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Establishing Next Steps for SPIN-SHARE: An International Collaboration to Disseminate eHealth Disease-Management Tools for People Living with Scleroderma

Establishing Next Steps for SPIN-SHARE: An International Collaboration to Disseminate eHealth Disease-Management Tools for People Living with Scleroderma
制定 SPIN-SHARE 的后续步骤：为硬皮病患者传播电子健康疾病管理工具的国际合作
批准号：
411010
负责人：
Thombs Brett D
金额：
$0.73万
依托单位：
Lady Davis Institute for Medical Research (Mtl)
依托单位国家：
加拿大
项目类别：
Miscellaneous Programs
财政年份：
2019
资助国家：
加拿大
项目状态：
已结题
起止时间：
2019-09-01 至 2020-09-01
来源：
https://webapps.cihr-irsc.gc.ca/decisions/p/project_details.html?applId=411010&lang=en
关键词：
Chronic Disease Dissemination E-Health Interventions Healthcare Delivery Knowledge Translation Patient Engagement Rare Disease Scleroderma Stakeholder Collaboration Systemic Sclerosis

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中文摘要
翻译
硬皮病是一种罕见的自身免疫性疾病，以皮肤和内脏的增厚和硬化为特征。硬皮病对生活质量的负担很大。心理社会、教育和康复干预有助于改善功能
英文摘要
Scleroderma is a rare autoimmune disease characterized by thickening and hardening of the skin and internal organs. The burden of scleroderma on quality of life is high. Psychosocial, educational, and rehabilitation interventions could help improve functi
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Engaging Patients to Plan the Next 10 Years of the Scleroderma Patient-centered Intervention Network (SPIN): Building on a Successful Patient-Researcher Collaboration
Engaging Patients to Develop a Systemic Program of Patient Engagement in Musculoskeletal and Rare Disease Research: Putting Patients First
Towards Understanding Pain Sources, Patterns, and Barriers to Effective Management in Systemic Sclerosis: A Patient-Researcher Partnership
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