Educational program for the families of children with facial disfigurement

面部畸形儿童家庭教育计划

• 批准号: 15530432
• 负责人: ADACHI Tomoaki
• 金额: $ 1.41万
• 依托单位: Miyagi Gakuin Women's University
• 依托单位国家: 日本
• 项目类别: Grant-in-Aid for Scientific Research (C)
• 财政年份: 2003
• 资助国家: 日本
• 起止时间: 2003 至 2005
• 项目状态: 已结题
• 来源: https://kaken.nii.ac.jp/en/grant/KAKENHI-PROJECT-15530432/
• 关键词: facial disfigurement; children; family; mother; cleft lip and; pr palate; psychological adaptation; depression; 容貌; 心理社会的適応; ソーシャルサポート; 親; 対人スキル; 治療プログラム; 自己管理型プログラム; 適応; ソーシャルスキル; 障害

1.ObjectiveThis study examined the psychosocial adaptation of the families of children with facial disfigurement.2.MethodThe subjects were 71 mothers of children with cleft lip and/or palate. Their mean age was 32.0 (SD=4.6). The subject was first interviewed in a semi-structured way for approximately 30 minutes to obtain information about family support, social support network, maternal adaptation and social functioning. Two instruments were then administered in a fixed order to the mother.3.Results(1)About 10 percent of the mothers divorced.(2)Fifty percent experienced heavy depression for a period of several months from birth.(3)Fifteen percent were diagnosed as a depressive disorder by the Beck Depression Inventory (Beck et al.,1979) even after a lapse of several years from birth.(4)Maternal adaptation could be significantly predicted by several factors such as family support, social support network and uncertainty about their economic future.4.ConclusionsThe divorce rate in our subjects was very high. It suggests that the families of children with cleft lip and/pr palate have some sort of psychosocial conflict. At the same time, about half the mothers were at risk for psychological adjustment problems. These results show the necessity and importance of early interventions for the families of children with facial disfigurement.

1.目的探讨毁容儿童家庭的社会心理适应情况。方法对71例唇腭裂患儿的母亲进行调查。平均年龄32.0岁（SD=4.6）。首先以半结构化的方式对被试进行约30分钟的访谈，以获取有关家庭支持、社会支持网络、母亲适应和社会功能的信息。然后以固定的顺序给母亲使用两种仪器。结果(1)约10%的母亲离婚。50%的人在出生后的几个月里经历过严重的抑郁。(3)即使在出生几年后，仍有15%的人被贝克抑郁量表（Beck et al.,1979）诊断为抑郁症。(4)家庭支持、社会支持网络和经济前景不确定性等因素对产妇适应有显著的预测作用。结论本研究对象的离婚率很高。这表明唇腭裂儿童的家庭存在某种社会心理冲突。与此同时，大约一半的母亲有心理适应问题的风险。这些结果表明，早期干预的必要性和重要性的儿童面部畸形的家庭。

项目成果

口唇裂口蓋裂者の表出した笑顔に対する認知

对唇裂和腭裂患者微笑的感知

• 发表时间: 2005
• 期刊: 信学技法報(IEICE Technical Report) 90
• 作者: 真覚健;伊師華江;足立智昭
• 通讯作者: 足立智昭

Characteristics of non-verbal behavior in patients with cleft lip and palate during interpersonal communication.

唇腭裂患者人际交往中非语言行为特征

• 发表时间: 2003
• 期刊: Cleft Palate Craniofacial Journal 40
• 作者: Adachi;T. et al.
• 通讯作者: T. et al.

愛着と分離不安「感情心理学パースペクティブ」(畑山俊輝編)

依恋与分离焦虑《情绪心理学视角》（畠山敏辉主编）

• 发表时间: 2005
• 作者: 磯部美良;佐藤正二;足立智昭;宗田直子;足立 智昭
• 通讯作者: 足立 智昭

足立 智昭: "専門機関との連携(柴崎正行、長崎勤、本郷一夫編「障害児保育」)"同文書院. 200-204 (2004)

Tomoaki Adachi：“与专门组织的合作（Masayuki Shibasaki、Tsutomu Nagasaki、Kazuo Hongo eds。“残疾儿童的儿童保育”）”Dobunshin 200-204（2004）。

幼児期の仲間関係の発達の年代的変化(2)

幼儿期同伴关系发展的时间变化（2）

• 发表时间: 2005
• 期刊: 宮城学院女子大学発達科学研究 5
• 作者: 足立智昭;村井憲男
• 通讯作者: 村井憲男