Designing Computer-Mediated Communication Supports to Improve Social Participation After Traumatic Brain Injury

摘要 社交媒体和其他以计算机为媒介的通信（CMC）平台从根本上改变了 我们工作、生活、建立和维持我们的社交生活。今天，有超过30亿的社交媒体 用户遍布全球，占世界人口的42%。对于残疾人士，CMC有 克服现有社会参与障碍的潜力，特别是对有运动或感觉障碍的个人而言 局限性。然而，目前的CMC社交媒体平台并不是为具有认知能力的个人设计的。 因此，它们没有解决有认知障碍的个人参与社会的障碍。 残疾，包括患有创伤性脑损伤（TBI）的个人，他们在记忆，社交和心理方面有障碍。 感知和社会沟通。患有中重度TBI的成年人报告被社会孤立， 虽然他们确实使用社交媒体进行社交互动和分享经验，但他们这样做的频率低于 他们的未受伤的同行，并报告与可访问性和可用性的重大挑战。CMC已与 增加幸福感和社会联系，减少孤独感，这反过来又与 身体和心理都很健康减少创伤性脑损伤幸存者使用CMC平台的障碍， 改善社会沟通、参与和总体健康结果。这个项目的首要目标是 是为CMC创建基于证据和技术的辅助工具，特别是用于社交媒体，并评估 使用者对这些辅助工具的看法。这些数据将用于制定后续临床试验方案， 将测试CMC技术辅助对TBI成人社会参与的影响。为筹备 临床试验，以测试技术援助的使用对社会参与和健康结果的影响，我们必须首先 开发和测试这项技术，我们在这里做的三个目标：目标1：开发软件 支持TBI成人使用社交媒体的技术;目标2。确定用户感知和使用情况 在未来的临床试验中测试的技术援助和患者特征的模式;目标3。发展临床- 审判提案通过开发、测试和部署技术辅助工具来支持社交媒体 使用和临床试验建议的发展，该项目奠定了减少障碍的关键基础 TBI患者的社会参与和改善社会功能和福祉。我们的研究 团队拥有人机交互，技术开发， TBI中的社会沟通障碍，以患者为中心的结果，以及CMC与健康之间的关系， 要求进行拟议的工作

Abstract Social media and other computer-mediated communication (CMC) platforms have radically changed the way we work, live, and build and maintain our social lives. Today, there are more than three billion social media users worldwide, representing 42% of the world’s population. For individuals with disabilities, CMC has the potential to overcome existing barriers to social participation, particularly for individuals with motor or sensory limitations. However, current CMC social-media platforms are not designed with individuals with cognitive limitations in mind; thus, they do not address barriers to social participation for individuals with cognitive disabilities, including individuals with traumatic brain injury (TBI) who have impairments in memory, social perception, and social communication. Adults with moderate-severe TBI report being socially isolated, and while they do use social media for social interactions and to share experiences, they do so less frequently than their uninjured peers and report significant challenges with accessibility and usability. CMC has been linked to increased feelings of well-being and social connectedness and decreased loneliness, which in turn are linked with positive physical and psychological health. Reducing barriers to CMC platforms for survivors of TBI may improve social communication, participation, and overall health outcomes. The overarching aim of this project is to create evidence- and technology-based aids for CMC, specifically for social media use, and evaluate users’ perceptions of these aids. These data will be used to develop a subsequent clinical trial proposal that will test the effects of CMC technology aids on social participation in adults with TBI. In preparation for the clinical trial to test the effects of technology-aid use on social participation and health outcomes, we must first develop and test the technology, which we do here across three proposed aims: Aim 1: Develop software technology to support social media use by adults with TBI; Aim 2. Determine user perceptions and usage patterns of technology aids and patient characteristics to test in a future clinical trial; Aim 3. Develop a clinical- trial proposal. Through the development, testing, and deployment of technology aids to support social-media use and the development of a clinical-trial proposal, this project lays the critical foundation for reducing barriers to social participation for individuals with TBI and improving social functioning and wellbeing. Our research team possesses the rare combination of expertise in human machine interactions, technology development, social communication impairment in TBI, patient-centered outcomes, and the relation between CMC and well- being required to conduct the proposed work