Strengthening Stakeholder Engagement in Human Research Protections.
加强利益相关者对人类研究保护的参与。
基本信息
- 批准号:10363791
- 负责人:
- 金额:$ 15.99万
- 依托单位:
- 依托单位国家:美国
- 项目类别:
- 财政年份:2016
- 资助国家:美国
- 起止时间:2016-08-15 至 2025-05-31
- 项目状态:未结题
- 来源:
- 关键词:AdoptionAttitudeAutomobile DrivingAwardBioethicsChicagoClinicalClinical ResearchClinical SciencesCollaborationsCommunicationCommunitiesConsensusConsentDelphi StudyEmpirical ResearchEnsureEthical IssuesEthical ReviewEthicsFosteringFoundationsFundingFutureGoalsGuidelinesHealthHumanIllinoisIndividualInstitutionInstitutional Review BoardsInterviewJournalsLeadLearningMethodsMinority GroupsParticipantPatientsPeer ReviewPhasePoliciesPositioning AttributeProcessPublicationsRegulationResearchResearch DesignResearch EthicsResearch Project GrantsResourcesSocial ValuesStructureTranslational ResearchUnderserved PopulationUnited States National Institutes of HealthUniversitiesUrsidae FamilyVoiceVulnerable Populationscareer networkingclinical centercommunity engaged researchcommunity engagementdesignevidence baseimprovedmembermultidisciplinarypopulation healthpreventprogramsstakeholder perspectivessuccesssymposiumtranslational pipeline
项目摘要
Project Summary/Abstract
The University of Illinois at Chicago (UIC) Center for Clinical and Translational Science (CCTS)
seeks to catalyze translational research, locally and nationally, as part of a national network to
improve individual and population health. Since our initial funding by the NIH in 2009, the
overarching goal—and driving focus—of the CCTS is to improve population health, particularly
among minorities and underserved populations. Our high-quality multidisciplinary clinical and
translational research, spans the translational spectrum and includes strengths in community
stakeholder engagement. Building on our organizational foundation and record of success, the
UIC CCTS is well-positioned to make substantial contributions by collaborating with other hubs,
supporting national CTSA activities, and making unique contributions to community-engaged
research with vulnerable and underserved populations. Across academic research institutions,
community and patient stakeholder engagement is now increasingly incorporated into individual
research projects, yet it is not typically a part of ethical and regulatory oversight of research.
This may lead to under- or over-protection of research participants. Increased collaboration
between human research protections programs (HRPPs) and institution-level community
engagement activities could bring stakeholder perspectives to bear on research ethics
oversight, but there is much to learn about how relationships could be strengthened and efforts
better coordinated to enhance human research protections. This proposed bioethics supplement
to UIC’s Center for Clinical and Translational Science responds to NIH’s call for bioethics
research to develop an evidence base that may inform future policy directions, focusing on
patient/participant representation in research oversight and study design. The goals of this
project are to identify, prioritize, and disseminate strategies and resources for increasing
stakeholder engagement in research ethics oversight with a focus on strengthening
relationships between human research protections programs (HRPPs) and institutional
community engagement activities. The specific aims are to: 1) Generate a menu of strategies
that HRPPs could implement to increase the inclusion of stakeholder perspectives in research
ethics oversight; and 2) Foster consensus regarding priority strategies for HRPPs to increase
appropriate inclusion of stakeholder perspectives in research ethics oversight.
项目摘要/摘要
伊利诺伊大学芝加哥分校临床与翻译科学中心(CCTS)
寻求促进地方和国家的翻译研究,作为国家网络的一部分,以
改善个人和人群健康。自从我们在2009年获得美国国立卫生研究院的第一笔资金以来,
CCTS的总体目标和主要重点是改善人口健康,特别是
在少数族裔和未得到充分服务的人群中。我们高质量的多学科临床和
翻译研究,跨越翻译领域,包括社区优势
利益相关者的参与。以我们的组织基础和成功记录为基础,
UIC CCTS处于有利地位,可以通过与其他枢纽合作做出实质性贡献,
支持国家CTSA活动,为社区参与做出独特贡献
对弱势和服务不足的人群进行研究。在学术研究机构中,
社区和患者利益相关者的参与现在越来越多地融入到个人
研究项目,但它通常不是对研究的道德和监管监督的一部分。
这可能会导致对研究参与者的保护不足或过度。增强协作
人类研究保护计划(HRPP)和机构级社区之间的关系
参与活动可以使利益相关者的观点对研究伦理产生影响
监督,但关于如何加强关系和努力,还有很多需要学习的地方
更好地协调以加强对人类研究的保护。这份建议的生命伦理学补充材料
UIC的临床和转译科学中心响应NIH的生命伦理呼吁
研究以开发可能为未来政策方向提供信息的证据基础,重点是
患者/参与者在研究监督和研究设计中的代表性。这样做的目的是
项目的目的是确定、确定优先顺序并传播战略和资源,以增加
利益攸关方参与研究伦理监督,重点是加强
人类研究保护计划(HRPP)与制度的关系
社区参与活动。具体目标是:1)生成一个策略菜单
人力资源规划方案可以实施,以增加将利益攸关方的观点纳入研究
道德监督;和2)促进就人权伙伴关系优先战略达成共识,以增加
适当地将利益相关者的观点纳入研究伦理监督。
项目成果
期刊论文数量(0)
专著数量(0)
科研奖励数量(0)
会议论文数量(0)
专利数量(0)
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Robin J. Mermelstein其他文献
Changing knowledge and attitudes about skin cancer risk factors in adolescents.
