Curriculum Development Using Big Data for Cancer Prevention and Control

摘要 为了减轻美国人口中癌症的负担，NCI，疾病控制和预防中心 (CDC)和其他机构依靠学术、政府和社区合作伙伴网络采取行动 在癌症控制和教育方面。社区组织(CBO)开展的活动范围 范围广泛，可能包括预防和筛查；诊断；治疗；生存护理；以及 癌症患者和家属的生活。这些举措的成功侧重于准确评估 社区优先事项，设计和实施战略，以解决其社区之间的优先事项， 以及传播和评价循证干预措施。大多数社区从广泛的 公开可用的国家数据集，提供各州县级的详细信息，并作为基础 对于国会预算办公室的“行动计划”，制定如何实现健康公平和减少癌症差距。准确 国家、州和县数据的识别和使用至关重要，并严重依赖于这种组织能力 在基于人口的大型数据集(大数据)的应用中。然而，使用和应用这些大的 社区组织不容易完成数据集和解释数据调查结果，特别是在农村地区。 目前，没有旨在教育和支持CBO参与癌症大数据的课程 计划优先级评估、设计和实施。我们假设，开发一种独特的、必不可少的 旨在培训癌症CBO大数据使用和癌症项目应用的课程将结束 培训不足，提高社区项目质量，改善人口结果。向声明的人发表讲话 在文献和帮助癌症CBO的实用工具方面的差距，我们的目标是开发和测试一个课程 特别侧重于将大数据用于基于社区的癌症控制和教育项目(BigC3E)。 具体目标是：1)开发一种具有高潜力的新课程，以提高生物医学、行为学 和/或针对参与传播健康的非专业社区成员的癌症临床教育 信息；2)测试内容的可行性、可接受性和适宜性 佐治亚州的区域癌症联盟，以及3)为在全国范围内广泛传播该课程做准备。这个 建议的BigC3E课程，包括内容、交付和体验式、基于问题的学习方法，是 高度创新，其成功实施和传播将对社区癌症产生影响 在全国范围内大规模开展控制和教育项目。详细的课程开发和测试 提出了方法，包括与两个已建立的社区癌症合作的稳健评估计划 代表68个县和200多个利益攸关方的佐治亚州联盟，为该项目的 课程开发、测试和传播计划。该计划将为以下项目提供基础 全国社区加强癌症控制和教育工作，以完成NCI的使命 促进和传播科学知识，改善全美的癌症预后。

Abstract To reduce the burden of cancer among U.S. populations, the NCI, Centers for Disease Control and Prevention (CDC), and other agencies rely on networks of academic, governmental, and community partners to take action in cancer control and education. The range of activities undertaken by community-based organizations (CBOs) is broad and may encompass prevention and screening; diagnosis; treatment; survivorship care; and quality of life for cancer patients and families. The success of these initiatives focuses on precise assessment of community priorities, design and implementation of strategies to address the priorities among their communities, and dissemination and evaluation of evidence-based interventions. Most communities draw from extensive publicly available national datasets that provide details to the county level in each state and serve as the basis for CBO “action plans”, to develop how health equity will be achieved and cancer disparities reduced. Accurate identification and use of national, state, and county data are vital and rely heavily on such organizational capacity in the application of large population-based datasets (Big Data). However, using and applying these large datasets and interpreting data findings are not easily accomplished by CBOs, particularly in rural settings. Currently, no curricula exist aimed at educating and supporting CBOs' engagement with Big Data for cancer program priority assessment, design, and implementation. We hypothesize that developing a unique, essential curriculum designed to train cancer CBOs in Big Data use and application for cancer programs will close this training shortfall, enhance community program quality, and improve population outcomes. To address the stated gaps in the literature and in practical tools to assist cancer CBOs, our Goal is to develop and test a curriculum specifically focused on Using Big Data for Community-Based Cancer Control and Education Programs (BigC3E). The Specific Aims are to: 1) develop a novel curriculum with high potential to improve biomedical, behavioral and/or clinical cancer education targeting members of the lay community involved in the dissemination of health information; 2) test the feasibility, acceptability, and suitability of content with stakeholder members of two large regional Cancer Coalitions in Georgia, and 3) prepare for broad dissemination of the curriculum nationwide. The proposed BigC3E curriculum, including content, delivery, and experiential, problem-based learning approach, is highly innovative and its successful implementation and dissemination would impact community-based cancer control and education programs on a major scale nationwide. Detailed curriculum development and testing methods are proposed, including a robust Evaluation Plan, in partnership with two established community cancer coalitions in Georgia, representing 68 counties and over 200 stakeholders, to contribute to the project's curriculum development, testing, and plans for dissemination. This program will provide the foundation for communities nationwide to enhance their cancer control and education work to fulfill the NCI mission of advancing and distributing scientific knowledge and improving cancer outcomes throughout the U.S.