setting, and communication internally and externally. To study underlying basic mechanisms that contribute to poor outcomes and disparities in Georgia, COE hosted discussions on mechanistic models and connected basic, translational, and population scientists with community and patient advocates, resulting in submission of multiple proposals. COE transformed accrual monitoring and redesign of the clinical trials process for investigator-initiated studies, so that both patient advocates and population scientists/disparities experts are directly involved with trials development from the concept phase onward. To promote dissemination of evidence-based interventions, screening, and clinical trials accrual, COE-funded FTEs are embedded in regional cancer coalitions to advance research priorities and reduce cancer burden. COE encouraged adoption of statewide and national policy for impact beyond the catchment area.

项目总结/摘要 社区外展和参与 埃默里大学Winship癌症研究所（Winship）的社区外展和参与（COE） 建立在集水区评估，社区参与研究的坚实基础上， 传播循证干预措施。为了减少温希普流域的癌症差异， 在格鲁吉亚州的一个地区，COE评估了癌症负担和优先事项;确定了 利益和重大差距;与社区伙伴合作进行战略规划;建立 可衡量的成果;并深思熟虑地分配其预算，以支持基础设施和活动， COE目标。支持基于人群的研究的独特资源的可用性，例如，格鲁吉亚SEER 全国登记处和区域癌症联盟的工作得到了重视和加强。任命 一个新的癌症中心执行主任，苏雷什Ramalingam，医学博士（滴滴涕），和一个新的副主任， COE，Theresa吉莱斯皮，博士，硕士，注册护士，FAAN（CPC），并与Winship的社区咨询合作 董事会和全州的合作伙伴，Winship COE推出了一系列新颖的创新和广泛的 努力已经建立了新的方法，以确保与社区的双向沟通， 患者利益相关者，在整个癌症研究连续体中。社区伙伴关系提供信息和指导 温希普研究项目组合，临床试验，传播和推广，并翻译为政策。的 COE的总体目标是促进流域相关研究，包括社区参与的研究， 并传播循证干预措施，以减少格鲁吉亚各地的差距和癌症负担。 这一目标将通过三个具体目标来实现：（1）评估、优先排序、监测和沟通 集水区的需求和优先事项;（2）促进和告知Winship计划研究组合，临床 试验，并通过与 社区利益攸关方;（3）传播循证干预措施，促进政策影响， 翻译到流域地区，国家和全球。特遣队所属装备启动了一项集水综合办法， 区域评估、优先事项设定以及内部和外部沟通。学习基本的 在格鲁吉亚，欧洲委员会主持了关于以下问题的讨论： 机械模型和连接的基础，翻译和人口科学家与社区和病人 建议书，提出多项建议。特遣队所属装备改变了应计监测， 临床试验过程中的兴奋剂发起的研究，使病人的倡导者和人口 从概念阶段开始，科学家/差异专家就直接参与试验开发。到 促进循证干预措施、筛查和临床试验的传播， 嵌入区域癌症联盟，以推进研究优先事项并减少癌症负担。Coe 鼓励通过全州和国家政策，以影响流域以外的地区。