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Randomized Controlled Trial of an Internet-based Scleroderma Self-Management Program: A Scleroderma Patient-Centered Intervention Network (SPIN) Study

Randomized Controlled Trial of an Internet-based Scleroderma Self-Management Program: A Scleroderma Patient-Centered Intervention Network (SPIN) Study
基于互联网的硬皮病自我管理计划的随机对照试验:以硬皮病患者为中心的干预网络 (SPIN) 研究
批准号:
343573
负责人:
Thombs Brett D
金额:
$40.94万
依托单位国家:
加拿大
项目类别:
Operating Grants
财政年份:
2016
资助国家:
加拿大
项目状态:
已结题
起止时间:
2016-03-01 至 2019-03-01

项目摘要

项目成果

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中文摘要
翻译
系统性硬化症(SSC),或硬皮病,是一种罕见的疾病,其特征是皮肤增厚和纤维化,并累及内脏,最常见的是肺、胃肠道和心脏。虽然对一些表现的治疗
英文摘要
Systemic sclerosis (SSc), or scleroderma, is a rare disease characterized by thickening and fibrosis of the skin and involvement of internal organs, most commonly the lungs, gastrointestinal tract and heart. While treatments for some of the manifestations
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会议论文
Engaging Patients to Plan the Next 10 Years of the Scleroderma Patient-centered Intervention Network (SPIN): Building on a Successful Patient-Researcher Collaboration
Engaging Patients to Develop a Systemic Program of Patient Engagement in Musculoskeletal and Rare Disease Research: Putting Patients First
Towards Understanding Pain Sources, Patterns, and Barriers to Effective Management in Systemic Sclerosis: A Patient-Researcher Partnership
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