Mind-Body E-Portal: A Practice-to-Research Platform for Consumer-Driven Wellness

描述(由申请者提供)：这个第一阶段项目有两个相互关联的长期目标。两者都与发展整体健康的循证计划和以实践为基础的补充和替代医学(CAM)研究社区有关。首先，我们寻求建立、测试和传播一个基于互联网的健康计划，为气功的自我护理实践提供指导、指导和社会支持。气功是一种基于传统中医的冥想运动、放松和自我按摩，在临床试验研究中显示出积极的健康效果。其次，该项目将作为一个研究工具，收集用户关于健康和气功练习的信息(在知情同意后)，并监测练习的影响。对这个项目的需求是基于人们对气功的日益增长的兴趣，对其有效性的证据，对消费者驱动的CAM实践的有限研究，对CAM的互联网(包括社交网络)的扩展，以及全系统研究的增长。作为一种商业产品，该计划将包括自我评估、访问解决评估中确定的问题的实践模块、社交网络、指导、规划(日历)和其他资源。该计划有可能满足医学研究所(2005)对CAM的两项建议，以开发(1)由收集关于CAM模式的数据的站点组成的哨点监测系统和(2)基于实践的CAM研究网络。目前的项目有三个目标：(目标1)开发一个具有易于使用的健康指导工具的原型。该原型将以一种方式呈现气功，以解决用户通过动态自我评估工具确定的担忧。第一阶段将开发一个工具原型，包括显示反馈和气功练习的链接。(目的2)通过收集初学者(n=30)和高级气功练习者(n=30)的反应，对该计划进行试点测试。用户将对该计划的内容、获得的知识以及该计划增进健康的潜力进行评分。(目标3)利用试点测试结果确定第二阶段生产的修订。该项目团队包括一名气功高级教师，他的职业生涯包括30多年的实践经验，撰写过关于气功的书籍，并担任过气功国家顾问。顾问包括来自CAM领域的科学家和一名电子学习专家，他们都将就程序设计和对第一阶段调查结果的解释提供建议。首席调查员(在循证健康研究方面有既定的记录)以前曾与软件开发小组合作建立电子健康协议。PI、软件小组和气功老师为原型开发制定了非常具体的计划/里程碑。这项试点研究旨在为分析和第二阶段全计划开发提供丰富的调查数据集。这包括关于谁可能是此类项目的最佳候选者(初学者与高级用户，或那些具有特定症状特征的人)以及其可能产生的影响的初步证据，这将对规划未来的临床研究至关重要。第一阶段计划包括公布这些分析的结果。 公共卫生相关性：许多人在没有咨询专业人员的情况下，在补充和替代医学(CAM)中使用整体(身心)健康实践进行健康护理，而且对这种自我护理行为的背景、过程和结果知之甚少。拟议的项目与公共卫生有关，旨在了解这些过程，同时促进已知对健康有积极影响的CAM做法。该项目将开发一个高度互动的、基于互联网的学习工具，展示中医简单的气功练习(温和的运动、放松和自我按摩)。它的设计将吸引更广泛的用户群体。关于实践和结果的试点数据将促进对消费者驱动的CAM的了解。

DESCRIPTION (provided by applicant): This Phase I project has two long-term and interrelated objectives. Both pertain to developing an evidence- based program in holistic wellness and a practice-based research community for the study of complementary and alternative medicine (CAM). First, we seek to build, test, and disseminate an Internet-based wellness program that gives instruction, guidance, and social support for the self-care practice of Qigong (pronounced "chee-gong") - a form of meditative movement, relaxation, and self-massage based in Traditional Chinese Medicine and showing positive health effects in clinical trials research. Second, the program will function as a research tool, collecting user information (following informed consent) about health and Qigong practices and monitor the impact of practice. The need for this program is based on growing popular interest in Qigong, evidence for its effectiveness, limited research on consumer-driven CAM practices, expansion of the Internet (including social networking) for CAM, and growth in whole-systems research. As a commercial product, the program will include self-assessments, access to practice modules that address issues identified in assessments, social networking, coaching, planning (a calendar), and other resources. The program has the potential to address two Institute of Medicine (2005) recommendations for CAM, to develop (1) a sentinel surveillance system composed of sites that collect data on patterns of CAM and (2) practice-based CAM research networks. The current project has three aims: (Aim 1) Develop a prototype with easy to use, health instruction tools. The prototype will present Qigong in ways that address concerns users identify via a dynamic self-assessment tool. Phase I will develop a tool prototype, including display of feedback and links to Qigong practices. (Aim 2) Pilot test the program by obtaining reactions from novice (n=30) and more advanced (n=30) Qigong practitioners. Users will rate program content, knowledge gained, and potential for the program to enhance health. (Aim 3) Utilize pilot test findings to identify revisions for Phase II production. The project team includes an advanced teacher of Qigong whose career includes more than 30 years of practice experience, authoring books on Qigong, and service as a national advisor on Qigong. Consultants include scientists from the field of CAM and an expert in e-learning, all of whom will advise on program design and interpretation of Phase I findings. The Principal Investigator (with an established track record in evidence-based wellness research) has worked previously with the software development group in building e-health protocols. The PI, software group, and Qigong teacher have laid out very specific plans/milestones for prototype development. The pilot study is designed to yield a rich set of survey data for analysis and Phase II full-program development. This includes preliminary evidence regarding who might be the best candidates for such a program (beginners versus advanced users, or those with particular symptom profiles) and what its effects might be, which will be vital to planning future clinical research. Phase I plans include publishing results from these analyses. PUBLIC HEALTH RELEVANCE: Many individuals use holistic (mind-body) wellness practices for health care in complementary and alternative medicine (CAM) without consulting professionals and little is known about the contexts, processes, and outcomes of such self-care behavior. The proposed project is relevant to public health in aiming to understand these processes while also promoting CAM practices known to have positive health impact. The project will develop a highly interactive, Internet-based learning tool to present Simple Qigong practices (gentle movement, relaxation, and self-massage) from Traditional Chinese Medicine. It will be designed to appeal to a wide group of users. Pilot data on practice and outcomes will advance knowledge of consumer-driven CAM.