Ostomy Telehealth Self-management Training for Cancer Survivors

项目摘要/摘要 背景：本申请是对特别利益通知(NOSI)的回应 不是-CA-21-055。与癌症相关的护理费用会影响医疗系统、患者和家庭。许多. 这些成本可能是可以修改的。我们目前资助的研究(Ostomy TeleHealth自我管理培训 癌症幸存者(R01 CA204193，4/1/19-3/31/24)重点关注农村患者，他们是著名的 医疗保健差距。这项建议将建立在我们正在进行的研究的基础上。 目的：这项拟议的研究将检查有资格获得父母补助的患者的实际护理费用 并确定哪些内容可以修改。 目标1：利用保健系统帐单数据库，评估和说明保健的直接总费用 通过获取和分析与符合OSMT干预条件的造口者相关联 他们的账单/索赔数据。数据将从三个目前为母公司赠款积累的地点获得： 盖辛格健康系统(GHS)、桑福德健康(SH)和希望之城国家医疗中心 (Coh)。 目标2：通过目标1的账单数据和半结构化访谈，确定与造口相关的信息 预计会影响护理总成本的可修改因素。 方法：AIM 1将从三个站点(GHS、SH、COH)收集计费数据。将检查聚合数据 直接或间接与造口有关的总费用。目标2将是半结构化的患者访谈，以获得 了解造口的生活成本，直接目的是了解以下哪种 这些成本可能会导致患者或系统相关的变化。个人财务状况将是一个主要焦点。 讨论的结果。来自目标1的调查结果将为目标2提出的问题提供信息，进而为目标2的调查结果提供信息 来自Aim 2将生成一组假设，可以使用为Aim 1获得的计费数据来检验该假设。 未来的计划和研究结果：压倒一切的目标将是积极影响患者的成本， 家庭和医疗保健系统。我们预计会对正在进行的家长研究产生影响，以继续改善 干预。也可能有导致替代干预和可修改的研究的发现 癌症幸存者的成本问题。重要的是，我们计划将结果广泛传播给那些我们的发现 改善对造口癌症幸存者的长期护理将是最有意义的。

Project Summary/Abstract Background: This application is being submitted in response to the Notice of Special Interest (NOSI) identified as NOT-CA-21-055. Cancer-related care costs impact healthcare systems, patients, and families. Many of these costs may be modifiable. Our current funded study (Ostomy Telehealth Self-Management Training for Cancer Survivors (R01 CA204193, 4/1/19-3/31/24)) focuses on rural patients, who are a noted population of health care disparity. This proposal will build on our ongoing study. Aims: This proposed study will examine actual costs of care for patients who are eligible for the parent grant and identify what can be modified. Aim 1: Utilizing health system billing databases, assess and characterize the total direct cost of care associated with the ostomates who are eligible for the OSMT intervention by obtaining and analyzing their billing/claims data. Data will be acquired from three sites currently accruing for the parent grant: Geisinger Health System (GHS), Sanford Health (SH), and City of Hope National Medical Center (COH). Aim 2: Informed by Aim 1 billing data and using semi-structured interviews, identify ostomy-related modifiable factors that are expected to impact the total cost of care. Methods: Aim 1 will collect billing data from three sites (GHS, SH, COH). Aggregated data will be examined for total costs directly or indirectly related to ostomies. Aim 2 will be semi-structured patient interviews to gain an understanding of the perceived costs of living with an ostomy, with the direct goal of understanding which of these costs may lead to patient or system-related changes. Individual financial well-being will be a major focus of discussions. Findings from Aim 1 will inform the questions to be asked for Aim 2, and in turn, the findings from Aim 2 will generate a set of hypothesis that can be tested using the billing data obtained for Aim 1. Future Plans with Study Findings: The overriding goal will be to positively influence costs for patients, families, and healthcare systems. We anticipate impact to the ongoing parent study to continue to improve the intervention. There are likely to also be findings that lead to alternative interventions and study of modifiable cost issues for cancer survivors. Importantly, we plan to widely disseminate results to those who our findings would be most meaningful to make improvements in the long-term care of cancer survivors with ostomies.