Personal Health Information Needs and Practices for Maternal Fetal Care

描述（由申请人提供）：拟议的研究调查孕妇及其护理人员的特征，信息需求和信息管理实践，为健康信息技术的设计提供信息。孕妇有各种各样的重要信息需求，从关于怀孕的医疗问题到关于医院政策的后勤问题。配偶等个人可以合伙照顾母亲和婴儿。这些照顾者具有独特的特征、信息需求和偏好。人们对这些需求知之甚少，无论是这些需求是否得到满足，还是用于管理这些需求的资源。妥善解决这些需求可以改善产前护理和孕产妇和胎儿的结果。病人和家属越来越多地采用从因特网网站到先进的病人门户网站等各种保健信息技术。这些技术可以满足信息需求，但在使用这些技术时也出现了种族和族裔差异。复杂的社会、经济和认知因素很可能有助于使用技术的意愿。了解病人和护理人员的特点，信息需求和偏好可以指导设计和支持采用卫生信息技术。该项目将创建一个广泛的知识库的特点，信息需求和管理策略的孕妇和照顾者看到在集团产前护理设置在范德比尔特中心妇女健康和在少年联盟胎儿中心在范德比尔特。研究小组将评估的特点，能力和信仰使用验证的调查，访谈，并在怀孕期间和怀孕后的间隔家访。将评估人口统计学、社会经济因素、健康素养、计算能力、压力水平、控制点、技术使用和技能、情绪、嗜睡和家庭环境。网站，博客和微博的使用将被研究。信息需求，管理策略和偏好将通过连续访谈和参与者日志来确定。这项工作将描述信息需求的类型，它们发生的背景，以及用于满足它们的资源。将使用疾病轨迹概念框架来定义需求模式和管理策略。参与者将接受培训，使用MyHealthAtVanderbilt患者门户网站，研究小组将研究如何使用该门户网站来满足信息需求。特征、能力和信念将与信息需求、管理策略和门户使用相关。这项研究将产生一个强大的理解消费者的健康信息需求，管理策略，并在围产期设置的偏好，并将提供广泛的设计指导创建相关的健康信息技术的孕妇和他们的照顾者使用既定的人因工程和以用户为中心的设计方法。

DESCRIPTION (provided by applicant): The proposed research investigates the characteristics, information needs, and information management practices of pregnant women and their caregivers to inform the design of health information technologies. Pregnant women have widely varied and important information needs, ranging from medical questions about pregnancy to logistical concerns about hospital policies. Individuals such as spouses may partner in the care of the mother and baby. These caregivers have unique characteristics, information needs, and preferences. Little is known about these needs, whether they are met, or the resources used to manage them. Adequately addressing such needs can improve prenatal care and maternal and fetal outcomes. Patients and families are increasingly adopting health information technologies ranging from Internet web sites to sophisticated patient portals. Such technologies can meet information needs, but concerning racial and ethnic disparities have been observed in their use. Complex social, economic, and cognitive factors are likely to contribute to the willingness to use technologies. Knowledge about patient and caregiver characteristics, information needs, and preferences could guide the design and support the adoption of health information technologies. This project will create an extensive knowledge base of characteristics, information needs, and management strategies of pregnant women and caregivers seen in the group prenatal care setting at the Vanderbilt Center for Women's Heath and at the Junior League Fetal Center at Vanderbilt. The research team will assess characteristics, capacities, and beliefs using validated surveys, interviews, and home visits at intervals during and after pregnancy. Demographics, socioeconomic factors, health literacy, numeracy, stress level, locus of control, technology usage and skills, mood, sleepiness, and home environment will be evaluated. Web site, blog, and micro-blog use will be studied. Information needs, management strategies, and preferences will be determined using sequential interviews and participant journals. This work will describe the types of information needs, the contexts in which they occur, and resources used to meet them. Patterns of needs and management strategies will be defined using the illness trajectory conceptual framework. Participants will be trained to use the MyHealthAtVanderbilt patient portal, and the research team will study how this portal is employed to meet information needs. Characteristics, capacities, and beliefs will be correlated with information needs, management strategies, and portal usage. This study will produce a robust understanding of consumer health information needs, management strategies, and preferences in perinatal setting and will provide broad design guidance for the creation of relevant health information technologies for pregnant women and their caregivers using established human factors engineering and user-centered design methods.