Road to recovery: Understanding the impact of COVID and recovery phases on children and young people with Intellectual Disabilities and their families

康复之路：了解新冠病毒和康复阶段对智力障碍儿童和青少年及其家人的影响

• 批准号: ES/W001985/1
• 负责人: Karri Gillespie-Smith
• 金额: $ 22.88万
• 依托单位: University of Edinburgh
• 依托单位国家: 英国
• 项目类别: Research Grant
• 财政年份: 2021
• 资助国家: 英国
• 起止时间: 2021 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=ES%2FW001985%2F1
• 关键词: Road; recovery; Understanding; impact; COVID

Intellectual disabilities (ID) are characterised by social, and cognitive difficulties that are often associated with challenging behaviours. Increased levels of mental health issues have been reported in children and young people with Intellectual Disabilities (ID) and their caregivers. The COVID-19 response strategy entailed limiting access to education, respite care, and specialist services, therefore reducing the available support for families, with unknown consequences. The relative vulnerability of children with ID was highlighted by a recent report by the Children's Society (2020) which indicated that children with ID are more susceptible to wellbeing and mental health issues as a result of COVID and require urgent support in adapting to routine changes and understanding what is going on. These routine changes and reduction in access to services will continue for some time despite the recent implementation of the UK wide vaccination programme, further compounding mental health outcomes in children with ID and their parents.As we move into COVID transition phase, the current project will: 1) identify the family structure and social demographics of families who have a child with ID who are at greaterrisk of parent and child negative mental health outcomes; 2) explore the lived experiences of CYP with ID and their caregivers during COVID and transition phases 3) understand the CYP's and parent's experience of the recovery phase, including the lasting effects of COVID.

智力残疾（ID）的特点是社交和认知困难，通常与挑战性行为有关。据报道，患有智力残疾（ID）的儿童和青少年及其照顾者的心理健康问题有所增加。COVID-19应对策略限制了获得教育、临时护理和专科服务的机会，因此减少了对家庭的可用支持，后果未知。儿童协会最近的一份报告（2020年）强调了ID儿童的相对脆弱性这表明患有ID的儿童更容易因COVID而受到健康和心理健康问题的影响，需要紧急支持以适应常规变化并了解正在发生的情况。尽管最近随着我们进入COVID过渡阶段，目前的项目将：1）确定有ID儿童的家庭的家庭结构和社会人口统计数据，这些家庭面临父母和儿童负面心理健康结果的更高风险; 2）探索患有ID的儿童及其照顾者在COVID和过渡阶段的生活经历3）了解儿童及其父母在恢复阶段的经历，包括COVID的持久影响。

项目成果

The Impact of COVID-19 Restrictions on Psychological Distress in Family Caregivers of Children with Neurodevelopmental Disability in the UK.

• DOI: 10.1007/s10803-021-05132-3
• 发表时间: 2023-04
• 期刊: Journal of autism and developmental disorders
• 影响因子: 3.9
• 作者: Gillespie-Smith K;McConachie D;Ballantyne C;Auyeung B;Goodall K
• 通讯作者: Goodall K

Road to Recovery Research Project: Interview and Photovoice protocol for parents and children with intellectual disabilities.

康复之路研究项目：智障父母和儿童的访谈和照片语音协议。

• 发表时间: 2022
• 作者: Khawam, G