A scalable solution for supporting informal stroke caregivers in Malaysia: systematic development and feasibility study

支持马来西亚非正式中风护理人员的可扩展解决方案：系统开发和可行性研究

• 批准号: MR/T018968/1
• 负责人: Sanjay Kinra
• 金额: $ 32.32万
• 依托单位: London School of Hygiene & Tropical Medicine
• 依托单位国家: 英国
• 项目类别: Research Grant
• 财政年份: 2019
• 资助国家: 英国
• 起止时间: 2019 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=MR%2FT018968%2F1
• 关键词: scalable; solution; supporting; informal; stroke

Stroke is a serious medical condition that occurs when the blood supply to part of the brain is cut off. People who survive stroke are often unable to use parts of their body due to brain injury. As a result of this, they may not be able to move around or carry out daily tasks (such as feeding, bathing and dressing) on their own. They may also need physical therapy to help them with the recovery. Such physical therapy and help with daily activities is generally provided by family members and friends (also called caregivers) who receive help and guidance from social and community rehabilitation services in western countries. In Malaysia, such support is not available, therefore the caregivers have to take on most of the patient care responsibilities, for which they are not trained or prepared. As a result of this, the recovery of stroke patient is not as good and the caregiver themselves may feel overwhelmed and their health and finances may suffer. In India, where the situation is similar to Malaysia, we have previously developed a training programme to support stroke caregivers using mobile phones. Using lessons from this research and an in-depth assessment of local knowledge, skills, resources and cultural beliefs of stroke caregivers in Malaysia, we will develop a training programme to improve caregivers' skills in managing physical and psychological needs of stroke survivors and their own needs. Initial training will be delivered in person, with further support provided through a mobile phone application that will include videos of key skills, a searchable map of local stroke services and access to expert advice through text messaging or phone call. We will then offer the training and mobile application to new caregivers to find out whether they find it helpful and how it can be improved. We will also work with health policy makers to explore how our training and support programme could be integrated within the Malaysian healthcare system. Stroke is one of the leading causes of death and disability in Malaysia, which causes enormous suffering and loss to the economy. Our training programme may be able to reduce both of these.

中风是一种严重的医疗状况，当大脑部分的血液供应被切断时就会发生。中风后幸存的人往往由于脑损伤而无法使用身体的某些部分。因此，他们可能无法自己走动或执行日常任务（如喂食，洗澡和穿衣）。他们可能还需要物理治疗来帮助他们恢复。这种物理治疗和日常活动的帮助通常由家庭成员和朋友（也称为照顾者）提供，他们接受西方国家社会和社区康复服务的帮助和指导。在马来西亚，没有这种支持，因此护理人员必须承担大部分病人护理责任，而他们没有接受过培训或准备。因此，中风患者的恢复并不好，护理人员自己可能会感到不堪重负，他们的健康和经济状况可能会受到影响。在印度，情况与马来西亚相似，我们之前制定了一项培训计划，支持中风护理人员使用移动的电话。利用这项研究的经验教训以及对马来西亚中风护理人员的当地知识、技能、资源和文化信仰的深入评估，我们将制定一项培训计划，以提高护理人员管理中风幸存者的身体和心理需求及其自身需求的技能。最初的培训将亲自进行，并通过移动的电话应用程序提供进一步的支持，该应用程序将包括关键技能的视频、当地中风服务的可搜索地图以及通过短信或电话获得专家建议。然后，我们将向新的护理人员提供培训和移动的应用程序，以了解他们是否认为它有帮助以及如何改进。我们还将与卫生政策制定者合作，探讨如何将我们的培训和支持计划融入马来西亚的医疗保健系统。中风是马来西亚死亡和残疾的主要原因之一，给经济造成巨大痛苦和损失。我们的培训计划也许能够减少这两种情况。

项目成果

A mixed-methods study on the implementation of a mobile health application (mHealth app) for stroke caregivers in Malaysia: healthcare providers' perspective.

• DOI: 10.3389/fneur.2023.1222260
• 发表时间: 2023
• 期刊: Frontiers in neurology
• 影响因子: 3.4

Exploring the Need for Mobile Application in Stroke Management by Informal Caregivers: A Qualitative Study.

• DOI: 10.3390/ijerph191912959
• 发表时间: 2022-10-10
• 期刊: INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH
• 作者: Mukhti, Muhammad Iqbal Haji;Ibrahim, Mohd Ismail;Ismail, Tengku Alina Tengku;Nadal, Iliatha Papachristou;Kamalakannan, Sureshkumar;Kinra, Sanjay;Abdullah, Jafri Malin;Musa, Kamarul Imran
• 通讯作者: Musa, Kamarul Imran

Family Caregivers' Experiences and Coping Strategies in Managing Stroke Patients during the COVID-19 Pandemic: A Qualitative Exploration Study.

• DOI: 10.3390/ijerph19020942
• 发表时间: 2022-01-14
• 期刊: International journal of environmental research and public health
• 作者: Haji Mukhti MI;Ibrahim MI;Tengku Ismail TA;Nadal IP;Kamalakannan S;Kinra S;Musa KI
• 通讯作者: Musa KI