An Open Learning Disabilities Behavioral Data Repository

项目总结 在资金机构的鼓励下，人们对数据共享产生了相当大的兴趣，这些机构要求更多 详细的数据共享计划，以及科学界对以下方面的更大关注和支持 严谨、开放和可重现的科学。通过这个项目，我们将构建特定于领域的数据存储库， “LDbase”，包含来自学习障碍研究领域的行为数据，这些数据将用作 为我们的社区提供强大的资源。我们是唯一有资格构建这个存储库的公司。我们的调查员 团队结合了学习障碍、先进的方法和研究图书馆员技术方面的专业知识。 LDbase将通过促进数据重用和再现性来加速智能发现，最终构建 一项经久不衰的记录，代表了通过学习完成的科学的丰富性、多样性和复杂性 残疾研究人员。我们将通过三个具体目标来实现这一点：(1)创建数据存储库 代表一个关于学习障碍的庞大知识库；(2)发布强大的开放获取 合并数据集，并为使用综合数据分析的合并数据集提供统计培训；以及 (3)使用综合数据确定对每个儿童的阅读障碍进行分类的最有效方法。 LDbase将由来自六个大型研究站点的数据播种，这些站点将对行为做出大量贡献 从数以万计的参与者中获取数据，然后向外部数据储存者和数据用户开放。使用 这些高质量的《大数据》，我们将回答有关个性化领域的一个根本性问题 对阅读障碍的分类，显示了这些数据强大的应用有用性。LDbase将 促进与学习障碍相关的行为数据的共享，作为回答问题的强大新工具 研究问题没有它就无法回答，建立一个投资于数据共享的研究人员社区 和开放的科学实践，并建立可持续的基础设施，以支持 项目。

PROJECT SUMMARY There is considerable interest in data sharing, encouraged by funding agencies which are requiring more detailed data-sharing plans, as well as greater attention and support from the scientific community towards rigorous, open, and reproducible science. With this project, we will build a domain-specific data repository, “LDbase”, containing behavioral data from the field studying learning disabilities that will serve as a powerful resource for our community. We are uniquely qualified to build this repository. Our investigator team combines expertise in learning disabilities, advanced methodology, and research librarian techniques. LDbase will accelerate intellectual discovery by facilitating data reuse and reproducibility, ultimately building an enduring record that represents the richness, diversity, and complexity of the science done by learning disabilities researchers. We will achieve this through three specific aims: (1) Create a data repository representing a vast knowledge database on learning disabilities; (2) Release a powerful open access combined dataset and provide statistical training for combining datasets using integrative data analysis; and (3) Use integrated data to determine the most valid way to classify a reading disability for each child. LDbase will be seeded by data from six large research sites that will contribute large amounts of behavioral data from tens of thousands of participants, and then open to external data depositors and data users. With these high quality “big data”, we will answer a fundamental question in the field concerning personalized classification of reading disability, showing the powerful applied usefulness of these data. LDbase will advance the sharing of learning disabilities related behavioral data as a powerful new tool to answer research questions not answerable without it, build a community of researchers invested in data sharing and open science practices, and establish a sustainable infrastructure to support the longevity of the project.