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New directions for the use of genetic information by Aboriginal communities: Lessons learned from Québec First Nations with specific monogenic diseases.

New directions for the use of genetic information by Aboriginal communities: Lessons learned from Québec First Nations with specific monogenic diseases.
原住民社区使用遗传信息的新方向：从魁北克原住民特定单基因疾病中吸取的经验教训。
批准号：
240351
负责人：
Laberge Anne-Marie
金额：
$41.97万
依托单位：
Centre hospitalier universitaire Sainte-Justine (Montral, Qubec)
依托单位国家：
加拿大
项目类别：
Operating Grants
财政年份：
2011
资助国家：
加拿大
项目状态：
已结题
起止时间：
2011-08-01 至 2014-08-01
来源：
https://webapps.cihr-irsc.gc.ca/decisions/p/project_details.html?applId=240351&lang=en
关键词：
Carrier Screening Cultural Issues First Nations Genetic Counseling Genetic Information Health Services Research Needs Assessment Program Evaluation Recessive Diseases

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中文摘要
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英文摘要
We propose to study how First Nations communities in Québec perceive and use genetic information about 3 lethal childhood autosomal recessive diseases. In the Cree population of Quebec near James Bay, two severe neurodegenerative autosomal recessive disea
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