Toolkit for parents & teachers of chronically ill children with school absences

描述（由申请人提供）：本快速通道小企业创新研究（SBIR）申请由kdhc研究与传播（KDHRC）提交，目的是开发和评估学校时间工具包（Toolkit），以支持患有慢性疾病和间歇性上学（CICISA）的小学学龄儿童的家长和教师。患有慢性疾病的儿童，如哮喘、癌症、糖尿病和其他对身体和医疗造成影响的疾病，持续时间超过三个月，有可能间歇性缺课，这可能对他们的学业和社会心理结果产生负面影响。导航和确保学校服务以及缓解因缺课而进出学校的过渡负担沉重地落在CICISA的家长和老师身上，并可能导致他们的压力增加，抑郁和焦虑。该工具包旨在通过提高家长和教师对管理中老年儿童教育需求的知识、态度和自我效能感，为家长和教师提供理解、引导和倡导中老年儿童学校服务的实用技能，减轻他们的压力，提高他们的应对能力，从而减轻这种负担。有了这些改进的技能和更低的压力，教师和家长将为CICISA提供一个更支持性的学校环境，其特点是更多的上学机会。该工具包将是一套全面的、循证的、综合的印刷和多媒体材料，托管在一个互动网站上。对该工具包的需求非常大。在美国，大约有440万患有慢性疾病的儿童因为疾病而无法上学。家长和老师是帮助CICISA获得学校服务的关键角色，引导缺课的过渡，并建立支持以帮助CICISA取得成功。然而，家长和老师在为CICISA提供所需的支持方面面临着多重挑战，由此产生的负担可能导致压力和抑郁的风险增加。然而，在适当的支持下，如工具包提供的支持，家长和老师可以帮助CICISA花更多的时间在学校，避免经常与慢性疾病和间歇性缺课相关的负面学业后果。在工具包的第一阶段，我们将与该领域的专家小组进行形成性研究，与家长和教师进行在线需求评估，以及由家长/教师/管理员组成的基层项目开发团队。然后，我们将开发工具包原型，它将包括打印的家长和教师指南以及网站架构计划。最后，我们将对原型进行可行性评估

DESCRIPTION (provided by applicant): The objective of this Fast Track Small Business Innovation Research (SBIR) application, submitted by KDH Research and Communication (KDHRC), is to develop and evaluate the School TIME Toolkit (Toolkit) to support parents and teachers of elementary school-aged children who have a chronic illness and intermittent school attendance (CICISA). Children with chronic illnesses, such as asthma, cancer, diabetes and other illnesses with physical and medical effects lasting longer than three months are at risk of intermittent school absences which can negatively impact their academic and psychosocial outcomes. The burden of navigating and securing school services and easing transitions into and out of school because of absences falls heavily on the parents and teachers of CICISA and can result in their increased stress, depression, and anxiety. The Toolkit aims to reduce this burden by increasing parents' and teachers' knowledge, attitudes, and self-efficacy toward managing the educational needs of CICISA, providing parents and teachers with practical skills to understand, navigate, and advocate for school services for CICISA, and also decrease their stress and increase their coping abilities. Armed with these improved skills and lower stress, teachers and parents will then contribute to a more supportive school environment for CICISA characterized by greater access to school. The Toolkit will be a comprehensive, evidence-based, integrated set of print and multimedia materials, hosted on an interactive website. The need for the Toolkit is significant. Approximately 4.4 million children with a chronic illness in te United States experience disruption to school because of their illness. Parents and teachers are key players in helping CICISA access school services, navigating transitions into and out of school because of absences, and establishing support to help CICISA succeed. However, parents and teachers face multiple challenges in providing CICISA with the support they need, and the resulting burden can lead to increased risk for stress and depression. With proper support, however, such as that offered by the Toolkit, parents and teachers can help CICISA spend more time in school and avoid the negative academic consequences often associated with chronic illness and intermittent absence. In Phase I of the Toolkit, we will conduct formative research with a panel of experts in the field, an online needs assessment with parents and teachers, and a parent/teacher/administrator grassroots program development team. We will then develop the Toolkit prototype, which will consist of the print parent and teacher guides and a website architecture plan. Finally, we will conduct a feasibility evaluation of the prototype using a quasi-experimental, pretest/post-test group design to examine the extent to which the Toolkit prototype changes parents' and teachers' knowledge, attitudes, and self-efficacy. The Toolkit will be considered feasible if parents and teachers show statistically significant gains in knowledge, attitudes, or self-efficacy from pretest to post test. In Phase II, we will finalize th Toolkit by filming footage of streaming video and programming an interactive website. We will then conduct an outcome evaluation that will include three studies. The first two studies will examine changes in knowledge, attitudes, self-efficacy, skills, and stress/coping from pretest to post test in parents and teachers. The third evaluation will be a case study examination and will explore how use of the Toolkit by parents and teachers can impact the creation of a more supportive school environment for CICISA. Together, the three evaluations will provide information on the evidence-base of the Toolkit as a foundation for dissemination, as well as a wealth of data for academic publishing. In summary, the Toolkit will meet a documented need for greater support for parents and teachers of CICISA. The Toolkit will provide this support and increase parents' and teachers' ability to create a supportive school environment for CICISA, while simultaneously contributing to the scientific literature on the needs of these populations.