改变青少年对皮肤癌危险因素的认识和态度。
- DOI:
10.1037//0278-6133.11.6.371 - 发表时间:
1992 - 期刊:
- 影响因子:0
- 作者:
Robin J. Mermelstein;L. A. Riesenberg - 通讯作者:
L. A. Riesenberg
Semantic congruity and expectancy in symbolic judgments.
符号判断中的语义一致性和期望。
- DOI:
10.1037/0096-1523.9.4.560 - 发表时间:
1983 - 期刊:
- 影响因子:0
- 作者:
William P. Banks;Hedy White;William Sturgill;Robin J. Mermelstein - 通讯作者:
Robin J. Mermelstein
Erratum: Do as i say, not as i do: Does it work for tobacco use prevention? (Archives of Pediatrics and Adolescent Medicine (January 2006) 160 (102-103))
勘误表:按我说的做,而不是照我做的做:它对预防烟草使用有效吗?
- DOI:
- 发表时间:
2006 - 期刊:
- 影响因子:0
- 作者:
Susan J. Curry;Robin J. Mermelstein - 通讯作者:
Robin J. Mermelstein
Explanations of ethnic and gender differences in youth smoking: a multi-site, qualitative investigation. The Tobacco Control Network Writing Group.
青少年吸烟的种族和性别差异的解释:多地点定性调查。
- DOI:
10.1080/14622299050011661 - 发表时间:
1999 - 期刊:
- 影响因子:0
- 作者:
Robin J. Mermelstein - 通讯作者:
Robin J. Mermelstein
Shared and distinct neural mechanisms of inhibitory control in individuals with a history of a substance use disorder and depression
- DOI:
10.1016/j.drugalcdep.2015.07.1055 - 发表时间:
2015-11-01 - 期刊:
- 影响因子:
- 作者:
Natania A. Crane;Laura Gabriel;Kortni K. Meyers;Anne L. Weldon;Michelle T. Kassel;Robin J. Mermelstein;Jon-Kar Zubieta;Scott A. Langenecker - 通讯作者:
Scott A. Langenecker
Robin J. Mermelstein的其他文献
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{{ truncateString('Robin J. Mermelstein', 18)}}的其他基金
Context, Subjective and Cognitive Experiences with Patterns of Tobacco and Cannabis Co-Use in Young Adults
年轻人烟草和大麻共同使用模式的背景、主观和认知体验
- 批准号:
10602422 - 财政年份:2020
- 资助金额:
$ 15.99万 - 项目类别:
Context, Subjective and Cognitive Experiences with Patterns of Tobacco and Cannabis Co-Use in Young Adults
年轻人烟草和大麻共同使用模式的背景、主观和认知体验
- 批准号:
10378068 - 财政年份:2020
- 资助金额:
$ 15.99万 - 项目类别:
Context, Subjective and Cognitive Experiences with Patterns of Tobacco and Cannabis Co-Use in Young Adults
年轻人烟草和大麻共同使用模式的背景、主观和认知体验
- 批准号:
10205015 - 财政年份:2020
- 资助金额:
$ 15.99万 - 项目类别:
Center for Coordination of Analytics, Science, Enhancement, and Logistics (CASEL) in Tobacco Regulatory Science (U54)
烟草监管科学分析、科学、增强和物流协调中心 (CASEL) (U54)
- 批准号:
10477396 - 财政年份:2018
- 资助金额:
$ 15.99万 - 项目类别:
Center for Coordination of Analysis, Science, Enhancement, and Logistics (CASEL) in Tobacco Regulatory Science
烟草监管科学分析、科学、增强和物流协调中心 (CASEL)
- 批准号:
10662756 - 财政年份:2018
- 资助金额:
$ 15.99万 - 项目类别:
Center for Coordination of Analytics, Science, Enhancement, and Logistics (CASEL) in Tobacco Regulatory Science (U54)
烟草监管科学分析、科学、增强和物流协调中心 (CASEL) (U54)
- 批准号:
10245072 - 财政年份:2018
- 资助金额:
$ 15.99万 - 项目类别:
Predictors and Consequences of Combustible Cigarette Smokers' Switch to Standardized Research E-Cigarettes
可燃卷烟吸烟者转向标准化研究电子烟的预测因素和后果
- 批准号:
10811935 - 财政年份:2017
- 资助金额:
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Quality Assurance and Quality Control Administrative Supplement
质量保证和质量控制行政补充
- 批准号:
10382106 - 财政年份:2016
- 资助金额:
$ 15.99万 - 项目类别:
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