Pediatric Rheumatology Research Scientific Meeting

描述（由申请人提供）：“儿科风湿病研究年度科学会议”的长期目标是将儿科风湿病社区与儿科风湿病临床研究、流行病学、临床试验和转化研究以及其他领域的专家聚集在一起，以进一步研究儿科风湿病。这次科学会议是促进和促进儿科风湿病研究的关键，因为儿科风湿病学绝对需要合作和科学交叉。本次科学会议的具体目标是：1）更新对儿童风湿性疾病（包括青少年关节炎、SLE、皮肌炎、硬皮病、血管炎、自身炎性疾病和疼痛）的发病机制、流行病学以及当前和创新治疗方法的理解进展; 2）提供与儿科风湿病学研究相关的主要领域的教育，包括罕见疾病的流行病学，结果测量，儿科研究中的伦理问题，儿科多中心研究项目和临床试验的设计和实施，以及转化研究中的主要课题;和3）提供一个论坛，为儿科风湿病学研究社区，特别是研究员，年轻的研究人员，来自其他领域的研究人员，和职业生涯中期的“重返”调查员。 该会议每年举行一次，为期两天半。本次会议的主要共同赞助商是儿童关节炎和风湿病研究联盟（CARRA），这是一个最近在美国和加拿大成立的网络，旨在促进和促进儿童风湿病研究。将邀请儿科流变学社区的所有成员和CARRA成员，沿着邀请演讲者和相关领域的专家（内科流变学、免疫学、流行病学）。该格式将是教学和并行会议的组合，涵盖了目前在每种儿科风湿性疾病的科学进展，知识差距，科学机会，研究设计，研究性能的最佳实践，临床和转化研究的新方法。促进互动会议将确定每个主要疾病领域的关键研究需求和机会，并制定未来发展为具体研究项目的科学优先事项。将探讨合作机会，并确定转化研究的机会。 总结：儿科风湿病研究年度科学会议的目的是为所有感兴趣和参与儿科风湿病研究的人提供一个论坛，共同制定研究和试验计划，最终改善所有风湿病儿童的护理。

DESCRIPTION (provided by applicant): The long-term objective of "The Pediatric Rheumatology Research Annual Scientific Meeting" is to bring the pediatric rheumatology community together with experts in clinical research, epidemiology, clinical trials and translational research in pediatric rheumatology as well as other fields in order to further research in pediatric rheumatic diseases. This scientific meeting is key to fostering and facilitating research in pediatric rheumatic diseases because of the absolute need for collaboration and scientific cross-fertilization in pediatric rheumatology. The specific objectives of this scientific meeting are 1) To update the progress in understanding the pathogenesis, epidemiology, and current and innovative therapeutic approaches in pediatric rheumatic diseases including juvenile arthritis, SLE, dermatomyositis, scleroderma, vasculitis, auto inflammatory diseases, and pain; 2) To provide education in major areas relevant to pediatric rheumatology research including epidemiology of rare diseases, outcome measures, ethical issues in pediatric research, design and performance of pediatric multicenter research projects and clinical trials, and major topics in translational research; and 3) To provide a forum for development of collaborations and mentoring for the pediatric rheumatology research community, especially fellows, young investigators, investigators from other fields, and mid-career "re-entry" investigators. This meeting will be held annually and be 2 1/2 days in length. The major co-sponsor of this meeting is the Childhood Arthritis and Rheumatology Research Alliance (CARRA) which is a recently formed network in the US and Canada for the purpose of fostering and facilitating pediatric rheumatic disease research. All members of the pediatric rheumatology community and CARRA members will be invited, along with invited speakers and experts in related fields (internal medicine rheumatology, immunology, epidemiology). The format will be a combination of didactic and concurrent sessions covering the current scientific advances in each of the pediatric rheumatic disease, gaps in knowledge, scientific opportunities, study design, best practices in study performance, new methodologies for clinical and translational research. Facilitated interactive sessions will identify the key research needs and opportunities in each of the major disease areas, and develop scientific priorities for future development into specific research projects. Collaborative opportunities will be explored and translational research opportunities will be identified. LAY SUMMARY: The purpose of Pediatric Rheumatology Research Annual Scientific Meeting is to provide a forum for all persons interested and involved in pediatric rheumatic disease research to come together to develop a plan for research studies and trials that will ultimately lead to the improvement of care for all children with rheumatic diseases.