Psychosocial and Ethical Literature in Cancer Genetics

描述(由申请人提供)： 这项申请建议编写一本关于国家状况的权威书籍 与癌症相关的艺术、心理社会研究、伦理写作和政策 癌症基因的遗传学和基因测试。印心十年后 人类基因组的伦理、法律和社会影响计划 癌症遗传学现代的开始，这本书将总结和 批评现有的社会科学和医学文献，试图回答 关于基因技术对人类影响的重要问题。最新进展 遗传学有望推动医学实践发生根本性变化。 基因技术的进步导致了癌症风险评估的新方法。 在接下来的几十年里，关于遗传性基因的信息将会爆炸式增长。 疾病易感性的性质。从一开始，人类基因组计划 已经认识到破译人类基因组的巨大社会后果。 早期迹象强烈表明，心理社会因素在 对基因技术的态度和利用。社会科学 研究可以提供数据，作为制定干预措施的基础 最大限度地发挥基因研究的效益。然而，至关重要的是， 干预措施还考虑了人类使用基因的伦理方面 技术该项目的目标是： 1)从广泛的社会层面对文学进行总结和批判 与儿童心理社会和伦理方面有关的科学和遗传学科 癌症基因检测，2。)使心理社会领域和伦理领域 癌症遗传学的方方面面更接近新的/年轻的社会科学 调查人员，3。)创建链接并鼓励未来的协作研究 在从事基因测试的社会科学家和社会科学家之间 具有相关领域的专业，4.)为了鼓励人们认识到 国际社会科学家在儿童心理社会方面的工作 癌症基因检测，以及5.)鼓励翻译整合 癌症遗传学发展的心理社会研究成果 通过提供易于获取的心理和社会问题摘要 供符合以下条件的医学和遗传学专业人员使用的伦理文献 建立癌症遗传学项目。

DESCRIPTION (provided by applicant): This application proposes the preparation of a definitive book on state-of-the art psychosocial research and ethical writing and policy relating to cancer genetics and genetic testing for cancer genes. One decade after the initiation of the Ethical, Legal, and Social Implications Program of the Human Genome and the start of the modem era in cancer genetics, this book will summarize and critique existing social science and medical literature to try to answer important questions about the human impact of genetic technology. Advances in genetics promise to catalyze a fundamental change in the practice of medicine. Genetic advances have led to new approaches to the assessment of cancer risk. The coming decades will see an explosion of information about the hereditary nature of disease susceptibility. From its inception, the Human Genome Project has recognized the enormous social ramifications of decoding the human genome. Early indications arc strong that psychosocial factors play a major role in attitudes towards and utilization of genetic technology. Social science research can provide data on which to base development of interventions to maximize the benefits of genetic research. It is crucial, however, that such interventions consider also the ethical aspects of human use of genetic technology. The goals of this project are: 1) To summarize and critique the literature from a broad spectrum of social science and genetic disciplines related to psychosocial and ethical aspects of cancer genetic testing, 2.) To make the area of psychosocial and ethical aspects of cancer genetics more approachable to new/young social science investigators, 3.) To create links and encourage future collaborative research between social scientists working in genetic testing and social scientists with specialties in relevant related areas, 4.) To encourage awareness of the work of international social scientists with regard to psychosocial aspects of cancer genetic testing, and 5.) To encourage translational integration of psychosocial research findings into the development of cancer genetics programs through the provision of accessible summaries of psychosocial and ethical literature for use by medical and genetic professionals who are establishing cancer genetics programs.