Center for Innovation in Sleep Self-Management (CISSM)

摘要-概述 睡眠自我管理创新中心的使命是促进护理 通过开发、测试和实施自我管理干预措施来实现科学 帮助患有慢性病的成年人和儿童睡得更好，同时提高睡眠质量的技术 健康、幸福和生活质量。睡眠不足(例如，在睡眠中断时，睡眠不足， 或睡眠质量差)在慢性病中很常见，并直接导致白天功能的下降， 与健康相关的生活质量，提高卫生保健利用率，1，2，并与发病率和 死亡率。3、4通常患有慢性病的成年人和儿童，他们报告的生活质量较差，也有显著的 睡眠不足。制定、测试和传播了5个自我管理干预方案 特定的慢性疾病，如糖尿病、关节炎、艾滋病毒和背痛。7认知行为疗法(CBT) 因为失眠对患有失眠和疼痛的老年骨关节炎患者的睡眠改善是有效的 然而，这些研究中很少有新的移动技术同时用于监控自我管理技能 和症状，以解决睡眠不足，这是普遍存在的慢性病。使用新的移动电话 技术将促进个人自我监控和可视化他们的睡眠、症状和 行为数据，并帮助他们可能在日常基础上采取适当的行动。发展中的 使用技术的有效睡眠自我管理干预将使患者和他们的 并有可能改善慢性病患者的健康和医疗保健结果 生病了。 在前华盛顿大学管理研究中心成功的基础上 睡眠障碍(UW-CRMSD，2009-2014)，新的CSSM的总体目标是提供研究 资源，以协助新的和早期的职业生涯阶段的研究人员在设计、测试和 传播自我管理干预措施，融合改善睡眠和影响健康的技术 慢性病背景下的卫生保健结果。CSSM的创新是对 技术辅助的睡眠自我管理干预。该机制的目标是： 1)增加新的和职业生涯早期阶段的护理调查人员进行自我研究的人数 使用技术改善个人睡眠和日间功能的管理干预 患有慢性病。 2)利用现有资源和开发新的资源和工具，以便跨研究共享数据；以及 将特定于自我管理研究的通用数据元素整合到试点项目中。 3)整合现有技术并设计新技术，以提高个人自我管理能力 以改善健康结果为目标的睡眠。 4)促进成人和儿童在睡眠自我管理方面的跨学科合作 慢性病。 之前的UW-CRMSD创建了坚实的基础设施和跨学科的学术环境， 为睡眠自我管理研究的重点领域提供了基础。在CSSM范围内，我们将 加强和扩大现有基础设施，新的重点是信息学和以患者为中心 技术工具。该应用程序包括两个试点项目，首席调查员是一个新的 调查员(桑尼)和职业生涯早期的调查员(扎斯拉夫斯基)。试点项目选自 根据该项目的目标与CSSM主题的一致性而建立的潜在应用程序池。措施 睡眠不足、日间功能和健康结果的通用数据元素(CDE)(例如PROMIS 睡眠障碍、疼痛、全球健康)和自我管理干预组成部分(如自我效能、 激励、患者激活)与CISSM的概念框架一致，并与其他 针对试点的特定人群和慢性病重点采取适当的措施。《信息安全与安全管理》 环境将为试点项目调查人员提供充足的跨学科资源和指导 来自UW(跨学科转化健康科学[ITHS；UW-CTSA名称]内的机构， 康复结果研究中心(UWCORR)、信息学中心和以患者为中心 技术(CIPCT)、人类设计中心和工程(HDCE)，并附属于西雅图大学 儿童研究所、西雅图儿童医院(SCH)以及社区 (EraLiving)。该中心包括三个核心：1)行政(AC)，2)试点项目(PPC)；3)信息学 和以患者为中心的技术(IPCT)核心。对新调查员的持续鉴定和指导 被视为创新睡眠自我管理策略的成功和可持续性的关键 在威斯康星大学做研究。大学和华盛顿大学护理学院(SON)将为3名学生提供财政支持 在5年内开展更多试点项目。我们将使用NINR中心董事逻辑模型来评估 中心的进展、成果和确保可持续性。9

ABSTRACT – OVERVIEW The mission of the Center for Innovations in Sleep Self-Management (CISSM) is to advance nursing science through the development, testing, and implementation of self-management interventions that use technology to assist adults and children with chronic illnesses to sleep better and simultaneously improve health, well-being, and quality of life. Sleep deficiency (e.g., as in disrupted sleep, an inadequate amount of, or poor quality sleep) is common in chronic illness and directly contributes to decrements in daytime function, health related quality of life, increased health care utilization,1,2 and is associated with increased morbidity and mortality.3,4 Often adults and children with chronic illness, who report poor quality of life, also have significant sleep deficiency.5 Self-management intervention programs have been developed, tested and disseminated for specific chronic illnesses such as diabetes,6 arthritis, HIV and back pain.7 Cognitive behavioral therapies (CBT) for insomnia are effective for improving sleep in older adults with osteoarthritis with insomnia and pain.8 However, few of these studies incorporated new mobile technologies both to monitor self-management skills and symptoms to address sleep deficiency, which is ubiquitous in chronic illnesses. Use of new mobile technologies will facilitate the ability of individuals to self-monitor and visualize their sleep, symptoms, and behavioral data and aid them in taking appropriate actions on potentially a daily basis. Development of effective sleep self-management interventions that use technology will empower patients and their caregivers and has the potential to improve health and health care outcomes of individuals living with a chronic illness. Building on the success of the previous University of Washington Center for Research on the Management