Coming Together to Advance Minority Cancer Survivorship Research: First Symposium Focused on African American Survivors

描述（由申请人提供）：有必要超越癌症相关结果中记录的种族差异，并朝着改善少数癌症幸存者的生存率和生活质量的方向前进。拟议的研讨会旨在通过提供一个独一无二的论坛来审查科学状况，并为未来的举措制定议程，以推进少数癌症幸存者的成果，从而实现这一飞跃。通过这项提议，我们寻求NIMHD的资助，将生存和差异研究方面的专家聚集在一起，专门解决非裔美国人的癌症生存问题。我们将深入讨论，研究沿着从诊断到生命结束的护理连续体，以及与招募和保留相关的研究挑战。非裔美国幸存者将参与规划和实施专题讨论会：他们的观点将反映在专题讨论会的所有讨论和成果中。具体目标是：1）讨论当前关于种族差异的知识状况，结果沿着生存连续体，以及非洲裔美国人幸存者面临的具体挑战; 2）交流和讨论有关当前干预措施的成功和非洲裔美国人幸存者的可接受性的信息; 3）定义和讨论差异研究中与幸存者有关的生物伦理学考虑，并解决有关非裔美国人癌症幸存者参与研究和计划以提高其生存率的问题和潜在解决方案;四、为非裔美国人癌症生存率研究议程提出建议，包括开展新的研究和干预措施针对幸存者，卫生保健专业人员和/或社区;和5）制定研讨会的概要，可以在美国广泛分发。该研讨会将在伯明翰的亚拉巴马大学（UAB）召开，紧接着美国预防肿瘤学会（ASPO）年会也于2015年3月14日至17日在UAB举行。UAB综合癌症中心的癌症生存工作组将作为组织委员会，并将与科学咨询委员会合作计划研讨会，该委员会包括来自全国各地的癌症生存，差异和生物伦理学方面的公认研究人员。拟议的研讨会创新地结合了来自不同学科的研究人员的观点，他们可能不会聚集在一起讨论癌症生存率的差异，以及作为本研究最终利益相关者的幸存者的观点。这个论坛不同于任何其他可用的场所，深入讨论癌症生存率的种族差异;因此，它将对改善疾病控制和增强健康的整体NIH目标以及NIMHD的目标做出重大贡献和影响，为所有美国人提供平等的机会，以获得长寿，健康和富有成效的生活。

DESCRIPTION (provided by applicant): There is a need to move beyond the documented racial disparities in cancer-related outcomes and to advance towards improving survivorship and quality of life of minority cancer survivors. The proposed symposium aims to take this leap forward by providing a one-of-a-kind forum for reviewing the state of the science and set an agenda for future initiatives to advance the outcomes of minority cancer survivors. With this proposal, we seek funding from NIMHD to bring together experts in survivorship and disparities research to specifically address cancer survivorship in African Americans. We will discuss in depth, research along the continuum of care from diagnosis to end-of-life, as well as research challenges related to recruitment and retention into research studies. African American survivors will be involved in planning and implementing the symposium: their perspective will be reflected in all discussions and products resulting from this symposium. The specific aims are: 1) Discuss the current state of knowledge regarding racial disparities in outcomes along the survivorship continuum, and the specific challenges facing African American survivors; 2) Exchange and discuss information about current interventions' success and acceptability among African American survivors; 3) Define and discuss bioethical considerations in disparity research as it relates to survivors, and address issues and potential solutions regarding enrollment and engagement of African American cancer survivors in research studies and programs to improve their survivorship; 4) Develop recommendations for a research agenda on African American cancer survivorship that includes the development of new studies and interventions that target survivors, health care professionals, and/or the community; and 5) Develop a synopsis of the symposium that can be widely distributed across the US. The symposium will be convened at the University of Alabama at Birmingham (UAB), immediately preceding the American Society of Preventive Oncology (ASPO) annual meeting which is also held at UAB on March 14-17, 2015. The Cancer Survivorship Working Group of the UAB Comprehensive Cancer Center will serve as the Organizing Committee, and will plan the symposium in collaboration with a Scientific Advisory Committee that includes recognized researchers in cancer survivorship, disparities, and bioethics from around the nation. The proposed symposium innovatively combines perspectives of researchers from different disciplines who may not otherwise gather to discuss disparities in cancer survivorship, and the perspectives of survivors who are the ultimate stakeholders of this research. This forum is unlike any other available venue to discuss in depth, racial disparities in cancer survivorship; therefore, it will make a significant contribution and impact on the overall NIH goals of improving disease control and enhancing health, and on the goals of the NIMHD to provide all Americans with an equal opportunity to a long, healthy and productive life.