Toolkit for parents & teachers of chronically ill children with school absences

家长工具包

• 批准号: 8645665
• 负责人: KRISTEN D HOLTZ
• 金额: $ 57.26万
• 依托单位: KDH RESEARCH AND COMMUNICATION, INC.
• 依托单位国家: 美国
• 财政年份: 2012
• 资助国家: 美国
• 起止时间: 2012-04-01 至 2017-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8645665
• 关键词: Absenteeism; Address; Administrator; Advocate; Affect; Agreement; Anxiety; Architecture; Asthma; Attitude; Benchmarking; Case Study; Child; Chronic Disease; Chronically Ill; Communication Research; Control Groups; Data; Diabetes Mellitus; Diagnosis; Education; Environment; Evaluation; Evaluation Reports; Exposure to; Face; Feedback; Film; Foundations; Health Professional; Healthcare; Instruction; Intervention; Knowledge; Lead; Literature; Logic; Malignant Neoplasms; Medical; Mental Depression; Modeling; Multimedia; Needs Assessment; Outcome; Parents; Participant; Phase; Population; Printing; Program Development; Public Health; Public Health Education; Publications; Publishing; Reporting; Research; Research Proposals; Resources; Risk; School-Age Population; Schools; Secure; Self Efficacy; Services; Small Business Innovation Research Grant; Source; Stream; Stress; Stress and Coping; Surveys; Testing; Time; United States; arm; base; coping; cost effective; design; elementary school; evidence base; experience; falls; health disparity; high school; improved; innovation; medically necessary care; meetings; programs; prototype; psychosocial; skills; teacher; tool; web site

DESCRIPTION (provided by applicant): The objective of this Fast Track Small Business Innovation Research (SBIR) application, submitted by KDH Research and Communication (KDHRC), is to develop and evaluate the School TIME Toolkit (Toolkit) to support parents and teachers of elementary school-aged children who have a chronic illness and intermittent school attendance (CICISA). Children with chronic illnesses, such as asthma, cancer, diabetes and other illnesses with physical and medical effects lasting longer than three months are at risk of intermittent school absences which can negatively impact their academic and psychosocial outcomes. The burden of navigating and securing school services and easing transitions into and out of school because of absences falls heavily on the parents and teachers of CICISA and can result in their increased stress, depression, and anxiety. The Toolkit aims to reduce this burden by increasing parents' and teachers' knowledge, attitudes, and self-efficacy toward managing the educational needs of CICISA, providing parents and teachers with practical skills to understand, navigate, and advocate for school services for CICISA, and also decrease their stress and increase their coping abilities. Armed with these improved skills and lower stress, teachers and parents will then contribute to a more supportive school environment for CICISA characterized by greater access to school. The Toolkit will be a comprehensive, evidence-based, integrated set of print and multimedia materials, hosted on an interactive website. The need for the Toolkit is significant. Approximately 4.4 million children with a chronic illness in te United States experience disruption to school because of their illness. Parents and teachers are key players in helping CICISA access school services, navigating transitions into and out of school because of absences, and establishing support to help CICISA succeed. However, parents and teachers face multiple challenges in providing CICISA with the support they need, and the resulting burden can lead to increased risk for stress and depression. With proper support, however, such as that offered by the Toolkit, parents and teachers can help CICISA spend more time in school and avoid the negative academic consequences often associated with chronic illness and intermittent absence. In Phase I of the Toolkit, we will conduct formative research with a panel of experts in the field, an online needs assessment with parents and teachers, and a parent/teacher/administrator grassroots program development team. We will then develop the Toolkit prototype, which will consist of the print parent and teacher guides and a website architecture plan. Finally, we will conduct a feasibility evaluation of the prototype using a quasi-experimental, pretest/post-test group design to examine the extent to which the Toolkit prototype changes parents' and teachers' knowledge, attitudes, and self-efficacy. The Toolkit will be considered feasible if parents and teachers show statistically significant gains in knowledge, attitudes, or self-efficacy from pretest to post test. In Phase II, we will finalize th Toolkit by filming footage of streaming video and programming an interactive website. We will then conduct an outcome evaluation that will include three studies. The first two studies will examine changes in knowledge, attitudes, self-efficacy, skills, and stress/coping from pretest to post test in parents and teachers. The third evaluation will be a case study examination and will explore how use of the Toolkit by parents and teachers can impact the creation of a more supportive school environment for CICISA. Together, the three evaluations will provide information on the evidence-base of the Toolkit as a foundation for dissemination, as well as a wealth of data for academic publishing. In summary, the Toolkit will meet a documented need for greater support for parents and teachers of CICISA. The Toolkit will provide this support and increase parents' and teachers' ability to create a supportive school environment for CICISA, while simultaneously contributing to the scientific literature on the needs of these populations.

