Core--Caregiver

NYU-ADCC护理核心对所有参与临床核心的AD患者的主要护理人员进行全面评估，纵向跟踪他们，并根据他们的要求提供咨询。常规结构化的多方面评估分为两部分：第一部分包括抑郁、焦虑、社会网络和支持以及生活质量的测量；第二部分测量家庭冲突、行为问题和照顾者反应、照顾者评价等与照顾相关的具体特征。阿尔茨海默病患者的护理人员完成整个评估。所有轻度认知障碍（MCI）的ADCC受试者的关键信息提供者只完成了该评估的第一部分，所有正常对照受试者也是如此。护理人员核心协议是基于纽约大学护理人员中心为护理人员开发的心理社会干预研究，该研究已经进行了12年。在临床核心的每一个诊断评估结束时，护理者核心的咨询师与主要护理者和其他家庭成员举行会议。他们每6个月对所有AD患者的护理人员以及所有正常受试者进行定期电话随访，并负责联系所有受试者进行重新评估。咨询人员可随时响应来自临床核心主题的所有护理人员的帮助和信息请求。它们是一种“用户友好”的资源，是临床受试者和临床医生之间的纽带。他们的活动有助于招募新的研究对象，保留现有的研究对象，并使研究对象参与解剖跟踪和研究。辅导员也为其他ADCC核心提供宝贵的资源，并为中心未来护理研究的发展提供宝贵的资源。庞大的数据库和受试者池，我们将继续增加同时收集的关于AD护理者及其家庭成员，轻度受损受试者及其举证者以及正常非护理对照受试者的纵向信息，将成为一项宝贵的研究资源，并促进制定新的研究，以改善护理者和患者的福祉，并了解护理的影响。

The NYU-ADCC Caregiver Core conducts a comprehensive assessment of the primary caregivers of all AD patients participating in the Clinical Core, follow them longitudinally and provides them with counseling on request. The routine structured multifaceted assessment is in two parts: the first part includes measures of depression, anxiety, social network and support and quality of life; the second part measures family conflict, behavior problems and caregiver reaction, caregiver appraisal and other specific characteristics related to caregiving. The caregiver of a patient with AD completes the entire assessment. The key informant of all ADCC subjects with mild cognitive impairment (MCI) completes only the first part of this assessment, as do all normal control subjects. The Caregiver Core protocol os based on a psychosocial intervention study developed for caregivers at the NYU-ADCC which is now in its 12th year. At the conclusion of every diagnostic evaluation of the Clinical Core, counselors of the Caregiver Core conduct conferences with the primary caregiver and other family members. They make regular follow-up telephone calls every 6 months to the caregivers of all AD patients as well as to all normal subjects and are also responsible for contacting all subjects for re-evaluation. The counseling staff is available to respond to requests for help and information from all caregivers of subject of the Clinical Core. They are a "user-friendly" resource and a link between clinic subjects and clinic physicians. Their activities facilitate recruitment of new subjects, retention of current subjects and participation of subjects in autopsy tracking and in research studies. The counselors also serve as a valuable resource to other ADCC cores and for development of future research on caregiving at the Center. The large database and subject pool, about which we will continue to add longitudinal information collected concurrently on caregivers and their family members with AD, on mildly impaired subjects and their informants and on normal non-caregiving control subjects, will be a valuable research resource in its own right and foster the formulation of new research to improve caregiver and patient well-being and to understand the impact of caregiving.