Personal Profile-Prostate:An Internet Decision Support

描述(由申请人提供)：没有其他疾病或情况像局限性前列腺癌(LPC)那样频繁发生，而且治疗方法如此多样，潜在结果存在如此多的不确定性。医生、护士和社会科学家尚未制定、全面研究或提供循证干预措施，以促进诊断为LPC的男性所需的洞察力、个人相关的优先顺序和决策。现有的用于患者治疗决策的计算机化决策辅助工具评估医生认为相关的医疗因素：肿瘤在显微镜下的外观、患者患有的其他疾病以及他的预期寿命(直到他去世的几年)。越来越多的证据表明，患有LPC的男性通过考虑他们的个人特征和因素(例如，他们的职业或他们知道谁患有癌症)来进行决策过程，这可能比任何医学因素都更有影响力。这项研究的目的是开发和评估一个个性化的、量身定做的互联网决策支持系统，该系统将为男性参与LPC管理的具有挑战性和往往有压力的决策过程做好准备。具体地说，我们将开发和试点测试一个安全的定制互联网决策支持计划，个人患者资料前列腺癌(P4)。在编程完成并创建创新的基于网络的干预之后，我们将在20名患有局限性前列腺癌的男性身上进行试点测试。

DESCRIPTION (provided by applicant): There is no other disease or condition that occurs as frequently as localized prostate cancer (LPC) and that also has such a variety of treatments and so much uncertainty in the potential outcomes. Doctors, nurses and social scientists have not developed, comprehensively studied, or provided evidence-based interventions to facilitate the insight, personally relevant prioritizing, and decision-making that is required of a man with a diagnosis of (LPC). Computerized decision-support aids that exist for patients' treatment decision-making assess medical factors that are considered relevant by physicians: how the tumor appears under the microscope, other diseases the patient has and his expected longevity (years until he dies). There is a growing body of evidence that men with LPC conduct the decision making process by considering their personal characteristics and factors (for example, their occupation or who they know who has had cancer) which may be much more influential than any medical factor. The purpose of this study is to develop and evaluate a personal, tailored, Internet decision-support system that will prepare a man to engage in the challenging and often stressful decision-making process for the management of LPC. Specifically, we will develop and pilot test a secure customized, Internet decision-support program, Personal Patient Profile Prostate (P4). After the programming is complete and the innovative web-based intervention is created, we will pilot test the program in 20 men with localized prostate cancer.