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Core--Administration, Data Management and Statistics

Core--Administration, Data Management and Statistics
核心——行政管理、数据管理和统计
批准号:
6842195
负责人:
DENNIS WILLIAM DICKSON
金额:
$30.13万
依托单位:
依托单位国家:
美国
项目类别:
财政年份:
2004
资助国家:
美国
项目状态:
已结题
起止时间:
2004-07-01 至 2009-08-31

项目摘要

项目成果

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中文摘要
翻译
行政、数据管理和统计中心将负责(1)尤德尔帕金森病研究卓越中心的全面管理,(2)为核心和项目实施数据库和生物统计支持,(3)促进年轻PD研究者的教育和研究机会,(4)扩大梅奥诊所和其他尤德尔中心之间的互动。更具体地说,行政核心的管理结构旨在确保核心和项目之间保持一致的沟通和协作,并通过外部咨询委员会提供独立指导。执行委员会将由PI领导,由其他核心和项目的PI以及运动障碍科的科长组成。
英文摘要
The Administration, Data Management and Statistics Core will be responsible for the (1) overall management of the Udall Center for Excellence in Parkinson's Disease Research, (2) implementation of database and biostatistical support for the Cores and Projects, (3) promotion of education and research opportunities among young PD investigators, and (4) expansion of interactions between the Mayo Clinic and other Udall Centers. More specifically, the management structure of the Administrative Core is designed to ensure consistent communication and collaboration between the Cores and Projects, as well as provide independent guidance via an External Advisory Committee. An Executive Committee will be headed by the PI and composed of the PIs of the other Cores and Projects and the chiefs of the Movement Disorder Sections, and it will meet on a bi-weekly basis. An External Advisory Committee will be recruited and convened every 12 to 18 months for review of the Center's activities. In addition, this Core will provide technical and analytical expertise for the data management and analysis requirements of the other Cores and Projects, as well as develop an integrated data warehousing system designed to enhance collaboration between the Cores and Projects. Consistent with Mayo Clinic policy, all database designs will meet or exceed HIPAA compliance standards. The Core will also support PD research through active participation in training and education programs, the annual funding of a pilot research grant, and establishment of funds to support travel for research fellows to interact with other Udall Centers. In anticipation of a national Udall Center database, this Core will coordinate data collection according to the established reporting standards. This Core will promote efforts of the Clinical and Genetic Cores to submit genetic samples, especially for familial PD, when appropriate consent is given, to the NINDS-sponsored DNA repository. The PI of the Administrative Core will communicate with the NINDS and be responsible for annual progress reports. Finally, the Udall Center will be compliant with the training requirements for key personnel as outlined by the Mayo Foundation and will be HIPAA compliant.
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