Toolkit for parents & teachers of chronically ill children with school absences

家长工具包

• 批准号: 8645665
• 负责人: KRISTEN D HOLTZ
• 金额: $ 57.26万
• 依托单位: KDH RESEARCH AND COMMUNICATION, INC.
• 依托单位国家: 美国
• 财政年份: 2012
• 资助国家: 美国
• 起止时间: 2012-04-01 至 2017-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8645665
• 关键词: Absenteeism; Address; Administrator; Advocate; Affect; Agreement; Anxiety; Architecture; Asthma; Attitude; Benchmarking; Case Study; Child; Chronic Disease; Chronically Ill; Communication Research; Control Groups; Data; Diabetes Mellitus; Diagnosis; Education; Environment; Evaluation; Evaluation Reports; Exposure to; Face; Feedback; Film; Foundations; Health Professional; Healthcare; Instruction; Intervention; Knowledge; Lead; Literature; Logic; Malignant Neoplasms; Medical; Mental Depression; Modeling; Multimedia; Needs Assessment; Outcome; Parents; Participant; Phase; Population; Printing; Program Development; Public Health; Public Health Education; Publications; Publishing; Reporting; Research; Research Proposals; Resources; Risk; School-Age Population; Schools; Secure; Self Efficacy; Services; Small Business Innovation Research Grant; Source; Stream; Stress; Stress and Coping; Surveys; Testing; Time; United States; arm; base; coping; cost effective; design; elementary school; evidence base; experience; falls; health disparity; high school; improved; innovation; medically necessary care; meetings; programs; prototype; psychosocial; skills; teacher; tool; web site

DESCRIPTION (provided by applicant): The objective of this Fast Track Small Business Innovation Research (SBIR) application, submitted by KDH Research and Communication (KDHRC), is to develop and evaluate the School TIME Toolkit (Toolkit) to support parents and teachers of elementary school-aged children who have a chronic illness and intermittent school attendance (CICISA). Children with chronic illnesses, such as asthma, cancer, diabetes and other illnesses with physical and medical effects lasting longer than three months are at risk of intermittent school absences which can negatively impact their academic and psychosocial outcomes. The burden of navigating and securing school services and easing transitions into and out of school because of absences falls heavily on the parents and teachers of CICISA and can result in their increased stress, depression, and anxiety. The Toolkit aims to reduce this burden by increasing parents' and teachers' knowledge, attitudes, and self-efficacy toward managing the educational needs of CICISA, providing parents and teachers with practical skills to understand, navigate, and advocate for school services for CICISA, and also decrease their stress and increase their coping abilities. Armed with these improved skills and lower stress, teachers and parents will then contribute to a more supportive school environment for CICISA characterized by greater access to school. The Toolkit will be a comprehensive, evidence-based, integrated set of print and multimedia materials, hosted on an interactive website. The need for the Toolkit is significant. Approximately 4.4 million children with a chronic illness in te United States experience disruption to school because of their illness. Parents and teachers are key players in helping CICISA access school services, navigating transitions into and out of school because of absences, and establishing support to help CICISA succeed. However, parents and teachers face multiple challenges in providing CICISA with the support they need, and the resulting burden can lead to increased risk for stress and depression. With proper support, however, such as that offered by the Toolkit, parents and teachers can help CICISA spend more time in school and avoid the negative academic consequences often associated with chronic illness and intermittent absence. In Phase I of the Toolkit, we will conduct formative research with a panel of experts in the field, an online needs assessment with parents and teachers, and a parent/teacher/administrator grassroots program development team. We will then develop the Toolkit prototype, which will consist of the print parent and teacher guides and a website architecture plan. Finally, we will conduct a feasibility evaluation of the prototype using a quasi-experimental, pretest/post-test group design to examine the extent to which the Toolkit prototype changes parents' and teachers' knowledge, attitudes, and self-efficacy. The Toolkit will be considered feasible if parents and teachers show statistically significant gains in knowledge, attitudes, or self-efficacy from pretest to post test. In Phase II, we will finalize th Toolkit by filming footage of streaming video and programming an interactive website. We will then conduct an outcome evaluation that will include three studies. The first two studies will examine changes in knowledge, attitudes, self-efficacy, skills, and stress/coping from pretest to post test in parents and teachers. The third evaluation will be a case study examination and will explore how use of the Toolkit by parents and teachers can impact the creation of a more supportive school environment for CICISA. Together, the three evaluations will provide information on the evidence-base of the Toolkit as a foundation for dissemination, as well as a wealth of data for academic publishing. In summary, the Toolkit will meet a documented need for greater support for parents and teachers of CICISA. The Toolkit will provide this support and increase parents' and teachers' ability to create a supportive school environment for CICISA, while simultaneously contributing to the scientific literature on the needs of these populations.

