Weston-super-Mare consortium: Harnessing community assets to tackle inequities and reduce social isolation in end-of-life care and bereavement

滨海韦斯顿财团：利用社区资产解决不平等问题并减少临终关怀和丧亲之痛中的社会孤立

• 批准号: AH/X006158/1
• 负责人: Lucy Ellen Selman
• 金额: $ 27.29万
• 依托单位: University of Bristol
• 依托单位国家: 英国
• 项目类别: Research Grant
• 财政年份: 2022
• 资助国家: 英国
• 起止时间: 2022 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=AH%2FX006158%2F1
• 关键词: Weston; super; Mare; consortium; Harnessing

Serious illness and bereavement affect us all, but our experiences of them are not equal. People living in the poorest areas of the UK are less likely to get the care and support they need if they become seriously ill or a loved one dies. They are also more likely to be socially isolated and lonely - which can be made even worse by serious illness or bereavement. This project is based in Weston-super-Mare, a deprived coastal town in North Somerset. Nine of its neighbourhoods are among the poorest 10% in the country. The population is growing, getting older and living with more frailty and long-term, complex health conditions. There are also high levels of mental health and addiction problems. The project team will create a strong group with a shared aim ('a consortium') that unites health and social care workers, people providing community assets (collective resources which are available to individuals and communities, e.g. arts organisations, charities and community groups), academics, and people with lived experience to work together to reduce health inequities in Weston-super-Mare and the North Somerset region. Our consortium will focus on inequities related to end-of-life care, bereavement support, social isolation and loneliness. During the 9 months of the project, we will hold 3 consortium meetings and work together to: 1. create a directory of community assets and interview key people to understand how health and social care and community assets can best work together2. design and evaluate creative and cultural activities to be held over Dying Matters Awareness Week (DMAW, May 2023), with members of the public employed as co-researchers3. hold creative workshops with local groups (people with drug and alcohol addiction problems, young people, and older men) to facilitate conversations about grief and illness, raise awareness of local support, and help inform our DMAW events4. review existing evaluation data from arts/creative organisations working in Weston-super-Mare over the last 5 years (2017-2022) to identify what activities have best engaged and benefitted the community, and draw on this in designing DMAW events5. map available health and social care data and determine how it can be used to help understand, measure and reduce inequities6. hold a final consortium meeting to: review all our work; consider how we can apply our findings in other deprived coastal towns; and agree research questions and methods for a future joint funding applicationThe project will benefit: 1) the Integrated Care System (ICS), strengthening their relationships with community organisations and the public in Weston-super-Mare and providing information (community asset directory, map of datasets) to enable equitable end-of-life care and bereavement support; 2) community organisations, by bringing recognition and funding (via linking with the ICS) and helping them reach more people (via linking with the consortium and awareness raising at events); 3) creative and cultural organisations, by enabling them to engage and empower local community members in an evidence-based way, providing training to artists and increasing links with the ICS and community organisations; 4) members of the public, who will learn about the care and support available to them via the ICS and community assets and benefit from opportunities to express their experiences and socialise in creative workshops, attend free events, participate as co-researchers and at consortium meetings; 5) academic researchers, by modelling new multidisciplinary, collaborative ways of creating research and building evidence about how community assets can help reduce health inequities; 6) policy makers, by making recommendations for how ICSs can best harness community assets. We will engage with these groups via consortium meetings, blogs, the project website, journal articles, reports, presentations at community/ICS events and a policy brief.

严重的疾病和丧亲之痛影响着我们所有人，但我们的经历并不平等。生活在英国最贫困地区的人们如果患重病或亲人去世，就不太可能得到所需的护理和支持。他们也更有可能在社会上被孤立和孤独--严重的疾病或丧亲之痛会使情况更糟。该项目位于滨海韦斯顿，北萨默塞特的一个贫困的沿海城镇。它的九个社区是该国最贫穷的10%。人口不断增长，年龄越来越大，身体越来越虚弱，健康状况长期复杂。心理健康和成瘾问题也很严重。该项目团队将创建一个强大的团体，具有共同的目标（“财团”），将卫生和社会护理工作者，提供社区资产的人（个人和社区可获得的集体资源，例如艺术组织，慈善机构和社区团体），学者和有生活经验的人联合起来，共同努力减少滨海韦斯顿和北萨默塞特地区的卫生不平等。我们的联盟将专注于与临终关怀，丧亲支持，社会孤立和孤独有关的不平等。在项目的9个月里，我们将举行3次联合体会议，共同努力：1。创建社区资产目录，并与关键人员进行访谈，以了解健康和社会护理以及社区资产如何最好地协同工作2。设计和评估创意和文化活动将在临终关怀意识周（DMAW，2023年5月）举行，与公众成员作为共同研究者3。与当地团体（有吸毒和酗酒问题的人，年轻人和老年人）举办创意研讨会，以促进关于悲伤和疾病的对话，提高对当地支持的认识，并帮助通知我们的DMAW活动4。审查过去5年（2017-2022年）在滨海韦斯顿工作的艺术/创意组织的现有评估数据，以确定哪些活动最能吸引社区并使社区受益，并在设计DMAW活动时利用这些数据5。绘制现有的健康和社会保健数据，并确定如何使用这些数据来帮助理解、衡量和减少不平等现象6。举行最后一次联合会会议：审查我们所有的工作;考虑如何将我们的研究成果应用于其他贫困的沿海城镇;并商定未来联合资助申请的研究问题和方法该项目将有利于：1）综合护理系统，加强与滨海韦斯顿社区组织和公众的关系，并提供信息，（社区资产目录，数据集地图），以实现公平的临终关怀和丧亲支持; 2）社区组织，通过带来认可和资金（通过与ICS的联系）并帮助他们接触更多的人（通过与联合会建立联系和在活动中提高认识）; 3）创意和文化组织，使他们能够以循证方式参与并赋予当地社区成员权力，为艺术家提供培训，并加强与ICS和社区组织的联系; 4）公众，他们将通过ICS和社区资产了解他们可以获得的护理和支持，并从表达他们的经验和在创意工作坊中社交的机会中受益，参加免费活动，作为共同研究人员和参加联合会会议; 5）学术研究人员，通过建立新的多学科协作方式，就社区资产如何有助于减少卫生不公平现象进行研究和建立证据; 6）政策制定者，就ICSs如何最好地利用社区资产提出建议。我们将通过联盟会议，博客，项目网站，期刊文章，报告，社区/ICS活动和政策简报的演示文稿与这些团体进行接触。