Outreach, Recruitment and Engagement Core

阿尔茨海默病和阿尔茨海默病相关痴呆症(AD/ADRD)的发病率不断上升 治疗性试验和其他正在进行的研究的当前需求和预期增加 对更有效、更高效的外展、招聘和参与的需求。与少校一致 FOA(RFA-AG-20-004)、AD/ADRD科学和临床界以及纽约的目标 纽约大学(NYU)阿尔茨海默病研究中心(ADRC)用于早期疾病检测、鉴定 疾病的异质性，以及开发有效的治疗方法来预防或延缓疾病的进展， 招聘与参与(ORE)核心公司处于有利地位，可以作为纽约大学阿尔茨海默氏症患者的外在代言人 疾病研究中心(ADRC)。ORE核心中心将继续与纽约大学其他中心合作， ADRC和更大的科学界支持传播与ADRC相关的发现 临床、生物标记物、神经病理学和数据及统计核心。矿石核心也将继续在其 主要使命作为招募和留住临床核心和研究参与者的载体 与纽约大学合作，通过基于社区的招聘活动，参与AD/ADRD研究 临床服务，特别是在贫困社区，并通过部署几个新的 加强招聘和留住的战略。为了达到最有效的效果，我们将开发创新的方法 这可能会提高征聘和留用活动的效力和效率。这是特别的 对于文化多元化的人群很重要，需要多个社区组织协作和 部署与我们寻求招聘的人员在文化上一致的社区卫生工作者。我们会 还利用Epic的大量资源，通过背景分析进行基于人口的招募 在电子健康记录系统内以及通过EPIC的潜在患者对象的消息传送 MyChart，同时保护患者的机密性，并避免通常人类受试者的要求。我们会 严重依赖我们不断增长的注册机构，以确保通过具有良好特征的 一组可能有特定参与兴趣的受试者，他们的注意力将通过定期 信息和传播新的研究进展。矿石核心也将作为一个学习工具。 实验室的这些努力，以了解什么是最有效的和为什么。我们将支持国家在以下方面的努力 AD/ADRD研究，通过与国家老年阿尔茨海默氏症及相关研究所的密切合作 痴呆症教育和转介中心(ADEAR)通过分享我们的招聘信息图表，教育 讲义和视频动画。ORE核心将通过以下方式促进AD/ADRD研究活动的扩大 通过研究报告和培训，参与纽约大学校园和合作机构 与专业人士举行会议，以及学生培训讲习班，同时在服务不足的地区建立关系 通过设在社区的健康博览会和相关活动，向社区提供卫生服务。

The growing incidence of Alzheimer's Disease and Alzheimer's disease Related Dementia (AD/ADRD) and the current demand and anticipated increase in the number of therapeutic trials and other ongoing investigations demands for more effective and efficient outreach, recruitment, and engagement. Consistent with the major goals of this FOA (RFA-AG-20-004), the AD/ADRD scientific and clinical community, and the New York University (NYU) Alzheimer's Disease Research Center (ADRC) for early disease detection, identification of disease heterogeneity, and developing effective therapies to prevent or delay disease progression, the Outreach, Recruitment and Engagement (ORE) Core is well positioned to serve as the outward face of the NYU Alzheimer's Disease Research Center (ADRC). The ORE Core will continue its collaboration with other NYU Centers, ADRCs, and the larger scientific community in support of disseminating ADRC-related discoveries from the Clinical, Biomarker, Neuropathology and Data and Statistical Cores. The ORE Core will also continue in its primary mission as the vehicle for recruitment and retention of research participants in the Clinical Core and affiliated AD/ADRD studies through community-based recruitment activities, through collaboration with NYU clinical services especially within disadvantaged neighborhoods, and through deployment of several new strategies to enhance recruitment and retention. To be most effective, we will develop innovative approaches that may increase the effectiveness and efficiency of recruitment and retention activities. This is particularly important for a culturally diverse population and will require multiple community organization collaborations and deployment of community health workers who are culturally concordant with those we seek to recruit. We will also utilize the myriad of Epic resources to conduct population-based recruitment through background analytics within the electronic health record system as well as messaging of potential patient subjects through Epic's MyChart while protecting patient confidentiality and avoiding the usual human subjects' requirements. We will rely heavily on our growing registry to ensure a larger “study-ready” population through a well-characterized group of subjects who may have specific participation interests and whose attention will be sustained by regular messages and dissemination of new research developments. The ORE core will also serve as a learning laboratory for these efforts to understand what is most effective and why. We will support national efforts in AD/ADRD research through close collaboration with the National Institute on Aging's Alzheimer's and related Dementias Education and Referral (ADEAR) Center by sharing our recruitment infographics, educational handouts, and video animations. The ORE Core will facilitate expansion of AD/ADRD research activities through engagement across the NYU campus and collaborating institutions, through research presentations and training sessions with professionals, and student-in-training workshops, while building relationships in underserved communities through community-located health fairs and related events.