Caring for Caregivers: Supporting Caregivers of People with Autism Spectrum Disor

描述（由申请人提供）：Danya International，Inc.（Danya），建议继续开发照顾者：支持自闭症谱系障碍患者的照顾者（CFC），这是一个创新的多媒体课程，旨在支持照顾自闭症谱系障碍患者的个人（ASD）。大量的研究针对慢性病和精神障碍患者的照顾者的减压和应对技能。然而，很少有研究被应用于ASD患者的照顾者。为了满足自闭症照顾者的需求，Danya将开发一个模块化的辅导员指南，工作手册，附带的视听节目，照顾者连接网站，以及专业人员和准专业人员的培训材料，以教育和告知自闭症照顾者如何应对与整个生命周期为自闭症患者提供护理相关的常见压力源。CFC的总体目标是为ASD患者的护理人员创建一个创新的心理教育课程，以问题为中心的减压策略和应对技能。通过使用氟氯化碳，目的是照顾者，以提高他们的自我效能有关的应对技能，同时减少他们的压力和负担，通过有效的应对机制。在第二阶段，与主要自闭症组织、专家咨询小组成员、护理人员、专业人员和准专业人员进行的形成性研究将有助于完善CFC材料的其余内容。共同商品基金课程将完成，包括主持人指南、工作手册、视听节目、网站和培训材料的定稿。然后将与有代表性的护理人员用户一起对整个氟氯化碳产品进行全面评价。鉴于我们与自闭症社区合作伙伴建立的关系，以及第一阶段项目的进展，我们预计CFC将成为照顾者的一个独特而吸引人的产品，提供所需的工具和策略，以减轻照顾者的负担，并增加照顾者对有效应对技能的使用。公共卫生相关性：CFC的总体目标是为ASD患者的护理人员创建一个创新的心理教育课程，以问题为中心的减压策略和应对技能。通过使用氟氯化碳，目的是照顾者，以提高他们的自我效能有关的应对技能，同时减少他们的压力和负担，通过有效的应对机制。

DESCRIPTION (provided by applicant): Danya International, Inc. (Danya), proposes to continue development of Caring for Caregivers: Supporting Caregivers of People with Autism Spectrum Disorders (CFC), an innovative, multimedia curriculum designed to support individuals caring for someone with Autism Spectrum Disorders (ASD). A large body of research targets stress reduction and coping skills in caregivers of persons with chronic illnesses and mental disorders. However, little research has yet to be applied to caregivers of individuals with ASD. To meet the needs of autism caregivers, Danya will develop a modular facilitator's guide, workbook, accompanying audiovisual program, Caregiver Connection Web site, and training materials for professionals and paraprofessionals to educate and inform autism caregivers about coping with common stressors associated with providing care for an individual with autism across the lifespan. The overall goal of CFC is to create an innovative psychoeducational curriculum for caregivers of individuals with ASD across the lifespan that centers on problem-focused stress reduction strategies and coping skills. By using CFC, the aim is for caregivers to increase their self-efficacy related to coping skills, while decreasing their rates of stress and burden through effective coping mechanisms. In Phase II, formative research with key autism organizations, expert Advisory Panel members, caregivers, professionals, and paraprofessionals will help to refine the remaining content of the CFC materials. The CFC curriculum will be completed, including the finalization of the facilitator's guide, workbook, audiovisual program, Web site, and training materials. A full- scale evaluation of the entire CFC product will then be conducted with representative caregiver users. Given our established relationships with autism community partners, as well as the progress of the Phase I project, we anticipate CFC will be a unique and engaging product for caregivers that provides needed tools and strategies to reduce caregiver burden and increase caregivers' use of effective coping skills. PUBLIC HEALTH RELEVANCE: The overall goal of CFC is to create an innovative psychoeducational curriculum for caregivers of individuals with ASD across the lifespan that centers on problem-focused stress reduction strategies and coping skills. By using CFC, the aim is for caregivers to increase their self-efficacy related to coping skills, while decreasing their rates of stress and burden through effective coping mechanisms.