Familias Fuertes: Outreach to Latino families with a child coping with cancer

描述（由申请人提供）：在这个第一阶段的小企业创新研究申请中，kdhc研究与传播（KDHRC）提议开发和评估一个文化相关的外展计划，为有孩子患有癌症的拉丁裔家庭提供教育和支持。更具体地说，这个暂定名为“坚强家庭”（Families Fuertes）的项目将解决两种不同的健康状况。首先，FF将为患有儿童癌症的拉丁裔家庭提供特定的材料。其次，FF将提供材料，帮助那些有父母、照顾者或其他近亲患有癌症的孩子的拉丁裔家庭。为了减少拉美裔人因语言、保险、移民身份和其他挑战而经常遇到的医疗机构障碍，该计划将分两步实施。首先，为拉丁美洲人服务的社区卫生组织将使用FF培训指南招募和培训明日之星，该指南为系统的、以证据为基础的培训课程和相关的宣传工具（如小册子、挂图和传单）提供了蓝图。其次，这些推动者将对有孩子患有癌症的拉丁裔家庭进行外展，在孩子的癌症诊断、治疗和应对过程的关键时刻与他们接触。通过这种方式，FF将1)在社区家庭和正规医疗系统之间提供桥梁，以减少负面医疗结果的风险；2)促进家庭对疾病的沟通，以减少儿童和成人的痛苦，提高有效应对能力。拉丁美洲人在应对癌症时面临着巨大的健康差距和护理障碍。FF将支持有孩子的家庭，这是目前未被现有项目服务的弱势群体。在第一阶段，KDHRC将与患有癌症的儿童的家庭、卫生保健提供者、社区倡导者和推广人员进行形成性研究，以便为培训指南和推广工具的内容和设计提供信息。将创建这些产品的原型，并进行可行性研究，以评估原型在多大程度上是适当的、相关的，并具有成功实施的潜力。该研究也将为第二阶段的进一步产品开发和评价奠定基础。与非西班牙裔白人相比，拉丁裔，尤其是儿童，更有可能在癌症晚期得到诊断。造成这种差异的原因是与获取有关的障碍，例如没有保险或保险不足，以及与保健提供者的语言/文化交流困难。由于这些比率及其可能带来的健康挑战，公共卫生和医疗领域强烈呼吁制定适合文化的举措，以改善美国拉丁裔人的癌症相关医疗保健。公共卫生相关性：为此，“家庭财富”项目将支持有孩子患有癌症的拉丁裔家庭，并将提供一个以证据为基础的、可复制的、易于传播的项目，以减少这一人群的健康差距和护理障碍。

DESCRIPTION (provided by applicant): In this Phase I Small Business Innovation Research application, KDH Research and Communication (KDHRC) proposes to develop and evaluate a culturally relevant outreach program to provide education and support for Latino families with children coping with cancer. More specifically, the program, tentatively entitled Familias Fuertes (Strong Families) [FF], will address two different health situations. First, FF will provide specific materials for Latino families with a child diagnosed with pediatric cancer. Second, FF will supply materials to help Latino families with a child who has a parent, caregiver, or other close family member with cancer. To reduce institutional barriers to care that are often experienced by Latinos due to language, insurance, immigration status and other challenges, FF will be implemented in a two step process. First, community based health organizations that serve Latinos will recruit and train protomoras, using the FF training guide, a product that provides a blueprint for systematic, evidence-based training sessions and associated outreach tools like brochures, flipcharts, and flyers. Second, these promotoras will conduct outreach to Latino families with a child coping with cancer, reaching them at critical points in the cancer diagnosis, treatment, and coping processes of the children. In that way, FF will 1) provide a bridge between the family in its community and formalized medical systems of care to reduce the risk of negative medical outcomes, and 2) promote family communication about the disease to decrease distress and increase effective coping in children and adults. Latinos experience significant health disparities and barriers to care when coping with cancer. FF will support families with children, a vulnerable population presently unserved by existing programs. In Phase I, KDHRC will conduct formative research with families with children coping with cancer, health care providers, community advocates, and promotoras to inform the content and design of the training guide and promotora tools. A prototype of these products will be created, and a feasibility study will assess the extent to which the prototype is appropriate, relevant, and has the potential for successful implementation. The study will also lay the foundation for further product development and evaluation in Phase II. Latinos, particularly children, with cancer are more likely to receive a diagnosis at a later stage than non- Hispanic whites. This difference has been attributed to access-related barriers, such as uninsured or underinsured status, and linguistic/cultural communication difficulties with health care providers. Because of these rates and the health challenges that they may represent, there has been a strong call from the public health and medical fields to develop culturally appropriate initiatives to improve the spectrum of cancer-related health care for Latinos in the United States. Public Health Relevance: To that end, Familias Fuertes program will support Latino families with a child coping with cancer, and will provide an evidence-based, replicable, and easily disseminated program that may reduce health disparities and barriers to care in this population.