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中文摘要
翻译
研究阿尔茨海默病(AD)的新药和诊断方法是至关重要的,需要大量患者和正常对照组。这是加州大学洛杉矶分校阿尔茨海默病研究中心(ADRC)的主题。加州大学洛杉矶分校ADRC的招募和教育核心(REC)的目标是招募参与者、在研究项目期间保留受试者以及确保代表更大疾病人群的研究人群。区域经济共同体已获得大量资源,使这些目标的实现成为现实。REC将参与一系列独特和创新的招聘、留住、社区推广和教育战略。REC赞助了各种教育会议,其中许多都是与阿尔茨海默氏症协会等社区组织合作完成的。AD研究的一个明显需要是增加少数民族的代表性。在上一个赠款周期中,REC达到了20,000名教育活动参与者,其中包括1000名临床医生和900多名少数民族 社区成员。委员会在新的赠款周期中开展了一系列面向少数群体的强有力的活动。作为这项提议的新成员,REC将发展非洲裔美国人和西班牙裔社区咨询委员会,以指导少数族裔招聘工作。REC还将与Healthcare Communications Group合作,提高公众对AD研究的认识,并与Primed Institute合作,教育初级保健医生AD管理指南以及增加研究转介的必要性。区域经济共同体将继续与亚洲发展研究中心的其他核心机构密切合作。这包括与数据管理和统计核心的合作,以更好地估计所需研究对象的数量;与临床核心的合作,以确保为统一数据集(UDS)适当收集数据;与神经病理学核心的合作,以成功地举办临床病理会议(CPC);以及与行政核心的合作,以确保中心网站和其他工具的最大功能,使受试者、捐赠者和一般社区了解中心的活动。将持续评估所有REC活动是否成功。这包括对登记的研究对象的来源进行持续监测。评估将决定未来的方案和资源使用情况。
英文摘要
Research investigating new medications and diagnostics for Alzheimer's disease (AD) is critical and will require large numbers of patients and normal control individuals. This "therapeutic imperative" is the theme of the Alzheimer Disease Research Center (ADRC) at UCLA. Recruitment of participants, retention of subjects for the duration of research projects, and the assurance of research populations that are representative of the larger disease population are the objectives of the Recruitment and Education Core (REC) at the UCLA ADRC. The REC has been infused with substantial resources to make accomplishment of these objectives realistic. The REC will engage in a wide number of unique and innovative recruitment, retention, community outreach, and educational strategies. The REC sponsors a variety of educational conferences, many of which are done in partnership with community organizations such as the Alzheimer's Association. A clear need in AD research is to increase representation of minorities. In the last grant cycle, REC reached 20,000 educational event attendees, including 1000 clinicians and over 900 minority community members. REC has a robust array of minority-oriented activities for the new grant cycle. New to this proposal, the REC will develop of African American and Hispanic Community Advisory Boards to guide minority recruitment efforts. The REC will also partner with Healthcare Communications Group to increase public awareness of AD research, and with the PriMed Institute to educate primary care physicians on AD management guidelines and the need for increased referrals to research. The REC will continue to work closely with the other Cores of the ADRC. This includes collaborations with the Data Management and Statistics Core to better estimate the number of needed research subjects; with the Clinical Core to ensure the proper collection of data for the Uniform Data Set (UDS); with the Neuropathology Core to conduct the successful ClinicoPathologic Conference (CPC); and with Administrative Core to ensure the maximal functionality of the Center website and other tools to keep subjects, donors, and the general community aware of the Center's activities. All REC activities will be continually evaluated for success. This includes a constant monitoring of the sources of enrolled research subjects. Evaluations will dictate future programs and resource use.
期刊论文(0)
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会议论文
Patient and Family Member Reactions to Biomarker-Informed ADRD Diagnoses
Collaborative Approach for Asian Americans, Native Hawaiians, and Pacific Islanders Research and Education (CARE) 2.0
Summer Medical student Aging and Alzheimer disease Research Training (SMAART) program
  • 批准号:
    10617758
  • 项目类别:
  • 资助金额:
    $6.85万
  • 财政年份:
    2022
  • 负责人:
    Joshua Grill
  • 依托单位:
NIA/AA for Institute on Methods and Protocols for Advancement of Clinical Trials in ADRD (NIA/AA IMPACT-AD Course)