Addressing health disparities among understudied women in the deaf and hard of hearing population

行政补充(非-AG-18-039)的目的是扩展现有的 关注聋人妇女健康的研究。目前广泛使用的美国国立卫生研究院资助的患者报告 结果测量系统(PROIS)包括评估全球、物理、 从患者的角度来看，心理健康和社会健康。PROMIS严重依赖于 英语，这是使用美国手语(ASL)的DHH患者的严重障碍 并表现出较低的英语水平。我们通过以下方式解决了这一知识差距 ASL中患者报告调查和原始数据的创新跨文化翻译 从一大批有代表性的早期耳聋成人样本中收集。在这 妇女健康行政补充，我们将遵循与父母相同的协议 R01，从文化上适应和在语言上验证妇女健康相关措施。样本 将包括100名DHH中老年妇女，为小组分析提供足够的力量。这 在研究策略一节中有进一步的描述。

The purpose of the administrative supplement (NOT-AG-18-039) is to expand existing research to focus on Deaf Women Health. Current widely used NIH-funded patient reported outcome measurement systems (PROMIS) include domains that assess global, physical, mental, and social health from the patient’s perspective. PROMIS is heavily dependent on English, which is a serious barrier to DHH patients who use American Sign Language (ASL) and demonstrate low English proficiency. We addressed this knowledge gap through innovative cross-cultural translation of patient reported survey in ASL and primary data collection from a large representative sample of adults with early deafness. In this administrative supplement for women health, we will follow the same protocol, as in the parent R01, to culturally adapt and linguistically validate women health-related measures. The sample will include 100 DHH mid-to-older women, providing adequate power for group analyses. This is further described in the research strategy section.