Improving Quality of Life and Quality of Care for Oncology Family Caregivers

描述（由申请人提供）：本培训计划的最终目的是提高受亲人癌症影响的患者的护理质量和生活质量。该建议使用生活质量模型（QOL）来解决与癌症及其治疗相关的身体，社会，心理和精神问题。家庭照护者（FC）虽然受到亲人癌症诊断的深刻影响，但大多数主要关注患者身体需求的医疗保健提供者只给予很少的关注。该提案的主要目的是制定和实施一项关于癌症家庭护理的国家教育方案，这将通过每年为50个癌症治疗中心（共400个）的两名专业人员举办四次讲习班来实现。额外的传播方法和广泛的评价将为项目期间以后保健专业人员的继续教育奠定基础。具体目标包括：1。开发一个全面的FC课程，以培训来自癌症中心的跨学科专业观众。专业观众将包括护士、医生和社会工作者作为第一梯队，牧师、心理学家、健康教育工作者和其他专业人士作为第二梯队。2. 通过国家癌症研究所指定的临床和综合癌症中心，以及通过社区癌症中心协会（ACCC）确定的社区癌症中心，在国家讲习班上竞争性地挑选工作人员，实施家庭护理课程。3. 通过测量对家庭照顾者的教育活动的过程和结果以及参与者发起的影响家庭照顾者的改变努力来评估本课程的影响。4. 通过同行评审的出版物、各种肿瘤学组织和专业网络传播研究结果，并建立课程参与者网络，向参与的癌症中心的工作人员分享传播FC课程的经验。从个体课程参与者、跨学科团队和机构的特点来描述与癌症中心项目行动传播相关的成功和问题。

DESCRIPTION (provided by applicant): The ultimate aim of this training proposal is to improve quality of care and quality of life for those impacted by a loved one's cancer across the trajectory of illness. This proposal uses a quality of life model (QOL) to address physical, social, psychological and spiritual concerns associated with cancer and its treatment. Family caregivers (FC), although profoundly impacted by a loved one's cancer diagnosis, have received only minimal attention by most healthcare providers who are focused primarily upon the physical needs of the patient. The primary aim of this proposal is to develop and implement a national education program on family caregiving in cancer and this will be achieved through four annual workshops for two professionals each from 50 cancer treatment centers (total of N=400). Additional dissemination methods and an extensive evaluation will provide a basis for the continuing education of health care professionals beyond the project period. Specific Aims include: 1. Develop a comprehensive FC curriculum for training an interdisciplinary professional audience from cancer centers. The professional audience will include nurses, physicians and social workers as a first tier, and chaplains, psychologists, health educators and other professionals as a second tier. 2. Implement the Family Caregiving curriculum in national workshops to competitively selected staff from National Cancer Institute-designated clinical and comprehensive cancer centers, and community cancer centers as identified through the Association of Community Cancer Centers (ACCC). 3. Evaluate the impact of this curriculum by measuring process and outcomes of the educational activities on family caregivers and change-efforts initiated by the participants that impact family caregivers. 4. Disseminate the findings through peer-reviewed publications, various oncology organizations and professional networks and develop a network of course participants to share experiences in dissemination of the FC curriculum to the staff of participating cancer centers. Describe successes and issues related to dissemination of project actions in cancer centers in terms of the characteristics of individual course participants, interdisciplinary teams, and institutions. This proposal is consistent with the NCI Cancer Plan for 2008 strategic goal to "Improve the Quality of Life for Cancer Patients, Survivors and their families". PUBLIC HEALTH RELEVANCE: The ultimate aim of this training proposal is to improve quality of care and quality of life for family caregivers impacted by a loved one's cancer across the trajectory of illness. The primary aim of this proposal is to develop and implement a national education program on family caregiving in cancer and this will be achieved through four annual workshops for two professionals each from 50 cancer treatment centers. Thus a total of 400 participants is planned. Additional dissemination methods and an extensive evaluation will provide a basis for the continuing education of health care professionals beyond the project period.