描述(由申请人提供)：本快速通道小型企业创新研究(SBIR)申请的目的是开发和评估学校时间工具包(工具包)，以支持患有慢性病和间歇性上学的小学适龄儿童的父母和教师(CICISA)。患有慢性疾病的儿童，如哮喘、癌症、糖尿病和其他身体和医疗影响超过三个月的疾病，有间歇性缺课的风险，这可能对他们的学业和心理社会成绩产生负面影响。CICISA的家长和教师肩负着导航和确保学校服务以及缓解因缺课而进出学校的负担，并可能导致他们增加压力、抑郁和焦虑。该工具包旨在通过增加家长和教师在管理CICISA教育需求方面的知识、态度和自我效能来减轻这一负担，为家长和教师提供理解、导航和倡导CICISA学校服务的实用技能，并减轻他们的压力和提高他们的应对能力。有了这些提高的技能和较低的压力，教师和家长将为CICISA创造一个更具支持性的学校环境，其特点是更容易入学。工具包将是一套全面的、以证据为基础的综合印刷和多媒体材料，放在一个互动网站上。对工具包的需求是巨大的。在美国，约有440万患有慢性病的儿童因其疾病而中断上学。家长和教师是帮助CICISA获得学校服务的关键参与者，帮助CICISA适应因缺课而进入和离开学校的过渡，并建立帮助CICISA成功的支持。然而，家长和教师在向CICISA提供他们需要的支持方面面临着多重挑战，由此产生的负担可能会导致压力和抑郁的风险增加。然而，在适当的支持下，如工具包提供的支持，家长和教师可以帮助CICISA花更多的时间在学校，避免经常与慢性病和间歇性缺课相关的负面学业后果。在工具包的第一阶段，我们将与该领域的专家小组一起进行形成性研究，与家长和教师进行在线需求评估，以及家长/教师/管理员基层项目开发团队。然后我们将开发工具包原型，它将包括印刷的家长和教师指南以及网站架构计划。最后，对样机进行可行性评估。 使用准实验、前测/后测小组设计来检验工具包原型在多大程度上改变了家长和教师的知识、态度和自我效能感。如果家长和教师在以下方面表现出统计上的显著进步，该工具包将被认为是可行的 从前测到后测的知识、态度或自我效能感。在第二阶段，我们将通过拍摄流媒体视频的镜头和设计一个互动网站来最终确定TH工具包。然后，我们将进行一项结果评估，其中将包括三项研究。前两项研究将考察父母和教师从考试前到考试后在知识、态度、自我效能、技能和压力/应对方面的变化。第三次评估将是个案研究考试，将探讨家长和教师对工具包的使用如何影响为CICISA创造更具支持性的学校环境。这三项评价将共同提供关于工具包作为传播基础的证据基础的信息，以及用于学术出版的大量数据。总而言之，该工具包将满足为CICISA的家长和教师提供更大支持的有据可查的需求。工具包将提供这方面的支持，并提高家长和教师的能力，为CICISA创造一个支持性的学校环境，同时促进关于这些人口需求的科学文献。