Breast Cancer Treatment Decisions & Outcomes in Latinas

描述(由申请人提供)：评估乳腺癌妇女的护理质量在美国是一个重要的研究重点，因为人们对治疗提供的质量感到担忧。拉美裔妇女可能特别容易受到与文化、背景和机会有关的机会和护理质量问题的影响。不幸的是，没有基于人群的研究同时评估美国患有乳腺癌的拉丁裔妇女的治疗过程和护理结果的决定因素。我们提议在洛杉矶县进行一项以人群为基础的研究，以检验一系列可能与最近诊断为乳腺癌的拉丁裔妇女的四种结果相关的决定因素(诱因/促成因素、临床因素、外部影响以及患者的知识和态度因素)：(1)明确的手术治疗(乳房切除与肿块切除)和补充治疗选择(肿块切除后的放射治疗和乳房切除后的重建)；(2)患者对所接受治疗的满意度；(3)患者对治疗决策过程的满意度；以及(4)与健康相关的生活质量。所有拉美裔妇女(使用有效的美国人口普查姓氏策略确定)和最近被诊断患有乳腺癌的20%的非拉丁裔妇女(N=2,200)随机样本将使用登记处的快速病例确定程序，在12个月的时间内从洛杉矶监测、流行病学和最终结果(SEER)收集地区中前瞻性地挑选出来。妇女将被邀请在邮寄中填写一份标准化的自我管理调查问卷，并邀请她们在愿意的情况下通过电话完成调查。我们预计75%的符合条件的患者将完成问卷调查(N=1545名受访者)，其中35%将自我指定为拉丁裔。

DESCRIPTION (provided by applicant): Evaluating the quality of care for women with breast cancer is an important research priority in the United States as there are concerns about the quality of treatment delivery. Latina women may be particularly vulnerable to access and quality of care issues related to culture, context and access. Unfortunately, there are no population-based studies that simultaneously evaluate determinants of treatment processes and outcomes of care for Latina women with breast cancer in the United States. We propose a population-based study in Los Angeles County to examine a broad array of determinants (predisposing/enabling factors, clinical factors, external influences and patient knowledge and attitudinal factors) that may be associated with four outcomes for Latina women recently diagnosed with breast cancer: (1) definitive surgical treatment (mastectomy vs. lumpectomy) and complementary treatment options (radiation therapy post-lumpectomy and reconstruction post-mastectomy); (2) patient satisfaction with the treatments received; (3) patient satisfaction with the process by which treatment decisions were made; and (4) health-related quality of life. All Latina women (identified using a validated U.S. Census-based surname strategy) and a 20% random sample of non-Latina women recently diagnosed with breast cancer (N=2,200) will be selected prospectively from the Los Angeles Surveillance, Epidemiology and End Results (SEER) catchment areas of a 12-month period using the registries' rapid case ascertainment process. Women will be invited to complete a standardized self-administered survey questionnaire in the mail with an invitation to complete the survey by telephone if preferred. We expect that 75% of eligible patients will complete the questionnaire (N=1,545 respondents) of whom 35% will self-designate as Latina.