Communicating genetic information in families: practical, legal, social and ethical issues.

在家庭中传播遗传信息：实际、法律、社会和伦理问题。

• 批准号: DP0556183
• 负责人: Prof Loane Skene
• 金额: $ 8.33万
• 依托单位: The University of Melbourne
• 依托单位国家: 澳大利亚
• 项目类别: Discovery Projects
• 财政年份: 2005
• 资助国家: 澳大利亚
• 起止时间: 2005-01-01 至 2008-12-31
• 项目状态: 已结题
• 来源: https://dataportal.arc.gov.au/RGS/Web/Grants/DP0556183
• 关键词: Communicating; genetic; information; families; practical

The outcomes of this study, will give evidence as to whether or not people do pass on genetic risk information to relatives, how they do it, what the barriers are, what their preferences are. It will also provide data so that mechanisms for best practice communication and clear guidelines for legal and health professionals can be developed. Effective communication and exchange of genetic risk information will benefit individual health and the health of future generations.

这项研究的结果将提供证据，证明人们是否会将遗传风险信息传递给亲属，他们是如何做到的，障碍是什么，他们的偏好是什么。它还将提供数据，以便能够为法律的和保健专业人员制定最佳做法交流机制和明确的准则。遗传风险信息的有效沟通和交流将有益于个人健康和后代健康。