描述（由申请人提供）：KDH研究与传播（KDHRC）提交的快速轨道小型企业创新研究（SBIR）应用程序的目的是开发和评估学校时间工具包（工具包），以支持患有慢性病和间歇性学校出勤（CICISA）的小学生的父母和老师。慢性疾病的儿童，例如哮喘，癌症，糖尿病和其他持续三个月的身体和医疗作用的疾病，有间歇性学校缺勤的风险，可能会对他们的学术和社会心理成果产生负面影响。由于缺勤而导航和确保学校服务以及放松过渡到学校的负担严重落在了CICISA的父母和老师身上，并可能导致他们的压力，抑郁和焦虑增加。该工具包旨在通过增加父母和老师的知识，态度和自我效能来减轻这种负担，以管理CICISA的教育需求，为父母和老师提供实践技能，以了解，导航和倡导为CICISA提供学校服务，并降低压力并增加压力和增加他们的应对能力。凭借这些提高的技能和降低的压力，教师和父母将为CICISA提供更具支持性的学校环境，其特征在于上学。该工具包将是在交互式网站上托管的全面，基于证据的印刷和多媒体材料集。 对工具包的需求很大。在美国，大约有440万患有慢性病的儿童由于疾病而遭受上断的学校。父母和老师是帮助CICISA获得学校服务，由于缺勤而导航和毕业的主要参与者，并建立支持以帮助CICISA成功。但是，父母和老师在为CICISA提供所需的支持方面面临多重挑战，由此产生的负担可能导致压力和抑郁症的风险增加。但是，在适当的支持下，例如该工具包提供的，父母和老师可以帮助Cicisa在学校花费更多的时间，并避免经常与慢性病和间歇性缺勤有关的负面学术后果。 在该工具包的第一阶段，我们将与该领域的专家小组，与父母和老师的在线需求评估以及父母/教师/管理员基层计划开发团队进行在线需求评估。然后，我们将开发工具包原型，该原型由印刷父母和教师指南以及网站架构计划组成。最后，我们将对原型进行可行性评估 使用准实验性，预测试/后测试小组设计来研究工具包原型在多大程度上改变父母的知识，态度和自我效能感。如果父母和老师在统计上显着提高，该工具包将被认为是可行的 从预测试到测试后的知识，态度或自我效能感。 在第二阶段，我们将通过拍摄流视频的录像和编程交互式网站来最终确定TH工具包。然后，我们将进行结果评估，其中包括三项研究。前两项研究将检查知识，态度，自我效能感，技能和压力/应对的变化，从预测到父母和老师的考试。第三次评估将是案例研究检查，并将探讨父母和老师对工具包的使用如何影响CICISA更支持性的学校环境。这三个评估将共同提供有关该工具包的证据基础的信息，作为传播的基础，以及大量的学术出版数据。 总而言之，该工具包将满足对Cicisa父母和老师的更大支持的有记录需求。该工具包将提供这种支持，并提高父母和老师为CICISA创造支持性学校环境的能力，同时为这些人群需求的科学文献做出贡献。