Developing and testing a pain management program for family caregivers of advanced cancer patients

提高癌症患者及家属对疼痛管理的认识和态度。第二个目的是检查疼痛教育计划（PEP）对患者实际疼痛体验的影响。本研究建立在试点数据的基础上，表明在以家庭为基础的姑息治疗中，对癌症患者的家庭照顾者进行疼痛教育计划（PEP）可以有效地提高家庭照顾者对疼痛管理的知识和家庭照顾者对管理患者疼痛的态度。将对进展性或复发性癌症患者及其家庭照顾者进行PEP测试，同时考虑到试点研究提出的三项建议：应将患者和家庭照顾者纳入教育课程，以确保他们获得相同的信息，因为与患者关系密切的人的态度和行为会直接影响结果；招募工作应在疾病的早期阶段进行，而不是在缓解阶段，以便患者身体状况良好，能够参加教育课程，所提供的信息将在较长时间内有用；教育课程应该是短的，并在门诊肿瘤学设置，这是更具成本效益和典型的方式，干预将在实践中交付，如果发现是有效的。

To improve cancer patients' and family carers' knowledge and attitudes about pain management. A secondary aim is to examine the effect of a pain education program (PEP) on patients' actual pain experiences. This study builds on pilot data indicating that a pain education program (PEP) for family carers of cancer patients in a home based palliative service is effective in improving family carers' knowledge of pain management and family carers' attitudes toward managing the patient's pain. The PEP will be tested with both patients with progressive or recurrent cancer and their family carers, taking into account three recommendations arising from the pilot study: Both patients and family carers should be included in the education sessions to ensure that they receive the same information because the attitudes and behaviours of those close to the patient can directly influence outcomes; Recruitment should occur at an early stage of the illness rather than the palliative stage so that patients will be well enough to participate in the education sessions and the information provided will be useful for a longer period of time; Education sessions should be short and be delivered in the outpatient oncology settings, which is more cost-effective and typical of the way that the intervention will be delivered in practice, if found to be effective.