Designing Innovative Interventions with People Living with Dementia

该设计奖学金的主要目的是更好地了解设计思维和行动如何有助于为痴呆症患者开发一系列增强的产品、服务和系统。这些专门设计的干预措施将与主要合作组织苏格兰阿尔茨海默病组织、痴呆症患者及其照顾者、苏格兰西部大学阿尔茨海默病苏格兰政策和实践中心、苏格兰痴呆症工作组、全国照顾者行动网络和其他相关机构合作创建。在英国，估计有80万痴呆症患者，目前的成本超过230亿GB。应对这一挑战将需要创新的方法，支持痴呆症患者从疾病的早期就很好地生活。设计奖学金将专注于痴呆症之旅的这一关键早期阶段。虽然苏格兰估计有8.8万人患有痴呆症，但只有50%的病例被确认。阿尔茨海默氏症苏格兰公司直接与60多名链接工作人员合作，他们提供诊断后支持。这项研究的主要目的是开发颠覆性设计干预措施(例如产品、系统、服务)，以打破形成良好的意见、策略、心态和行为方式的循环，在英国痴呆症患者的健康和社会护理方面往往不受挑战。该项目旨在：1。通过向痴呆症患者展示他们在确诊后可以为英国社会做出很大贡献，来帮助改变人们对痴呆症的看法。2.创建一系列精心设计的干预措施，将最近被诊断为痴呆症的人重新联系起来，以建立自尊、认同感和尊严。3.制定干预措施，使痴呆症患者持续与社区保持联系，推迟对正式支持的需要，避免危机应对的需要。4.探讨预防和早期干预如何使照顾者和痴呆症患者在生活中有更多的选择和控制。与最近确诊的患者及其照顾者合作，参与设计干预措施的创建，并在苏格兰各地的阿尔茨海默病苏格兰痴呆症资源中心和痴呆症咖啡馆开发和测试这些干预措施。该奖学金将在很大程度上采用干涉主义的方法，这种方法基于一些新兴的理论，这些理论源于经济学、商业和设计方面的研究。这种颠覆性的设计干预主义方法，赞扬直接投入，为了学习新事物而做事情，并重视失败，在12个月的过程中涉及一个三个步骤的过程(观察、反思和行动)。在设计研究奖学金期间，将举办一些颠覆性设计研讨会。将与痴呆症患者、他们的照顾者(S)、来自阿尔茨海默病苏格兰的工作人员和其他相关利益攸关方举办研讨会。其目的是打破在英国痴呆症患者的健康和社会护理方面往往不受挑战的良好观点、策略、心态和行为方式的循环。传播将由该研究员与苏格兰阿尔茨海默病传播团队共同管理。该项目将寻求与学术和公众受众接触，这将有助于公众更容易地了解所进行的研究工作。这位研究员将通过在苏格兰阿尔茨海默氏症咖啡馆、资源中心和当地社区内的阿尔茨海默氏症联系中心的实践课程向公众传播项目成果。拟议设计干预措施的开发和评估将有助于解决英国严重缺乏关于痴呆症患者及其照顾者(S)结果和服务提供现状的证据的问题。简而言之，这将有助于改善证据基础。

The key aim of this design fellowship is to understand better how design thinking and action can contribute to the development of a range of enhanced products, services, and systems for people living with dementia. These designed interventions will be created in collaboration with Alzheimer Scotland, the main collaborating organization, people living with dementia and their carers, the Alzheimer Scotland Centre for Policy and Practice at the University of the West of Scotland, the Scottish Dementia Working Group, National Carers Action Network, and other relevant bodies. In the UK there are an estimated 800,000 people with dementia with a current cost of over £23 billion. Responding to this challenge will require innovative ways of supporting people with dementia to live well from the early stages of the illness. The Design Fellowship will be focused on this key early stage in the dementia journey. Whilst there are an estimated 88,000 people with dementia in Scotland, only 50% of cases have been identified. Alzheimer Scotland works directly with over 60 link workers who provide post-diagnostic support. The key aim of this research is to develop disruptive design interventions (e.g. products, systems, services) for breaking the cycle of well-formed opinions, strategies, mindsets, and ways-of-doing, that tend to remain unchallenged in the health and social care of people living with dementia in the UK. The project aims to: 1. Help change the perception of dementia by showing people with dementia they can offer much to UK society after diagnosis. 2. Create a series of designed interventions that will reconnect people recently diagnosed with dementia to build self-esteem, identity and dignity. 3. Develop interventions that will provide ongoing benefits in keeping the person with dementia connected to their community, delaying the need for formal support and avoid the need for crisis responses. 4. Explore how prevention and early intervention might enable both carers and people living with dementia to have greater choice and control in their lives.5. Work with people recently diagnosed and their carers to participate in the creation of the designed interventions and develop and test these interventions in a number of Alzheimer Scotland's Dementia Resource Centres and Dementia Cafes located throughout Scotland. The fellowship will adopt a largely interventionist approach, which is based on a number of emerging theories emanating from research in economics, business, and design. This disruptive design interventionist approach, which celebrates jumping straight in, doing things in order to learn new things, and valuing failure, involves a three-step process (observing, reflecting, and acting) over the course of the 12 months. A number of disruptive design workshops will be held during the design research fellowship. Workshops will be held with people living with dementia, their carer(s), staff from Alzheimer Scotland and other relevant stakeholders. The aim being to disrupt the cycle of well-formed opinions, strategies, mindsets, and ways-of-doing, that tend to remain unchallenged in the health and social care of people living with dementia in the UK. Dissemination will managed by the fellow in conjunction with Alzheimer Scotland's Communications Team. The project will seek to engage with both academic and public audiences, which will help to increase the accessibility of the research work conducted to the general public. The Fellow will disseminate project outcomes to the public via hands-on sessions at a number of Alzheimer Scotland's Dementia Cafes, Resource Centres and through Alzheimer Scotland connections within local communities. The development and evaluation of the proposed design interventions will help to address the significant lack of evidence on outcomes and the current state of service delivery for people living with dementia and their carer(s) in the UK. In short, it will help improve the evidence base.