A population-based longitudinal study of cancer survivors' psychosocial and physical well being

基于人群的癌症幸存者心理社会和身体健康的纵向研究

• 批准号: nhmrc : 252418
• 负责人: Dr Allison Boyes
• 金额: $ 30.31万
• 依托单位国家: 澳大利亚
• 项目类别: NHMRC Project Grants
• 财政年份: 2003
• 资助国家: 澳大利亚
• 起止时间: 2003-01-01 至 2005-12-31
• 项目状态: 已结题
• 来源: https://researchdata.edu.au/population-based-longitudinal-psychosocial-physical/95250
• 关键词: population; based; longitudinal; study; cancer

Cancer control is a National Health Priority Area. About 345,000 new cases of cancer are diagnosed in Australia each year. It is the second highest cause of death accounting for 27% of all deaths in Australia each year. Improvements in diagnosis and treatment have resulted in a growing number of people living with a history of cancer and for longer periods. Many cancer survivors report experiencing negative effects of cancer such as fatigue, anxiety, depression, and disrupted family and social relationships well after treatment has finished. Despite the large burden of this disease, little is known about the later effects that cancer and its treatment has on cancer survivors, their ongoing concerns, how the issues they face change over time and the type of support they need. This will be the first population-based longitudinal survey of the physical and psychosocial effects that cancer has on adult cancer survivors to be undertaken in Australia. It will follow cancer survivors for the first five years from diagnosis to provide data on important outcomes including anxiety, depression, quality of life and unmet needs. It will also provide the first population-based data on the predictors of these outcomes, including social support, coping style and patient demographic, treatment and disease characteristics. Given the large-scale cancer survivorship initiatives underway internationally, it is timely for high quality and comprehensive Australian data to be obtained. These data will provide new information on how the physical, social and emotional impact of cancer changes with time since diagnosis and a better understanding of the support desired by cancer survivors at various stages of recovery or disease progression. This information will help guide the development of policies and services that are tailored to the needs of Australian cancer survivors.

癌症控制是国家卫生优先领域。澳大利亚每年约有34.5万例新癌症病例被诊断出来。它是第二大死因，每年占澳大利亚所有死亡人数的27%。诊断和治疗的进步使越来越多的人有癌症病史，并且生活的时间更长。许多癌症幸存者报告说，在治疗结束后很长一段时间里，他们都经历了癌症的负面影响，比如疲劳、焦虑、抑郁、家庭和社会关系的破坏。尽管这种疾病的负担很大，但人们对癌症及其治疗对癌症幸存者的后期影响、他们持续关注的问题、他们面临的问题如何随着时间的推移而变化以及他们需要的支持类型知之甚少。这将是澳大利亚首次以人口为基础的癌症对成年癌症幸存者的生理和心理影响的纵向调查。它将在确诊后的头五年跟踪癌症幸存者，提供有关重要结果的数据，包括焦虑、抑郁、生活质量和未满足的需求。它还将提供关于这些结果预测因素的第一批基于人口的数据，包括社会支持、应对方式和患者人口统计、治疗和疾病特征。鉴于国际上正在进行的大规模癌症生存倡议，获得高质量和全面的澳大利亚数据是及时的。这些数据将提供新的信息，说明自诊断以来癌症对身体、社会和情感的影响如何随着时间的推移而变化，并更好地了解癌症幸存者在康复或疾病进展的各个阶段所需的支持。这些信息将有助于指导制定适合澳大利亚癌症幸存者需求的政策和服务。