Learning disability and dementia - supporting transition to a care home

学习障碍和痴呆症 - 支持过渡到护理之家

• 批准号: ES/Y007875/1
• 负责人: Karen Watchman
• 金额: $ 6.53万
• 依托单位: University of Stirling
• 依托单位国家: 英国
• 项目类别: Research Grant
• 财政年份: 2023
• 资助国家: 英国
• 起止时间: 2023 至 无数据
• 项目状态: 未结题
• 来源: https://gtr.ukri.org/projects?ref=ES%2FY007875%2F1
• 关键词: Learning; disability; dementia; supporting; transition

The longer life expectancy now enjoyed by most people with a learning disability is to be celebrated, for example people with Down's syndrome may now live to their 60s, a big step forward from the 1980s when life expectant was still in the teens. However, people with a learning disability generally are also at increased risk of dementia at a younger age and there are occasions when it is no longer preferred or practical for a person with a learning disability to remain in their home as dementia progresses. In such situations a move to a care home may take place, often at time of crisis or as dementia advances. Two longstanding problems have become evident: 1) people with a learning disability and dementia are often moved to a care home without being supported to share information about themselves or their wishes for future accommodation needs or preferences and 2) staff in care homes for older people can be hesitant about people with a learning disability and dementia moving in. This is due to uncertainty about how to meet their needs and the perception that the support needed is too great, or too different from other residents. This Catalyst proposal increases potential for appropriate engagement and activities before, during and after a move to a care home by older people with a learning disability and dementia. There two issues will be addressed in this project in the following ways:1. To develop, pilot and refine a new resource for people with a learning disability and dementia. Consistent with previous work of the Principal Investigator, this is expected to offer flexibility whilst ensuring the voice of the person is heard. It will be tailored to outcomes that individuals want from their accommodation and their support, and will help care home staff to better understand the needs and preferences of the person, and hopes for their new home. We will consult with people with a learning disability initially on appropriate format and content and will co-produce the final resource. This may be paper-based, electronic, audio or something different, but will be in a format considered appropriate and useable by people with a learning disability. The challenge will be determining an appropriate format and ensuring usability, both in the current place called home and in a care home, recognising limited WIFI accessible to some people with a learning disability. 2. To develop and pilot licensed training or an information resource/podcast series or similar for care home staff. Within the parameters of funding available, this will focus on transition to a care home by people with a learning disability and dementia. This requires consultation with care home staff initially to understand more about their knowledge gaps and will identify the most appropriate format that can be accessed and used in practice by the highest number of care home staff across the UK. A challenge will be developing something that is both feasible and sustainable. It will need to be accessed by care home providers at low cost, recognising sector challenges in releasing staff to take part in training or education. A further challenge is to consider how we will know if the training/learning has been successful beyond 'in the moment' feedback when completed.

大多数有学习障碍的人现在享有更长的预期寿命是值得庆祝的，例如，唐氏综合症患者现在可以活到60多岁，比20世纪80年代预期寿命还在十几岁的时候迈出了一大步。然而，有学习障碍的人通常在年轻时患痴呆症的风险也会增加，并且有时随着痴呆症的进展，有学习障碍的人留在家中不再是首选或实际的。在这种情况下，可能会转移到护理之家，通常是在危机时期或痴呆症进展时。两个长期存在的问题已经变得很明显：1）患有学习障碍和痴呆症的人经常被转移到护理院，而没有得到支持来分享关于他们自己或他们对未来住宿需求或偏好的愿望的信息; 2）老年人护理院的工作人员可能对有学习障碍和痴呆症的人感到犹豫。这是由于不确定如何满足他们的需求，以及认为所需的支持太大，或与其他居民太不一样。这一催化剂提案增加了有学习障碍和痴呆症的老年人在搬到养老院之前、期间和之后进行适当参与和活动的可能性。本课题主要从以下两个方面进行研究：1.为有学习障碍和痴呆症的人开发，试点和完善新的资源。与主要研究者以前的工作一致，这将提供灵活性，同时确保人们的声音被听到。它将根据个人希望从他们的住宿和他们的支持中获得的结果进行定制，并将帮助护理之家的工作人员更好地了解个人的需求和偏好，以及对他们新家的希望。我们将与有学习障碍的人进行协商，最初就适当的格式和内容，并将共同制作最终的资源。这可能是基于纸张，电子，音频或其他不同的东西，但将在一个格式被认为是适当的和可用的人有学习障碍。挑战将是确定一个适当的格式，并确保可用性，无论是在目前的地方称为家和在护理之家，认识到有限的无线网络访问一些人有学习障碍。2.开发和试点许可的培训或信息资源/播客系列或类似的护理之家的工作人员。在现有资金的范围内，这将侧重于有学习障碍和痴呆症的人向护理之家的过渡。这需要与护理之家的工作人员进行协商，以了解更多关于他们的知识差距，并将确定最适当的格式，可以访问和使用的最高数量的护理之家的工作人员在实践中在英国。一个挑战将是开发出既可行又可持续的东西。它将需要以低成本获得护理之家提供者，认识到在释放工作人员参加培训或教育方面的部门挑战。另一个挑战是考虑我们将如何知道培训/学习是否成功，而不是在完成时的“即时”反馈。