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The Scleroderma Support group Leader EDucation (SPIN-SSLED) Program: a randomized controlled trial

The Scleroderma Support group Leader EDucation (SPIN-SSLED) Program: a randomized controlled trial
硬皮病支持小组领导者教育 (SPIN-SSLED) 计划：一项随机对照试验
批准号：
388187
负责人：
Thombs Brett D
金额：
$25.36万
依托单位：
CIUSSS de Centre-Ouest-de-l'Ile-de-Montral-Jewish General
依托单位国家：
加拿大
项目类别：
Operating Grants
财政年份：
2018
资助国家：
加拿大
项目状态：
已结题
起止时间：
2018-09-01 至 2021-09-01
来源：
https://webapps.cihr-irsc.gc.ca/decisions/p/project_details.html?applId=388187&lang=en
关键词：
Integrated Knowledge Transfer Patient Education Peer Support Randomized Controlled Trial Rare Diseases Scleroderma Support Groups Systemic Sclerosis

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中文摘要
翻译
系统性硬化症（SSc），或硬皮病，是一种罕见的慢性自身免疫性结缔组织疾病。支持团体是罕见病患者（包括SSc）的重要资源，大多数支持团体由罕见病患者领导。许多南南合作伙伴
英文摘要
Systemic sclerosis (SSc), or scleroderma, is a rare, chronic, autoimmune connective tissue disease. Support groups are an important resource for people rare diseases, including SSc, and most support groups are led by people with the disease. Many SSc pati
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Towards Understanding Pain Sources, Patterns, and Barriers to Effective Management in Systemic Sclerosis: A Patient-Researcher Partnership
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