Communicating genetic information in families: practical, legal, social and ethical issues.

这项研究的结果将提供证据，证明人们是否会将遗传风险信息传递给亲属，他们是如何做到的，障碍是什么，他们的偏好是什么。它还将提供数据，以便能够为法律的和保健专业人员制定最佳做法交流机制和明确的准则。遗传风险信息的有效沟通和交流将有益于个人健康和后代健康。

The outcomes of this study, will give evidence as to whether or not people do pass on genetic risk information to relatives, how they do it, what the barriers are, what their preferences are. It will also provide data so that mechanisms for best practice communication and clear guidelines for legal and health professionals can be developed. Effective communication and exchange of genetic risk information will benefit individual health and the health of future generations.