An Open Learning Disabilities Behavioral Data Repository

开放的学习障碍行为数据存储库

• 批准号: 10331809
• 负责人: Sara Ann Hart
• 金额: $ 53.36万
• 依托单位: FLORIDA STATE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-01-11 至 2023-12-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10331809
• 关键词: Agreement; Archives; Attention; Behavioral; Big Data; Budgets; Characteristics; Child; Classification; Classification Scheme; Collaborations; Communities; Consult; Data; Data Analyses; Data Collection; Data Set; Data Store; Databases; Deposition; Development; Developmental Course; Documentation; Education; Educational workshop; Elements; Ensure; Funding Agency; Future; Grant; Individual; Informed Consent; Infrastructure; Institutional Review Boards; Investments; Knowledge; Language; Learning; Learning Disabilities; Librarians; Libraries; Longevity; Measures; Methodology; Methods; Monitor; Movement; Participant; Policies; Public Health; Reading; Reading Disabilities; Reproducibility; Research; Research Personnel; Resource Sharing; Resources; Sampling; School-Age Population; Schools; Science; Seeds; Site; Techniques; Testing; Time; Training; Training Support; base; data access; data de-identification; data management; data quality; data repository; data reuse; data sharing; field study; innovation; interest; knowledge base; large datasets; open data; power analysis; repository; tool

PROJECT SUMMARY There is considerable interest in data sharing, encouraged by funding agencies which are requiring more detailed data-sharing plans, as well as greater attention and support from the scientific community towards rigorous, open, and reproducible science. With this project, we will build a domain-specific data repository, “LDbase”, containing behavioral data from the field studying learning disabilities that will serve as a powerful resource for our community. We are uniquely qualified to build this repository. Our investigator team combines expertise in learning disabilities, advanced methodology, and research librarian techniques. LDbase will accelerate intellectual discovery by facilitating data reuse and reproducibility, ultimately building an enduring record that represents the richness, diversity, and complexity of the science done by learning disabilities researchers. We will achieve this through three specific aims: (1) Create a data repository representing a vast knowledge database on learning disabilities; (2) Release a powerful open access combined dataset and provide statistical training for combining datasets using integrative data analysis; and (3) Use integrated data to determine the most valid way to classify a reading disability for each child. LDbase will be seeded by data from six large research sites that will contribute large amounts of behavioral data from tens of thousands of participants, and then open to external data depositors and data users. With these high quality “big data”, we will answer a fundamental question in the field concerning personalized classification of reading disability, showing the powerful applied usefulness of these data. LDbase will advance the sharing of learning disabilities related behavioral data as a powerful new tool to answer research questions not answerable without it, build a community of researchers invested in data sharing and open science practices, and establish a sustainable infrastructure to support the longevity of the project.

项目摘要 在需要更多资金的资助机构的鼓励下，人们对数据共享有着相当大的兴趣。 详细的数据共享计划，以及科学界对 严谨、开放、可复制的科学。在这个项目中，我们将构建一个特定领域的数据存储库， “LDbase”，包含来自学习障碍研究领域的行为数据， 为我们的社区提供强大的资源。我们是唯一有资格建立这个仓库。我们的调查员 团队结合了学习障碍，先进的方法和研究馆员技术的专业知识。 LDbase将通过促进数据的重复使用和再现来加速知识发现， 一个持久的记录，代表了丰富性，多样性和复杂性的科学所做的学习 残疾研究者。我们将通过三个具体目标来实现这一目标：（1）创建数据存储库 代表了一个关于学习障碍的巨大知识数据库;（2）发布一个强大的开放获取 组合数据集，并提供统计培训，用于使用综合数据分析组合数据集;以及 (3)使用综合数据确定对每个儿童的阅读障碍进行分类的最有效方法。 LDbase将由来自六个大型研究站点的数据作为种子，这些研究站点将提供大量的行为数据。 从数以万计的参与者中收集数据，然后向外部数据存储者和数据用户开放。与 通过这些高质量的“大数据”，我们将回答有关个性化领域的一个基本问题。 分类的阅读障碍，显示了强大的应用这些数据的有用性。LDbase将 推进学习障碍相关行为数据的共享，作为一个强大的新工具， 没有它就无法回答的研究问题，建立一个投资于数据共享的研究人员社区 和开放的科学实践，并建立可持续的基础设施，以支持 项目