Characterising quality of life and its determinants for children with intellectual disability and their families
Characterising quality of life and its determinants for children with intellectual disability and their families
批准号:
nhmrc : GNT1103745
负责人:
A/Pr Helen Leonard
金额:
$52.09万
依托单位国家:
澳大利亚
项目类别:
Project Grants
财政年份:
2016
资助国家:
澳大利亚
项目状态:
已结题
起止时间:
2016-01-01 至 --
中文摘要
大约2%的儿童出生时就有智力残疾。他们和他们的家人经常经历糟糕的健康和福祉。我们将为受影响的儿童制定生活质量的衡量标准,然后我们将调查不同因素如何影响儿童和家庭的生活质量。我们的新措施将提供能力,以确定哪些治疗可以改善受影响儿童及其家人的生活。
英文摘要
Approximately 2% of children are born with intellectual disability. They and their families often experience poor health and wellbeing. We will develop a measure of quality of life for affected children and then we will investigate how different factors affect both child and family quality of life. Our new measure will provide capacity to determine what treatments could improve the lives of affected children and their families.
期刊论文(0)
专著(0)
科研奖励(0)
会议论文
Child disability:understanding determinants and improving outcomes
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批准号:nhmrc : 1117105
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项目类别:Research Fellowships
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资助金额:$47.7万
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财政年份:2017
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负责人:A/Pr Helen Leonard
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依托单位:
Child disability:understanding determinants and improving outcomes
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批准号:nhmrc : GNT1117105
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项目类别:Research Fellowships
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资助金额:$69.76万
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负责人:A/Pr Helen Leonard
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依托单位:
Does gastrostomy improve the lives of children with severe disability and their families?
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批准号:nhmrc : 1103746
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项目类别:Project Grants
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资助金额:$44.38万
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财政年份:2016
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负责人:A/Pr Helen Leonard
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依托单位:
Does gastrostomy improve the lives of children with severe disability and their families?
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批准号:nhmrc : GNT1103746
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项目类别:Project Grants
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资助金额:$64.51万
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财政年份:2016
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负责人:A/Pr Helen Leonard
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依托单位:
Characterising quality of life and its determinants for children with intellectual disability and their families
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批准号:nhmrc : 1103745
-
项目类别:Project Grants
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资助金额:$35.7万
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财政年份:2016
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负责人:A/Pr Helen Leonard
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依托单位:
Do people with disabilities access community-based palliative care services and does this service relieve hospitals and emergency departments: A study of the needs of people with intellectual disability, multiple sclerosis and schizophrenia.
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批准号:nhmrc : 1084890
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项目类别:Project Grants
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资助金额:$24.62万
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财政年份:2015
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负责人:A/Pr Helen Leonard
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依托单位:
Towards evidence-based care for Rett syndrome: a research model to inform management of rare disorders
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批准号:nhmrc : 1004384
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项目类别:Project Grants
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资助金额:$30.54万
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财政年份:2011
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负责人:A/Pr Helen Leonard
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依托单位:
Early developmental pathways linking health, disability, education, welfare and justice
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负责人:A/Pr Helen Leonard
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依托单位:
Uncoupled Research Fellowship
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项目类别:NHMRC Research Fellowships
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资助金额:$51.8万
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财政年份:2009
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负责人:A/Pr Helen Leonard
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依托单位:
Genetic, family and social determinants of the burden and outcome in Rett syndrome: a population-based investigation
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批准号:nhmrc : 303189
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项目类别:NHMRC Project Grants
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资助金额:$22.17万
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财政年份:2004
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负责人:A/Pr Helen Leonard
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依托单位:
国内基金
海外基金
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