Refining a Driving Cessation Management Intervention for Person with Dementia and their Family Caregivers: CarFreeMe

项目总结/摘要 老年痴呆症病程中丧失驾驶能力与老年痴呆症有关 痴呆（AD/ADRD）可能会对身份感和独立性产生不利影响， 研究强调需要更加个性化的干预方法， 关系和支持，家庭动态，悲伤和社区访问选项。然而，仍有少数 严格设计或有效的干预措施，帮助家庭应对停止驾驶的挑战。 来自澳大利亚昆士兰州大学（UQ）的研究人员已经开发出一种停止驾驶的原型 为AD/ADRD患者及其家庭照顾者提供称为“CarFreeMe”的干预措施。CarFreeMe是一个7- 一个模块程序，可以灵活地亲自或通过电话交付，目前正在评估中， 澳大利亚这一拟议中的R21将以明尼苏达大学和美国加州大学之间的国际合作为特色。 和UQ定制和研究CarFreeMe在美国的新适应的可行性，以帮助人们 AD/ADRD和他们的家庭照顾者以联合方式管理驾驶停止过渡。具体 目的：1）在20名AD/ADRD患者及其照顾者中开发和修订CarFreeMe。 美国将使用收敛平行混合方法设计来检查CarFreeMe的管理 20名家庭护理人员和AD/ADRD患者在I期的3个月内接受了研究。这些发现将有助于 完善CarFreeMe，特别强调为美国用户量身定制内容; 2）对修订后的 CarFreeMe的版本超过6个月。将采用序贯解释性混合方法设计， CarFreeMe在第二阶段的试点测试。我们将招募50名AD/ADRD患者和家庭护理者， 参与为期6个月的干预。我们将确定CarFreeMe是否作为 预期的，并被认为是可行的，可接受的，并在6个月内有用。将人与 社区中的AD/ADRD和家庭护理人员正在努力停止驾驶并增加获得 在这一护理过渡期间提供咨询的专业人员处理多项国家建议。如果 如果成功，拟议的R21将定位CarFreeMe进行后续随机对照评价， 后来作为一个灵活的，急需的循证资源，医疗保健系统和其他提供者可以 在停止驾驶过渡期间和之后为家庭提供服务。

Project Summary/Abstract The loss of one’s ability to drive during the course of Alzheimer’s disease and Alzheimer’s disease related dementias (AD/ADRD) may adversely influence sense of identity as well as independence, and descriptive research has emphasized the need for more individualized intervention approaches that emphasize relationships and support, family dynamics, grief, and community access options. However, there remain few rigorously designed or effective interventions that assist families navigate the challenges of driving cessation. Researchers from the University of Queensland (UQ) in Australia have developed a prototype driving cessation intervention for persons with AD/ADRD and their family caregivers called “CarFreeMe.” CarFreeMe is a seven- module program that is flexibly delivered either in-person or via telephone and is currently under evaluation in Australia. This proposed R21 will feature an international collaboration between the University of Minnesota and UQ to tailor and examine the feasibility of a novel adaption of CarFreeMe in the U.S to assist persons with AD/ADRD and their family caregivers manage the driving cessation transition in joint fashion. The Specific Aims are: 1) to develop and revise CarFreeMe among 20 persons with AD/ADRD and their caregivers in the U.S. A convergent parallel mixed methods design will be utilized to examine the administration of CarFreeMe for 20 family caregivers and persons with AD/ADRD over a 3-month period in Phase I. The findings will help to refine CarFreeMe, with a particular emphasis on tailoring the content for U.S. users; and 2) pilot-test a revised version of CarFreeMe over a 6-month period. A sequential explanatory mixed methods design will be utilized to pilot test CarFreeMe in Phase II. We will enroll 50 person with AD/ADRD and family caregiver dyads to participate in the intervention over a 6-month period. We will determine whether CarFreeMe is carried out as intended and is deemed feasible, acceptable, and useful over a 6-month period. Identifying persons with AD/ADRD and family caregivers in the community struggling with driving cessation and enhancing access to professionals who offer consultation during this care transition address multiple national recommendations. If successful, the proposed R21 will position CarFreeMe for a subsequent randomized controlled evaluation and later as a flexible, much-needed evidence-based resource that healthcare systems and other providers could offer families during and after the driving cessation transition.