Pediatric Rheumatology Research Annual Scientific Meeting

描述(申请人提供)：“儿科风湿病研究年度科学会议”的长期目标是将儿科风湿病学界与儿科风湿病及其他领域的临床研究、流行病学、临床试验和翻译研究的专家汇聚一堂，以便进一步研究儿科风湿病。这次科学会议是促进和促进儿科风湿病研究的关键，因为儿科风湿病的合作和科学交流是绝对需要的。本次科学会议的具体目标是：1)了解儿童风湿性疾病的发病机制、流行病学以及当前和创新的治疗方法的最新进展，包括青少年关节炎、系统性红斑狼疮、皮肌炎、硬皮病、血管炎、自身炎症性疾病和疼痛；2)提供与儿童风湿学研究相关的主要领域的教育，包括罕见疾病的流行病学、结果衡量标准、儿科研究中的伦理问题、儿科多中心研究项目和临床试验的设计和实施以及翻译研究的主要主题；以及3)为儿科风湿病研究界，特别是研究员、年轻研究人员、其他领域的研究人员和职业生涯中期的“重返”研究人员提供一个发展合作和指导的论坛。 本次会议每年举行一次，为期两天半。这次会议的主要共同赞助者是儿童关节炎和风湿病研究联盟(CARA)，这是美国和加拿大最近成立的一个网络，旨在促进和促进儿科风湿病研究。将邀请儿科风湿病学社区的所有成员和CARA成员，以及相关领域(内科风湿学、免疫学、流行病学)的特邀演讲者和专家。该形式将是授课和并行会议相结合的形式，涵盖每种儿科风湿病的当前科学进展、知识差距、科学机会、研究设计、研究绩效的最佳实践、临床和翻译研究的新方法。促进的互动会议将确定每个主要疾病领域的关键研究需求和机会，并为未来发展成为具体的研究项目制定科学优先事项。将探索合作机会，并确定翻译研究机会。 儿科风湿学研究年度科学会议的目的是为所有对儿科风湿病研究感兴趣和参与的人提供一个论坛，共同制定一项研究研究和试验计划，最终改善对所有患有风湿病的儿童的护理。

DESCRIPTION (provided by applicant): The long-term objective of "The Pediatric Rheumatology Research Annual Scientific Meeting" is to bring the pediatric rheumatology community together with experts in clinical research, epidemiology, clinical trials and translational research in pediatric rheumatology as well as other fields in order to further research in pediatric rheumatic diseases. This scientific meeting is key to fostering and facilitating research in pediatric rheumatic diseases because of the absolute need for collaboration and scientific cross-fertilization in pediatric rheumatology. The specific objectives of this scientific meeting are 1) To update the progress in understanding the pathogenesis, epidemiology, and current and innovative therapeutic approaches in pediatric rheumatic diseases including juvenile arthritis, SLE, dermatomyositis, scleroderma, vasculitis, auto inflammatory diseases, and pain; 2) To provide education in major areas relevant to pediatric rheumatology research including epidemiology of rare diseases, outcome measures, ethical issues in pediatric research, design and performance of pediatric multicenter research projects and clinical trials, and major topics in translational research; and 3) To provide a forum for development of collaborations and mentoring for the pediatric rheumatology research community, especially fellows, young investigators, investigators from other fields, and mid-career "re-entry" investigators. This meeting will be held annually and be 2 1/2 days in length. The major co-sponsor of this meeting is the Childhood Arthritis and Rheumatology Research Alliance (CARRA) which is a recently formed network in the US and Canada for the purpose of fostering and facilitating pediatric rheumatic disease research. All members of the pediatric rheumatology community and CARRA members will be invited, along with invited speakers and experts in related fields (internal medicine rheumatology, immunology, epidemiology). The format will be a combination of didactic and concurrent sessions covering the current scientific advances in each of the pediatric rheumatic disease, gaps in knowledge, scientific opportunities, study design, best practices in study performance, new methodologies for clinical and translational research. Facilitated interactive sessions will identify the key research needs and opportunities in each of the major disease areas, and develop scientific priorities for future development into specific research projects. Collaborative opportunities will be explored and translational research opportunities will be identified. LAY SUMMARY: The purpose of Pediatric Rheumatology Research Annual Scientific Meeting is to provide a forum for all persons interested and involved in pediatric rheumatic disease research to come together to develop a plan for research studies and trials that will ultimately lead to the improvement of care for all children with rheumatic diseases.