of Sleep Disturbances (UW-CRMSD, 2009-2014), the overall goal for the new CISSM is to provide research resources to assist new and early career stage investigators to develop expertise in designing, testing, and disseminating self-management interventions that integrate technology to improve sleep and impact health and health care outcomes in the context of chronic illnesses. The innovation of CISSM is the development of technology-assisted sleep self-management interventions. The aims of the CISSM are to: 1) Expand the number of new and early career stage nursing investigators conducting research on self- management interventions that use technology to improve sleep and daytime function in individuals living with a chronic illness. 2) Leverage existing and develop new resources and instruments for data sharing across studies, and integrate common data elements specific to self-management research into the Pilot Projects. 3) Integrate existing and design new technologies that increase the ability of individuals to self-manage their sleep with the goal of improving health outcomes. 4) Promote interdisciplinary collaborations specific to sleep self-management in adults and children with chronic illness. The previous UW-CRMSD created a solid infrastructure and interdisciplinary scholarly environment that provides the foundation for a focused area of sleep self-management research. Within the CISSM, we will strengthen and expand the existing infrastructure with a new emphasis on informatics and patient-centered technology tools. Two pilot projects are included with this application and the Principal Investigators are a new investigator (Sonney) and an early career stage investigator (Zaslavsky). The Pilot Projects were selected from a pool of potential applications based on the congruency of the project aims with the CISSM themes. Measures of common data elements (CDEs) for sleep deficiency, daytime function and health outcomes (e.g. PROMIS sleep disturbance, pain, global health) and the self-management intervention components (e.g. self-efficacy, motivation, patient activation) are consistent with the CISSM's conceptual framework and integrated with other measures appropriate for the specific population and chronic illness focus of the pilot project. The CISSM environment will provide the Pilot Project Investigators with ample interdisciplinary resources and mentorship from agencies inside the UW (Interdisciplinary Translational Health Science [ITHS; name of UW-CTSA], Center for Outcomes Research in Rehabilitation (UWCORR), Center for Informatics and Patient-Centered Technology (CIPCT), Human Design Center and Engineering (HDCE), and affiliated with the UW (Seattle Children's Research Institute [SCRI], and Seattle Children's Hospital (SCH), as well as the community (EraLiving). The Center includes three cores: 1) Administrative (AC), 2) Pilot Project (PPC); and 3) Informatics and Patient Centered-Technologies (IPCT) Core. Continued identification and mentorship of new investigators is viewed as critical to the success and sustainability of innovative sleep self-management strategies and research at the UW. The University and UW School of Nursing (SoN) will provide financial support for 3 additional Pilot Projects over the 5-year period. We will use the NINR Center Directors' logic model to evaluate the Center's progress, outcomes, and to ensure sustainability.9